• 2013,  crafts,  knitting,  Uncategorized,  wheelchair,  you know you've got CP

    You know you’ve got CP when…

    …knitting in your powerchair looks like this: A ball of black and silver sparkly yarn (Sirdar Firefly) with a hole in the middle balanced on the control of my powerchair. The joystick is through the middle sort of like a spindle. And knitting your manual chair looks like this: The same yarn balanced on my manual chair. The brake is acting as a spindle. The ball is slightly smaller here (it comes wrapped on a ring of card) and the central hole is larger.

  • 2013,  books and reading,  reviews,  Uncategorized

    Dear Thing by Julie Cohen

    The weather is warmer today. Which meant I could get outside reading again! I did need to wear my hoodie but that’s ok… I was reading a review copy (received from Transworld in exchange for an honest review) of Dear Thing by Julie Cohen. I’d read the first maybe 14% (kindle book) on the train a few days ago. I sat and read the remainder in pretty much one hit sat outside this afternoon (stopping only for five mins to speak to my dog walking neighbour). My kindle kept flashing low battery messages but I couldn’t bring myself to put it down and I was just hoping it would last…

  • Uncategorized

    Random Bullet Points of Life

    1 my glasses broke. Knocked them off of my bedside table and a lens fell out. But it should be easily fixed. 2 my wheelchair cushion is basically dead. Tried to take the cover off to wash it and discovered the gel or something where it shouldn’t be and making a mess. Wheelchair services are getting me a replacement. Have I mentioned lately that I love the NHS? Jay 2 deep contour that I use retails at roughly £500. Cost to me? Free. 3 I haven’t drunk coke in over three weeks. 4 Turns out I can still transfer in and out of a Challenger without a hoist. I will…

  • 2013,  books and reading,  reviews,  Uncategorized

    Club Monstrosity by Jesse Petersen

    I received an advance review copy of Club Monstrosity by Jesse Petersen.  This was via Net Galley.  Club Monstrosity is currently ebook only and a second book in the series will be coming out in July.  It doesn’t appear to be going to be released in the UK.  I can find no information on this and it’s not listed on Amazon UK so that’s all I can think.  This is disappointing because I wouldn’t have requested a review copy if I’d been aware of this. To be honest I’m very surprised the published accepted a request from a UK blogger, a lot wouldn’t have. As a result this will likely…

  • 2013,  books and reading,  reviews,  Uncategorized

    Home Front Girls by Rosie Goodwin

    If you read my April Readathon post you might remember that one of the books I read was Home Front Girls by Rosie Goodwin.  I received a free copy in exchange for sharing my opinion of it.  It’s in no way influenced by the fact I was asked to review it. Here’s the synopsis: Dotty, Lucy and Annabelle all turn up for work at Coventry’s department store Owen Owens at the time war is declared. Dotty has never known a life outside of the orphanage where she grew up. Lucy is the sole carer of her little sister; she’s head of the home now that her brother has gone to…

  • 2013,  I wish I wrote this,  me me me,  Poetry,  things that make me smile,  thinking,  Uncategorized

    Dust If You Must

    So as you can probably tell from my last few blog entries I’ve been doing a lot of thinking lately. My sister commented on one of those entries that it made her think of a poem that’s doing the rounds on Facebook. I’d seen the one she meant bit not paid too much attention to it. Sometimes my newsfeed feels like a never ending stream of photos, poems, quotes and sentiments all designed to inspire or to make you think or feel good and they begin to blend into one. Which probably defeats the object but there you have it. Anyway after reading that comment I did a little googling…

  • 2013,  acceptance,  C-A-B,  courage,  disability,  ESA,  Uncategorized

    Recognition

    Not long after I wrote yesterday’s post it occurred to me that I’ve actually been doing a brilliant task lately of taking better care of myself. And that not only is the guilt I felt yesterday unnecessary, it’s also unwarranted. I’ve always struggled with recognising the good things I’m doing. For some reason it’s much easier for me to remember and focus on the negative than the positive. I suspect that’s true for most people but it feels like something I need to work on going forward. Make it a goal for the rest of the year perhaps? At CAB I often point out to clients things that from my…

  • 2013,  Uncategorized

    Sunny, Sleepy, Saturday

    My weekends in May look to be manic. Apart from this one. I’m going to see the play of The Count of Monte Cristo with a friend in a little while which I’m looking forward too. But apart from that I’ve no plans for this whole bank holiday weekend. And I didn’t have any plans yesterday and didn’t leave the house. I read a lot, chatted to my neighbour and played on my wii. And on Thursday I spent the day waiting in for people. I spent loads of it sat outside with a book. Then in the evening I went to my knitting group. But today’s been the laziest…

  • 2013,  C-A-B,  CP related,  powerchair,  Quickie Salsa,  sailing,  Uncategorized,  you know you've got CP

    You Know You Have CP When…

    …you get congratulated on still having the wheels on your powerchair. Twice. On separate days. …you go to say goodbye to the same person who congratulated you because they’re leaving the bureau and moving on to a new job. And amongst the “wishing you well” comments they make they include that they “hope your wheels don’t fall off” …you wear out all four if the castors on your powerchair in 14 months. Hence all the wheel falling off comments because it was a genuine possibility while I was waiting for the replacements. …your Dad books an accessible taxi to take you, him and your mum to your brother’s wedding. When…