• 100 days of writing,  2012,  baclofen,  botox,  hospital,  neurology,  physio,  spasticity,  Uncategorized

    >The Man With The Needles

    >I’m going to see my neurologist tomorrow in spasticity clinic. Hopefully this will be a joint appt with my physio (it’s meant to be but the track record on that isn’t good) to discuss whether I need more Botox. And for me to have the jabs if so. I suspect that will be the case. I also wonder if my baclofen will be upped. I described that to a friend as “going to see the man with the needles” last week and thought that was an intriguing idea for writing. Today is day 35 of 100 which feels like a huge number of days achieved. Especially as I almost forgot…

  • 100 days of writing,  2012,  powerchair,  Quickie Salsa,  spine align,  Uncategorized,  wheelchair

    >It’s The Most Wonderful Time of The Year

    >I got my new powerchair this afternoon! It’s a Quickie Salsa M with a jay3 backrest. And it’s red and silver. The silver part of that was a surprise. I’ll post more about it when I’ve had the chance to give it a good run. But so far I’m enjoying it. I didn’t know it was coming today but when I got up (after sleeping late) I saw I’d missed a call from the supplier and found out they could come in a few hours. I got in the shower after that, practically bouncing with excitement. And I was singing “it’s the most wonderful time of the year”. Badly. I…

  • 100 days of writing,  2012,  Uncategorized

    >Self Care

    >Day 33 of 100. A third of the way there! WritingThinkingWishing Dreaming Procrastinating but also notA couple of minutes to rechargeLeads to OpportunitiesUnexpectedAnd improved prospects forOpportunitiesExpected PuzzlingCrappy TVKnitting Reading Taking timeFor meWhich some callSelf careIt’s importantBut sometimes IFeel guiltyI need toFocus on itMore thisYearBut it’s hardTo switch gear LaughingJokingDrinkingDancing Might doWould doCould doShould doPressure, pressure, PRESSUREWould haveCould have Should haveLast words of a fool SleepingSwimmingWonderingLoving Society expectsKeep up with the Jones’People keep goingNeed to betterMake every minute countCarpe DiemWon’t live forever TiredOverwhelmedDepressedLiving Saying noToo much pressureToo much to doToo much guiltPutting myselfFirstFrom now onSelf careDifficultBut oh soImportant ♥ Emma All content copyright Emma Crees, 2006 – 2012 unless otherwise stated…

  • 100 days of writing,  2012,  disability,  Uncategorized

    >Music Maestro

    >I watched a programme this evening about the musician Barbara Thompson who has Parkinson’s and how she tried to balance her condition and her career – trying to find treatments which allowed her to do both and improve her quality of life. It was really interesting even though the eternal quest for a cure isn’t something I’m interested in. That’s where having a life long condition sets me apart from a lot of other disabled people I think. I don’t dream of a cure as I’ve never known any different. After the programme ended they showed a fifteen minute concert of her music (Jazz). I wrote the following whilst listening…

  • 100 days of writing,  2012,  Uncategorized

    >Words

    >I’ve had a really good day. Productive and lots of fun. Plus there was a cheeky long island iced tea thrown into the mix this afternoon which is always good. I’m giving this no introduction. It is Day 31 of 100. Words Words on paperWords on a screenWords in the airWords in my headWords here and thereWords in my bedWords surround meBut what do they mean? Words on the wallWords in a bookWords on the phoneWords in a tweetWords never leave me aloneA wordless Emma is incomplete Words that I sayWords that I thinkWords that I hearWords fill everydayWords that aren’t clearNew words, old words, everything in between Words that…

  • 100 days of writing,  2012,  Uncategorized

    >Puzzles

    >I was thinking about the way I use games like Bookworm and Bejewelled for fun and also as a distraction/calming mechanism when struggling mentally or emotionally. And about the phrase peace in puzzles I’ve heard a few times. I had little motivation to write this evening and was procrastinating playing Candy Train and Bookworm. My mood has been an issue the last few days. In the end I decided to write about puzzles. I had expected to write something that featured a character using puzzles similar to how I do. Once I started writing however I got quite into it, it was easier than I expected and it went off…

  • 100 days of writing,  2012,  Uncategorized

    >A family scene

    >This is an idea that I nearly used for NaNoWriMo last year and pulled out today to have a go at. I still think it would suit a longer project but this part seems to be pretty self contained and work like that. I think it’s the longest piece I’ve done for this project so far. Day 29 of 100 A family scene Things were looking up for the Rollins family it seemed. It was about time too. Zoe was feeling a little better and was about to be released from the hospital, Dylan had a birthday coming up and their brand new baby sister was due to be born…

  • 100 days of writing,  2012,  Uncategorized

    >In which I compare a person and an iPod

    >I have two brilliant prompts to write but I just can’t think of how to do them justice right now. So here’s a very small thing inspired by the fact I’ve not been sleeping well so feel a bit drained now. Early night once One Born Every Minute finishes me thinks. In which I compare a person and an iPod Ugh she thought. I have no energy. Completely drained. But at the same time she knew there was no point in going to bed because she wouldn’t sleep. She felt a bit like she imagined an iPod that’s been left on and forgotten about must feel. She tried and tried…

  • 100 days of writing,  2012,  haiku,  Poetry,  Uncategorized

    >A few more haiku

    >This wasn’t what I planned (I’ll do that tomorrow) but it’s what I apparently want to write. These are haiku and I wrote them as stand alone pieces but reading them back through they do seem to work together well. I’m surprised by that as I seem to have a lot of The Stupid today. I might try writing some tanka soon but I’ll need to refresh my memory on the syllable counts of lines four and five first (I think the first three are the same as for haiku) Day 27 of 100. My needs cause angerFor once from others not meThinking it’s my fault Disability differsAs everything else…

  • 100 days of writing,  2012,  Uncategorized

    >Another Ride

    >Very tired this evening. My Monday’s have been very busy lately and today was a little unexpected as well. In a good way. But it’s left me surprised, a little emotional (again in a good way) and with lots of thoughts swirling round in my brain. I plan to write a general update tomorrow which will maybe cover some of this. But for now I’ve tried to capture some of that that in the following. Day 26 of 100 days of writing Another Ride Perfect powerful painfulSlowly simmering sloth-likeEager elegant experienceAnticipated apathy awarenessSurprises slipping sometimesBrilliant belligerent beatenBest better beautifulFeverish fearsome fighterGuarded grateful greatLoving lethargic laterLost lonely loserPictures. Memories. Hopes.Thoughts. Dreams.…