• 2021,  crafts,  creative,  writing

    Thing a Day February

    Several years ago – searching on my blog suggests longer ago than I thought – there was a non-defunct website that ran a “Thing a day” challenge in February. The idea was to make something – from scratch – every day in the month of February. I tried it in two years at least. And I didn’t manage to do everyday either year. But I remember enjoying it. Then the website changed and it got harder to participate and eventually it disappeared. As all things do it slipped my mind. Then for some reason as I wandered the scenic route home from podiatry this lunchtime, trying to avoid the dug…

  • 2021,  acceptance,  care,  Compression,  Family,  friends,  lymphoedema,  things people say

    The Most Supportive Thing

    I wrote an entry a while ago about blog posts I’d been wanting to write (I’m really good at starting things…) this is part of one of the posts, there maybe a part two at some point but not any time soon. Last week (before the phone call about self-isolation) I had a problem with the carers. No one turned up to do my call and then when I eventually tried to call them to chase it up (much later than I should have because I kept thinking “someone will come soon”) I couldn’t get through on the phone, repeatedly. Once I did manage to get hold of them it…

  • 2021,  care,  honesty

    It is a truth universally acknowledged…

    …that I can cope perfectly well at home not going out when I’m not going out because I don’t want to. But the minute I’m stuck at home for the foreseeable for reasons beyond my control I get cabin fever. Haven’t been out since New Years Eve because of my cold. It’s well on it’s way out had decided to do the full 10 days isolation just in case and was planning to go for a walk probably tomorrow. I’ve been happy at home working my way through a long book and an even longer audiobook and playing games on my iPad. I didn’t really have an enthusiasm for the…

  • 2021

    Not the start to 2021 I wanted

    I had all these plans for things I was going to do on New Years Day. I was going to read lots, use my motomed and update my blog. I was even going to change the layout on here. I might have done some crochet too. And I was definitely going to do some writing Basically I started New Years Eve with a plan to do all sorts of things on New Years Day so that I could “start the year off right.” Start working immediately on all the things I want to achieve this year. But by the time I went to bed shortly before 1am after seeing the…

  • 2019

    Merry Christmas!

    I haven’t managed to get back here since I wrote the last entry and finish any of those half done blog entries. They are still on my to do list to finish at some point. I’m not feeling hugely Christmassy at the moment but there have been moments of festive joy over the last few weeks. Sometimes I think I put too much pressure on myself to watch all the Christmas films, do all the Christmas crafts and read all the Christmas books. So I’m trying to take a step back and enjoy what I have done, rather than worry about what I haven’t. And I’m really looking forward to…

  • 2020

    I’m really good at starting things…

    But rubbish at finishing them. I’m also good at saying I’m going to do stuff but not actually doing it. Those are things I don’t like about myself and they seem to have spread to my blog. About two weeks ago was the three year anniversary of when I started wearing compression. I started writing a blog about it that morning, ran out of time to finish it and planned to return that evening. Then I got a but frustrated around carer stuff and ended starting to write another blog that evening about having carers (not the specific frustrations). I haven’t finished writing that either. I plan to finish writing…

  • 2019

    Normally Abnormal

    Every so often something happens which reminds me that my normal isn’t everyone else’s normal. It usually involves a conversation with an able-bodied person, happens unexpectedly, and leaves me confused. When I was a child it was watching people on stage in the theatre and wondering how they could do that. How could they stand there and not be scared of falling off? I have no real balance when standing and I didn’t understand that the falls which then were a fact of my life weren’t for able-bodied people. And in the last week it was several people not understanding that I just fell over. I have no balance, I…

  • 2020,  40 before 40,  Action 4,  manual wheelchair,  wheelchair

    40 Before 40 – Use My Manual Everyday for 40 Days

    At the end of 2021 I turn 40. So at the end of last year I wrote a 40 before 40 list (it’s not on this blog before anyone goes looking). I always thought that with the number of trips away it would involve I wouldn’t manage all 40 tasks. But that it was good to have aims and I could probably manage a fair number. With the current restrictions I definitely won’t manage most of them because even the one day trips are out of reach. I might write a new “pandemic edition” 40 before 40 list to start after I turn 39, I need to have a think…

  • 2020,  crafts,  Family,  friends,  hospital,  lymphoedema,  powerchair,  Quarantine 2020

    Random Bullet Points of Quarantine-ish Life

    I have been meaning to write a blog post for ages. And as always I’ve started writing a couple and not posted them. So here is a post of Random Bullet Points of Life, written whilst waiting for a carer. I’ve been advised that it’s worth me started to look into a new powerchair. I’ve trialled the one they recommended three times (I trialled, then when the tech came back to work on my Jive and brought it a second time as the weather was better and I could have a longer go, then it turned out I’d have to have a different seating type if I got a seat…

  • 2020,  powerchair,  Quickie Jive,  things people say

    Another of those stories

    A couple of years ago I wrote about discovering I’d become one of the stories my wheelchair supplier tells. A tale of a disaster that they sorted and makes them look good. (And I was thrilled with the way they supported me with that) I’d hope two years later that someone else has taken my place in the stories rotation. But sadly I suspect I’ve probably just edged my way back onto the list. Because less than a week after it was in the workshop for routine maintenance (and after I told a new tech who dropped it back that “I’ve stopped saying see you soon instead of goodbye to…