• fun stuff,  photos,  Uncategorized

    >Instagrams

    > Playing – a self portrait A mistake with a flower A messy self portrait Part of my bedroom – this is at the end of my bed Bobby – my bear I’ve had since the day I was born. My dad calls him Sir Robert Yet another self portrait this time showing my tattoo (a gecko, all in black). In Reading today an older lady told me she usually hated tattoos but she really liked mine All content copyright Emma Crees, 2006 – 2012 unless otherwise stated http://writerinawheelchair.blogspot.com

  • Uncategorized

    >Time Spent With Friends

    >This evening a bunch of people who’ve done the creative writing course I did got together. There were eight us all together. Some I see regularly and others I’ve not seen for months. And one person I’d not met before but hope to again. It was great fun. Laughter, chatting, catching up and inspiration. I found lots of inspiration in the hour and a half we spent together and might have an idea for a new project and way of writing. I’ve been writing daily this week, not much but a few sentences or a few paragraphs. I’m not sure there’s anything that will come properly from what I’ve been…

  • botox,  care,  serial casting,  Uncategorized

    >A Few Days On

    >Not quite a week since I had the botox (tomorrow will be a week) and I think my ankles may be a little looser.  This is a very good thing.  It’s about the right timescale too as the physio said it takes 7 – 10 days to kick in.  I’m not 100% sure that’s the case, I need to get a second opinion from my dad, but it’s looking good. The first lot of casts go on on Monday.  I’m feeling a lot calmer about that now but it’s still going to be very different and possibly difficult.  I’m just hopeful I get a good result out of this.  As…

  • botox,  serial casting,  Uncategorized

    >Beginning Treatment

    >On Thursday I had my first ever injections of botox.  I received six injections of a very small dose of botox into my calves.  The hope is this will improve the position of my feet and thus my standing and transfers.  I was incredibly nervous about it (and still am) as for a lot of reasons I’ve always said I’d never have botox.  Saying yes was very scary! As a child I had a similar treatment (alcohol blocks) which left me weak and I lost function and needed calipers. Unfortunately both the consultant and my physio feel that whilst I would benefit from botox in my quads I shouldn’t be…

  • personal,  Uncategorized,  you know...

    >You Know…

    >…you have extreme symptoms when you go through them with your consultant and he stops you, checks he’s heard you right and when you confirm he has his response is “Jesus.” Was running through my meds with the consultant at the hospital when he asked about the mefenamic acid.  I told him it’s for my periods and what they were like before I started it. Jesus is probably about right, come to think of it.  They were pretty bad (skipping a month and then having a heavy 17 day long period was my worst ever) looking back.  Mefenamic Acid is working well though to keep the bleeding at slightly more…

  • CP related,  disability,  meds,  physio,  treatment,  Uncategorized

    >In Which I Am Apprehensive About An Upcoming Appointment

    >I’m back at the hospital tomorrow. Only I don’t really know what for.  I rang them on Monday about various things and the receptionist referred to my appt as being at X time with the physio.  But I was under the impression that my appt was 15 minutes later than that and in the clinic with a consultant (although I believe this clinic has physios and consultants working together, I was under the impression I was going as they need me to see the consultant). At the end of the day none of it really matter but… I was already a bit apprehensive about the appointment due to some of…

  • antidepressants,  baclofen,  care,  meds,  pain,  physio,  Sertraline,  transfers,  Uncategorized,  wheelchair

    >Meds and Such Like

    >I think it’s safe to say that at the very least I need to go and chat to my GP about my depression.  I’m much better than I was when my antidepressant was changed to Sertraline but I’m still struggling a lot at times.  That said I don’t necessarily think I need it tweaking again but I’m not sure and I need to keep an eye on these things. And when I went to the physio she was talking about the possibility of changing my muscle relaxants.  Either an increase of my baclofen or taking something else (which said could be instead of or in addition to the baclofen).  I’m…

  • thinking,  tv,  Uncategorized

    >Brief check in

    >I’ve got lots going on and lots to think about and I’m feeling rather frazzled just thinking about how busy next week looks like it’s going to be.  I’m fine but I don’t want to blog about all the stuff I have to think about at the moment (mostly because of one person who might be reading this).  I’ll be back tomorrow with more of an update but for now a few bits: I liked the new Torchwood but thought it wasn’t dark or sexy enough.  I think I probably need to rewatch Children of Earth however because I felt a bit like I’d missed something…  It’s certainly a very…

  • physio,  questions,  Uncategorized

    >Ask Me Anything

    >Haven’t done one of these in a while so I figured it might be fun to do one now. Plus I just thought of a question I’d love to ask another blogger but for the fact it’s off topic to their blog and irrelevant.  That got me thinking that maybe people had things they wanted to ask me but never had… Ask me whatever you want and I’ll answer in an upcoming blog entry (so long as I’m comfortable doing so, although I don’t expect that to be a problem). And seeing as one of my last entries was about going to see the neuro physio I’ll save myself from…

  • attitudes,  books and reading,  disability,  disability blogs,  reviews,  Uncategorized

    >What About The Boy by Stephen Gallup

    >A few months ago I had an e-mail from Stephen asking if I wanted to review his soon to be self published book (it’s out in September).  You can read more about the book on Stephen’s blog  or find it on Amazon. Here’s the text on the back: Nobody knew what hurt little Joseph, and no one was offering a way to help him. He cried most of the time, and thrashed about as if in pain. He wasn’t learning how to crawl, talk, or interact normally. Doctors told his parents to seek counseling, because nothing could help their son, and the quality of their own lives was at risk.…