>As some/all of you know I go sailing in Oxford and we are fundraising for a new more accessible pontoon. Tonight at 6pm our group will be featured on local itv news (Thames Valley Tonight) for the peoples millions and we need people to ring and vote for us to win a grant towards this. You do not have to be in this region to vote. The lines are open now and the number is
You can vote up to 10 times from each number
Thank you very much!!
>I did the most wonderfully outrageous and somewhat drastic thing this afternoon. I had my hair chopped off.
It was just below my shoulders and now the longest bits are chin length with lots of shorter bits. And it totally rocks. Pictures soon, promise.
Basically I went in and said to Lizzie (hairdresser) that I was thinking of going short and what did she reckon. I did say no to shaving it all off but other than that gave her free rein, specifying that I meant *short* short. It’s what she describes as a graduated bob but funkier.
And when she was finished she went “you do NOT want to see how much hair is on the floor.” We both agreed that there was a pretty good chance I was leaving more hair on the floor than I was taking home on my head! I nearly took a photo of it but thought that might be a little pathetic.
Anyways one of the comments that Lizzie made was that she wished she was as brave as I was to just go in and have the whole lot cut off. She cuts my friend Sam’s hair as well and her opinion is that we are both brave (or i think she put it crazy) because we’ve now both gone to her going “i’m going short what do you suggest”. She said that she couldn’t do that, that she hides behind her hair. I’d never thought about doing that or that people did so it interested me but we got to talking about other things.
She asked repeatedly was I sure, etc and I just kept saying yes I want to and it’s hair it’ll grow back if I don’t like it. I also said that for my hair is a part of my personality (well I guess hers is too); that it’s a coping strategy maybe a defensive one and a way in which I define myself as more than “that girl in the wheelchair.”
I put it to her that people stare at me anyway because of my chair so why the hell should I worry about my hair maybe not looking great in a new style or dyeing my hair bright pink/purple/blue whatever – better to do it and be happy and have people stare at me for something that I chose and that’s actually worth them staring at. After all, my wheels may be sexy but I’d rather people looked at me and saw who I am.
And whilst that was as far as I went with her there is more to it then that. Life is too short to worry about not having something to hide behind (in my opinion, I am not saying she is wrong) – I’ve lost too many friends too young to worry about what might be. I live (or I try to) in the here and now. Because it’s all I’ve got.
Also there is the part of me that thinks that I sure as hell did not go through all the physio and the three surgeries and the AFO’s and the OT and the teasing etc etc to spend my life hidden away and not doing what I want with my hair (and with my life).
Lizzie said at one point that people normally get all their hair cut off in the summer.
I went “yeah well I’m not normal.”
And you know what? I never will be. My hair is my statement. The way I am abnormal/weird/crazy/whatever on MY terms, not on societies.
Gloria Gaynor sang “Life’s not worth a damn, till you can say, I am what I am” and that’s what I believe.
>Meme time again!
Kay over at The Gimp Parade posted the following about this meme and well, i’m in. Here’s what she wrote:
Like a meme, only it can invade your snail mailbox:
Via Grace at What If No One’s Watching? — By the end of January, 2008, I will send a tangible, physical gift to each of the first five people to comment here, so long as each of those five people are willing to make the same offer in their own LJ or blog.
I’ve taken the liberty of giving myself a month’s more time to accomplish this. Also note that “tangible and physical” possibly means “whimsical and odd.”
So the first five people who comment here will get a gift sent to them. And if my readers will please note that tangible and physical possibly means whimsical and odd like Kay wrote but more than likely also means some for of craft.
So, get commenting, get posting to your own blog and if you comment e-mail me your address at Emma [@] wheelchairprincess.com
>10,000 word long spam comments left on my blog (yes, I cut and pasted it into open office and checked the word count, shoot me).
The fact that when helping with the health and safety audit at work we came to the question on potential tripping hazards Judith turned to me and went “we’ll give that question to She Who Likes To Fall.”
When the guy from the journey care booking line went “so that’s a booking for you and your electric wheelchair to travel to Oxford…” as though my powerchair was another person.
>I wasn’t planning on this entry for a few more days but I got e-mailed a ready written version and I’m all about the lazy lately so here goes:
The Farmoor Reservoir Pontoon Project needs your vote to help disabled sailors.
This project has been fundraising for the past four years to provide a stable pontoon with improved access for disabled sailors. It will also create a larger harbour area which will benefit beginner sailors and windsurfers, especially youngsters, when the winds are stronger or are offshore. We have now raised £120,000 towards the Pontoon Project and are planning to construct as much of the structure as we can afford by next April, but we really need your help.
