• 2012,  argh,  attitudes,  disability,  Uncategorized

    “really nice”

    There’s an acquaintance of mine who is said to be “really nice”.  We really don’t know each other well and I can’t say I have much desire to as we very blatantly have little in common. A little less than a year ago they shared their view that my disability is tragic amongst other well meaning yet offensive comments. A few days ago in another conversation they asked me yet more rude questions and were in my opinion very inappropriate in things they said to another disabled person. Here’s the thing: if they had made similar comments with a racist or homophobic slant that “really nice” label would soon disappear.…

  • Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …the staff at the pub move a table outside especially for you and your friend (who is also a wheelie although not a CPer) to have lunch at. We arranged to have lunch at the pub on the grounds that it’s lovely weather but somehow we both forgot that you can’t get up to their outside tables properly on wheels. If they were standard picnic tables It would be a bugger but doable. These are wooden tables with individual attached seats though. Not wanting to miss out in the sunshine and lunch combo we pointed that out to them. The staff member took our order and said she’d see what…

  • Uncategorized

    Things That I’ve Been Reading

    This could otherwise be titled “the mostly Lord Peter Wimsey” edition. As well as these books I’ve read two I was sent to review. Those reviews will be up later in the week. The Attenbury Emeralds by Jill Paton Walsh This is the last of the Wimsey books. I don’t know why I read it out of order but I did. In fact I read it in one afternoon and really enjoyed it. One particular plot point really drew me in and got me worked up. This is the first book in a very long time that I finished and then immediately went back to reread bits of. However some…

  • advocacy,  down,  sailing,  Uncategorized

    A tough week

    It’s been a tough few weeks and although I’ve been able to pull some good out of this week and feel like I’m making progress again this week does feel like a tough one.  That’s probably an unfair thing to say but it’s how I feel. I’m probably biased by the fact I’ve really had a crap day.  The morning was full of me being stressed about the afternoon, the afternoon and early evening sucked  and I felt very much like I was gonna crack up if this continues but after about half six the day got better.  I feel calmer and happier about things now.  In part I think…

  • 2012,  dose of happy,  sailing,  Uncategorized

    Things That Make Me Smile

    Getting several phone calls and emails and similar “bits” done in one morning all of which have been hanging over me for days if not weeks. Sitting outside reading in the sunshine. It was a book I’d been sent o review and not only was it free it was very good. A long sail in the sunshine. It didn’t feel like there was much wind but I was able to keep the boat moving all the time. And once or twice I hit the wind just right and really took off.   Seeing a friend in the distance but not being able to chat. I’d have loved to chat. But…

  • 2012,  acceptance,  Uncategorized

    I can, I will, I am.

    I was just listening to something that talked about focusing on those six words: I can I will I am I thought it might be an interesting thing to listen to but I didn’t expect to take much away from it. Actually I did though which surprised me. I think those six words and the reminder to remember that might just prove very useful

  • 2012,  Cheerful Stuff,  Family,  friends,  fun stuff,  good things,  songs of my life,  surprises,  things that make me smile,  Uncategorized,  unexpected things,  yayness

    Party Memories (part one)

    Small bullet point memories of my 30th birthday party.  I’ve been putting off writing this until I feel less depressed.  I do feel like things are moving forward from that point of view but they’re still bad.  It occurred to me however that I might feel better for thinking and writing about something very cheerful so here goes… It was really, really good fun. I danced so much that my back hurt most of the next day.  That was totally worth it. I’d really agonised over the venue because the party room and bar are on one floor and the two disabled loos are on another (right next to each…

  • Uncategorized

    I hated every minute of the training but I told myself “don’t quit. Suffer now and live the rest of your life as a champion” ~ Muhammad Ali

  • advocacy,  Uncategorized

    For Once

    I have spent a lot of time and energy lately fighting two particular access fails. Both are pretty big things, completely ridiculous, impossible to ignore and in my opinion would be easy to solve if the people involved stepped back from their default “we can’t” reaction. One, the problem with train access I blogged about last week, isn’t resolved to my satisfaction. But I know I’ve been heard and that they’ve made a plan to accommodate me. The second problem needs a lot more time and energy to explain in full than I have. I do plan to blog about it but I don’t want to do so here as…