• CP related,  down,  Uncategorized

    >Sometimes it’s hard to be a woman…

    >I was so fed up and out of sorts yesterday and I didn’t really know why or what triggered it.  I just ended up getting into a huge downwards spiral of being sad about all the things that CP means I will never do or that I am unlikely to do. This morning I awoke to find the red army in town.  And CP isn’t an issue today or not such a big one. I am thankful for evening primrose oil (and to a lesser extent, antidepressants) which make my PMS much, much more manageable than it used to be. And I am thankful for my CP.  Because there might…

  • CP related,  Poetry,  Uncategorized

    >What Defines Me

    >I was just sorting through a load of my old writings that I did for other places on the Internet as I am finally going to upload them to this website. I’ve decided to upload them seperate to this blog and link to them from the main wheelchairprincess.com page. Some of them are very long so that makes more sense. It does also mean, however, that it’s going to be another couple of days most likely before I get them up. I do have one small piece that I wanted to share here and now. It’s an idea that I think I would like to take further at some point.…

  • Losin' It,  Uncategorized

    >Small Hints of Positive Change?

    >As I was lying in bed this morning I thought my stomach looked and felt like it was smaller. And when I went to the loo right now I found myself still thinking the same once I was back in my chair. That’s pretty huge in more ways than one. My stomach is still huge but to feel a change after only five days is brilliant and to still feel it when sat up is even better. Again I think it is a hydration thing but I do also think that less fizzy drinks (I have had a little diet lemonade) and basically no added sugar has played a huge…

  • Losin' It,  Uncategorized

    >Where have all the Spoons gone?

    >Day four without anything chocolate or coca-cola related. It was a little bit harder to do than the others partially because I was out most of the day shopping with Soph and I am so used getting a coke with my lunch when I’m out and picking up something sweet to take home to snack on. Wednesday and yesterday I was only briefly in places where I could have got treats and Thursday not at all. Today is the first day they were all around me so to speak and it was tough. Very tough. But I DID IT!!! I have now decided however that Millie’s Cookies are THE EVIL.…

  • Losin' It,  Uncategorized

    >Lent 2007 day three

    >So, for Lent, I have given up being fat. It’s not a secret but I have this feeling that if I’m going to succeed and succeed properly at doing this once and for all for the last time I am going to need to journal and I am going to need to journal just for me. I think having my own journal (or a part of this one) that no one else reads to share stuff in will possibly probably be a big help in making this truly the last time I do this to myself. I am half toying with the idea of opening these entries to public view…

  • books and reading,  songs of my life,  Uncategorized

    >Ordinary Miracle

    > It’s not that usual when everything is beautifulIt’s just another ordinary miracle today The sky knows when its time to snowYou don’t need to teach a seed to growIt’s just another ordinary miracle today Life is like a gift they sayWrapped up for you everydayOpen up and find a wayTo give some of your own Isn’t it remarkable?Like every time a raindrop fallsIt’s just another ordinary miracle today Birds in winter have their flingAnd always make it home by springIt’s just another ordinary miracle today When you wake up everydayPlease don’t throw your dreams awayHold them close to your heartCause we are all a partOf the ordinary miracle Ordinary…

  • Family,  travel,  Uncategorized

    >I. Am. So. JEALOUS. Right. Now.

    >My brother is off traveling for six months.  He went at the end of January with his girlfriend.  They started in Brazil (Rio), took a 24 hour bus journey and went to Argentina to see some waterfalls and then went back to Brazil (Sao Paulo).  Currently they are in Ecuador and next week they are going to the galapagos islands and the inca trail.  They are also going to several other places in South America, Australia, New Zealand and Asia. He’s 21 and he’s going back to Australia for the second time which is pretty unbelievable when you think about it – I think he must have been 13 when…

  • awareness,  Uncategorized

    >To Remember Me

    > To Remember Me By Robert N. Test Give my sight to the man who has never seen a sunrise, a baby’s face, or love in the eyes of a woman. Give my heart to a person whose own heart has caused nothing but endless days of pain. Give my blood to the teenager who was pulled from the wreakage of his car, so that he might live to see his grandchildren play. Give my kidneys to one who depends on a machine to exist from week to week. Take my bones, every muscle, every fiber and nerve in my body and find a way to make a crippled child…

  • letter unsent,  Uncategorized

    >I love writing these “Letter Unsent” but I could do without it.

    >Dear medical people of the world, You know the part of medical school where they suggested telling your patients that the deterioration CP-ers tend to face once they hit their twenties is to be expected and just like that which frequently causes professional sports players to retire in their thirties? Yes, that part, you know what I mean. It was a shit part of medical school, it really was and you should have known better than to repeat it to me. And also, telling me I can’t be getting worse as CP is “static” and need no more treatment other than to take more baclofen when you haven’t even examined…

  • sick crip,  Uncategorized

    >Short Version

    >This is the short version I’ve been in bed pretty much all the time since Tuesday with what my GP said was an acute migraine. I’ve said that I’ve had migraine’s before but I’ve not had one like that before and I hope I never do. It was nasty and really put paid to most of my abilities to such an extent I had to ring my parents at 6 am to get my dad to come take me to the loo. It’s over now and I am once again left incredibly grateful that as a general rule I can do things like that for myself. The discussion of CP…