The Big Lottery Fund – ITV People’s Millions
The People’s Millions is a partnership between the Big Lottery Fund and ITV, in which viewers vote for the project they want to receive Lottery funding. Five grants of £94,000 are up for grabs this year in each our region and there are eight projects to vote for.
We have been shortlisted to take part in the televised competition with a chance to win £94,000 to pay for an electric lift to provide safe and easy access down to the pontoon. The lift will enable disabled people to use the pontoon under all wind and water level conditions. We will be competing head to head for the funding with one of the other eight projects.
Last week an ITV camera crew came to Farmoor Reservoir to film our disabled sailing activities in preparation for editing a short piece in support of the lift. On Wednesday 28th November, ITV Thames Valley region will broadcast short features on both projects during their evening regional news programme at 6.00 pm. The public will then vote by telephone for the project which they want to win the money – the loser gets nothing.
PLEASE VOTE FOR US!!
How to vote (You don’t have to be in the ITV regional area to vote!)
We need your support, so please watch ITV on Wednesday 28 November 2007 and then cast your vote. Ask all the members of your family and all your friends and neighbours to do it too!
If you can’t watch the television you can still vote. The voting lines will open at 9.00 am on Wednesday 28th November and close at midnight. We can only vote for our project on the day of the broadcast. The number to phone to vote for our project will be published in the Mirror, or on the Big Lottery Fund website: www.biglotteryfund.org.uk/peoplesmillions from 9.00 am. We will also send out an email giving the number on the Oxford Sailing Club announce list.
Please use your landline and mobile phones to help us win the money. You can phone up to three times from any number; best to avoid using a switchboard number! The result of the voting will be revealed the following day during the ITV 6.00 pm evening news.
Thank you very much.
All of us on the Pontoon Project Team at
Accessible Sailing, registered charity number: 1114130.
[Image description: Gone Sailing Logo. Black type on a white background. I think it’s Times New Roman The top row says Gone with the O replaced by a wheelchair (in grey) and underneath it says sailing in a smaller size font. It went a little bit pixelated when I grabbed out of word and saved it as .gif]
Small note from me: I’m not overally happy about asking this but please, please pass this message on to anyone and everyone who might be interested. And huge apologies if you’ve already had this from me about six thousand times.
Don’t tell me that you understand,
Don’t tell me that you know.
Don’t tell me that I will survive,
How I will surely grow.
Don’t stand in pious judgment
Of the bonds I must untie.
Don’t tell me how to suffer,
Don’t tell me how to cry.
Don’t tell me this is just a test,
That I am only blessed,
That I am chosen for this task
Apart from all the rest.
My life is filled with selfishness,
My pain is all I see,
But I need you, I need your love,
Don’t come at me with answers
That can only come from me.
Don’t tell me how my grief will pass,
That I will soon be free.
Accept me in my ups and downs,
I need someone to share.
Just hold my hand and let me cry,
And say, “My Friend, I care”.
I was thinking about this poem a lot today. It’s message is something I’ve wanted to get across to many people over the last couple of months. Not just with Stevie’s loss but with the whole “knowing how you feel” thing about my disability. And the whole your life would be better if thing too. Yes, I’ve had some tough times lately and having CP isn’t always easy. But that’s life. It sucks but I love it (paraphrased quote from the first episode of FRIENDS)
I don’t need pity or sympathy or anything at all really. If you are my friend and you know I’m struggling I only need two little words from you. Those words are the only thing that can help me. There are two versions of those two words and either will do. You could always go with both but that might just be overkill.
I care and I’m here
[description: It’s a widget that shows how long until NaNo ends in my time zone, how much I’ve written, and how much I have left to write. It also shows how many words per day I’ve averaged and the estimated date I would finish at that rate (currently Jan 13th as of 11pm 09/11) and the remaining amount of words I must do each day to finish by the end of November. It updates every time I update my profile on the NaNo site.]
And just for coolness factor, the widget is hosted on neilgaiman.com!!!
>Today marks my 7th anniversary as a blogger. I just realised that late last night.
Obviously not all of it is on this site. And some of my older blogs are lost forever. That’s not really a bad thing. When I go back and read some of the older stuff (some of it is saved on my hard drive) it makes me cringe to see what I used to write about and how I used to write. But it’s also nice to have that record.
Even going back to September this year (just for example) if I were to read my entries again I would find things that I had forgotten about. It’s a trigger for my memory and a great way to remember my history. The big things, and the little.
Here’s to the next 7 years.