• 2012,  acceptance,  access,  advocacy,  Attempts at World Domination,  Cheerful Stuff,  depression,  disability,  discrimination,  so you had a bad day,  songs of my life,  Uncategorized

    Loser Like Me

    This entry may come across as cagy. It is deliberately so. I’ve been dealing with a completely ridiculous access fail for the past 12 weeks. Basically it’s done a complete number on my self confidence and depression, serving as a weekly reminder every Thursday that I’m different and that I’m not worthy of what everyone else has. Twelve weeks of being told they’d made a decision to do X about including me and then suddenly two weeks later we’ll do Y or oh no Z instead. It is dealt with. I’m not exactly enamoured with the reasonable adjustment type solution they’ve come with. Full the same as everyone else access…

  • 2012,  quotes,  Uncategorized

    A few quotes

    I have a free quote of the day app on my iPad. It shows three quotes at a time. Today’s, yesterday’s and a random one. Today I thought all three were worth sharing. “One man with courage makes a majority” ~ Andrew Jackson “Success isn’t the result of spontaneous combustion. You must set yourself on fire.” ~ Arnold H Glasow “For everything you miss you gain something else and for everything you gain you miss something else.” ~ Ralph Waldo Emerson

  • 2012,  botox,  CP related,  hospital,  neurology,  serial casting,  Uncategorized

    A year later

    OK so it’s not quite a year later but it’s as close to a year later as I’ll get. Last July I had my first lot of botox and that was then followed up with serial casting in August. The TL;DR version for anyone who doesn’t want to follow that link to all my entries on it is as follows. Serial casting was not a particularly fun experience but I saw a lot of improvement. Unfortunately not as much improvement as to get my feet into a “normal” position but the amount (approx 20 degrees improvement in range and position improvement) is agreed by everyone to be huge. Yesterday I…

  • 2012,  Uncategorized

    Random Bullet Points of Life

    I have four part written but never finished blog posts. At least one will never see the light of day the Internet. Something is going on with my left foot. I fear it’s a new contracture. Am at spasticity clinic later in the week so it’s good timing at least. Soph and I bought Dad the DVD boxset of The Bridge between us for Fathers Day. I thought it sounded like it wasn’t my thing but I was hooked I tell you. Hooked. We watched four episodes and I can. not. wait. to see the rest. I thought the subtitles would put me off but they didn’t. I’m still fighting…

  • the cripest loser,  Uncategorized

    Day by Day

    The situation with my weight is a subject I need to blog about in more detail. There’s been a lot going on there both good and bad. And it’s been one of the major reasons I’ve been struggling with my depression lately. But because I’m trying hard to remember the big picture here’s a few things I want to remember. Good things to look back on when it all gets too much and I think I can’t do it any more. I’ve been consistently gaining weight for about a year. For the past seven weeks I’ve maintained it. I’ve been exercising a lot more lately. I’ve been using my fitness…

  • benefits,  campaigns,  current affairs,  disability,  The Broken of Britain,  Uncategorized

    There for the most deserving

    This was a really good post in my opinion.  But wordpress ate it and it published blank with all the points I spent ages making gone off into the ether and not here on my blog where they should be. It was about my friend who after being very ill, spending time in intensive care with multi organ failure, having nearly six months off work and being diagnosed with a life long condition.  And about how she’s new to the world of disability, support, benefits and all that entailled.  But already learning about not being “disabled enough”.  Being told by people that she should be able to get help but…

  • books and reading,  reviews,  Uncategorized

    One Perfect Summer by Paige Toon

    Simon and Schuster sent me a copy of One Perfect Summer by Paige Toon to review. It’s actually the second of her books that I’ve read and the second that I’ve had to review. The first was Baby Be Mine which I read last summer. I said in that review that I’d like to read more of her books and having now done so I would definitely say that was the right decision. Here’s the synopsis: ‘Do you still love him?’ Every second of every minute of every hour of every day…Alice is18 and about to start university while Joe’s life is seemingly going nowhere. A Dorset summer, a chance…

  • 2012,  acceptance,  Uncategorized

    Quote

    “Who I am is valuable because I exist. The truth is we don’t have to do a thing in order to validate ourselves as worthy and valuable. You are not a human doing. You are a human being and being means not identifying yourself by what you do and what you accomplish”. ~ Wayne Dyer