• 2018,  books and reading

    All things bookish (@readathon October 2018)

    Firstly, for those wondering about Blogtober (daily blogging in October) the story goes: got a bit depressed, some stressful stuff happened, got more depressed, sorted some of the stressful stuff, got a nasty ear infection that’s still gungy and sore (and probably goes someway to explaining my low mood) and then it’s today. It’s the readathon today! I’m aiming low and hoping to finish one book (not sure what yet) and listen to a chunk of an audiobook. I also have a couple of books of essays/short stories so I might dip into those too. Well, that’s my sensible goal. My not so sensible head would like to finish two…

  • 2018

    Random Bullet Points of Life

    For the little things that need recording At the moment I am starting a lot of crochet but not finishing much of it! This week I am going to try to start using my manual chair in the house again. My care package has been in place for so long now that I have little “remember when…” anecdotes which a couple of the carers. I am pleased with the writing I’ve been working on lately but am in need of a new project and have multiple vague ideas. Yesterday was Henry’s birthday. I enjoyed seeing him tear around at his party but just watching was exhausting. Mum and I went…

  • 2018,  benefits,  C-A-B,  DLA,  ESA,  OT

    Oh, the irony

    I was referred for an OT assessment back in April. I actually saw the OT just over two weeks ago. One of the great many questions I was asked (the form had approx 17 pages) was about social involvement. I told him about volunteering for Citizens Advice. He asked if I liked it and we somehow got onto the topic of benefits advice. He mentioned that another service user he had been to see had shown him the medical report from their work capability assessment for ESA. Being that for almost two years now I’ve been doing a lot of supporting clients through either the Mandatory Reconsideration or appeal processes…

  • 2018,  blogging

    An update on Blogtober

    My attempts to do Blogtober, were I said, going to be kill or cure for this blog that I keep almost abandoning, then trying to resurrect only to practically abandon it again. And actually they are going pretty well. I have several ideas for blogs but sometimes I don’t have time to write them. That’s the problem today. There’s been a few tiny niggles. Insignificant in the grand scheme of things but time consuming and a little bit mentally draining. And as much as I planned to write a post about Frida Kahlo and disability, another one about disabled characters in books and possible one with some writing thoughts, my…

  • 2018,  access

    The Future Starts Here

    One of the exhibitions we went round at the V&A on Monday was The Future Starts Here – 100 projects shaping the world of tomorrow. Going to that was a spur of the moment decision but definitely a good one. Some of the things featured where everyday type products – iPhone’s and smart devices (Amazon Echo/Alexa, specifically). Some were products and projects I’d heard of like driverless cars and cryogenics (referred to as “life extension”) – I couldn’t decide if the emergency kit and instructions for what to do when someone who has chosen cryogenics dies were scary creepy or interesting. Others were things I had heard of used in…

  • customer service,  disability rights,  discrimination,  powerchair,  safety,  trains

    A Trip to Paddington

    Last week I wrote about how place are Allegedly Accessible but so often aren’t. About ending up with memories of events that aren’t of the good time I had and the things we laughed about but of things being unexpectedly inaccessible and the pain and struggle that causes. I went to London on Monday. I’m worried that it’s going to be another thing that in years to come my memories are of someone lying to my face and the fear and panic that caused, rather than the fun that came before. I’m angry about what happened. I’m very sad about how my brilliant day ended and being left with those…

  • 2018,  disability,  twitter

    We Are Disabled #blogtober

    I love twitter. I don’t do as much with it as I used to as my boundaries have changed (as they have with a lot of online stuff – I am missing the times when the internet community was smaller and people knew you but they only knew an online, anonymous you). But I still love it. One thing I enjoy about twitter is RoCur – rotation curation – accounts. Those are the ones where a different person tweets every week or even everyday. There are different ones for people from certain places, who work in particular jobs or who have certain interests. They give a snapshot of people’s lives…

  • 2018,  acceptance,  disability,  things people say

    The Things I Can’t Do

    Someone declared a few months ago that there “must be lots of things I want to do but can’t.” They mentioned someone they knew was ill (I believe – had been hospitalised anyway) and was finding they couldn’t do stuff. I think they may have been venting frustrations. I said no, I didn’t know how that felt because I can do everything I want to do. From her reaction, I don’t think she believed me and I ended up back tracking and justifying that statement by pointing out that I’m lifelong disabled so I’ve never known any different (I am annoyed with myself that I allowed her to make me…

  • 2018,  Self-Care

    Self Care Sunday

    Self Care Sunday has been an occasional series on my blog for a few years. I think this is the first time I’ve resurrected it this year. It’s a way to stop and recognise how I’ve been taking care of myself that week. Both the big fun things but also the little, boring but important ones that make up the big picture. I can struggle with seeing that big picture. This week I’ve been tired and I was in bed earlier every night Sunday – Thursday. I was late home on Friday and needed some wind down time before bed. I’ve been wanting to get to bed earlier for ages…

  • 2018,  comedy

    Chubster

    Last night Mum and I went to see Hal Cruttenden in his new show, Chubster. Apparently he asked his teenage daughters to name his show and that was what they choose. Hal himself was pretty good, loved his show. It’s the second time we’ve seen him and if he came back here in a year or two we’d probably go again. It was fun and went on for longer than it should have because he was clearly enjoying himself. Plus, seeing him dance to Let It Go from Frozen when he came on was hilarious. He had a warm up act whose name I’ve forgotten (and googling isn’t finding). He…