• baclofen,  fluoxetine,  meds,  spasticity,  terbinafine,  trains,  Uncategorized

    >In which CP makes things complicated

    >Sometimes being disabled is soooo complicated. Yesterday, I saw my GP. When I was waiting to go in something made me jump – and then spasm (my CP means I jump really easily and jumping usually triggers spasms of some form).  This woman sitting opposite me went “oooh that made you jump” which was apparently the funniest thing ever because she burst out laughing as she said it.  Pretty upsetting. My GP asked how I was when I went in and I said “OK” but I was feeling down because of that. Luckily she knows me and went “what does that mean?” So I told her, generally I’m good but…

  • CP related,  terbinafine,  Uncategorized,  you know you've got CP

    >You know you’ve got CP when…

    >Looking at a packet of medication and realising that you are potentially two tablets away from finishing a long term course of medication is very exciting. Otherwise known as Emma’s CP: It’s not all about the wheelchair. I’ve been taking Terbinafine since September and I have an appt with my GP tomorrow morning to discuss whether it’s too soon to take me off it or not.  All week I’ve been counting down and suddenly today I’m like “hmmm maybe she won’t take me off it yet.”  Basically due to a combination of Onychomycosis (fungal infection) and CP I pretty much had no toenails in September.  I hadn’t had proper ones for years. I…

  • Attempts at World Domination,  links,  One Month Before Heartbreak,  Uncategorized,  writing

    >Some Writing Links

    >As my mum commented in an e-mail yesterday I seem to be everywhere at the moment.  A slight exaggeration but I have had some success and exposure lately. I was asked to write for Community Care’s Service User Blog about One Month Before Heartbreak as a promotional thing.  One Month Before Heartbreak: You Can Speak Up For Disabled People Too The Guardian have been great with supporting One Month Before Heartbreak and they’ve mentioned us several times.  This Society Daily article pulled out several OMBH contribution to highlight including one of mine (my This is Disability image) I’m now a contributor for Where’s The Benefit?  The first piece I wrote…

  • me me me,  One Month Before Heartbreak,  Uncategorized

    >Several One Month Before Heartbreak Related LInks and News

    > (I’ve just posted the majority of this on the One Month Before Heartbreak blog but there is some extra more me related stuff at the bottom here) Today has been amazing for support for One Month Before Heartbreak. Sue Marsh (Diary of a Benefit Scrounger) wrote a piece for The Guardian which appeared in Comment is Free.  We’ve been mentioned by The Guardian several times but getting a piece in Comment is Free is huge.  Amplify the eloquent voices of the disabled protesters is Sue’s piece and it’s really good.  It contains many links to specific posts on the One Month Before Heartbreak blog.  Also that article has received…

  • disability blogs,  One Month Before Heartbreak,  Uncategorized

    >A Few One Month Before Heartbreak Links

    >I am very tired and need to go rest (waiting for my dinner to finish cooking and my mum to pop round or I’d already be in bed with a book or in a heap in front of the TV).  But I just wanted to highlight how amazing One Month Before Heartbreak has been.  I’m completely and utterly blown away by what we’ve done and the support we’ve had.  If you google “One Month Before Heartbreak” you get more than 13 thousand results.  13 THOUSAND.  that’s seriously mind boggling. I’ve not had time to share very many links or to do more than skim the posts that I’ve been scheduling…

  • One Month Before Heartbreak,  personal,  Uncategorized

    >Emma’s Story

    > Many of you know that I’m the one who had the idea for One Month Before Heartbreak.  You know my name is Emma Crees, maybe that I’m FunkyFairy22 on twitter and perhaps even that my blog is A Writer In A Wheelchair.  But a lot of you don’t know very much about me.  I’ve not had time to read many of the contributions.  I will have to take several hours once this event is over to read them.  Spread over several days most likely. I’m crazy busy with all this but loving it.  I’ve not had time for writing yet couldn’t sit by and let so many of you share such personal…

  • One Month Before Heartbreak,  Poetry,  Uncategorized

    >Just Trying

    > I wrote this poem back in 2005 and thought it would be worth fishing out and sharing as a part of One Month Before Heartbreak. I’m just tryingTo be meSo much more thanThe girl they see I might have this thingThey call CPBut that isn’tWhat defines me. I am different from youBut I think I have it bestI need a wheelchair and always will. Now I am differentBut eventuallyYou will beThe same as me. Thanks to the great equaliser called lifeOne day you too will experience this kind of strife When you are oldYou will understand what you’ve been told But for nowI will try and explain it somehow.Yet…

  • disability,  One Month Before Heartbreak,  photos,  Uncategorized

    >This is Disability

    >This is a post for One Month Before Heartbreak This is an image I made several years ago in an attempt to show that I’m so much more than just a “disabled person.”  It has various small photos of me doing different things all round the ages.  Then it has words next to them describing who I am.  Including (not an exhaustive list of what’s on the image) sister, passionate, graduate, procrastinator and colourful. Others of the words are things I like.  For example writing, reading, swimming and sailing.  In the middle is a big blue box which has This is Disability written on it with the ability written in…

  • disability,  One Month Before Heartbreak,  The Broken of Britain,  Uncategorized

    >More One Month Before Heartbreak Details

    > With just a few days to go before One Month Before Heartbreak I’m sure everyone wants to know what will happen on the day.  I know I do and I’m running it! This is a work in progress so please bear with me/us. There will be a master links list on The Broken of Britain Blog.  So please let us know where you’re post is so we can include it.  A brief idea of what it’s about is also useful (just topic not details).  You can do this in the comments on the blog or on twitter. We also have a One Month Before Heartbreak blog where we hope to cross post as many submissions as…

  • One Month Before Heartbreak,  Uncategorized

    >Less than a week to go – One Month Before Heartbreak

    >I need to write a post with some more details of One Month Before Heartbreak, I really do.  Hopefully if I don’t get that done tonight (I’m off out in about half an hour not sure for how long) I will get it up tomorrow. But one really, really great thing you can do to help us promote One Month Before Heartbreak is to use this image that Lisa (@IconicImagery) made for us.  Put it on your blog.  Use it as your facebook profile pic or your avatar on twitter.  Or some other site that I either can’t think of or don’t know about (if you do think of another…