I was rereading some old blog entries earlier. I was planning to write something (not this post) and I thought maybe I’d written about it last year. I didn’t find anything but what I did come across was this post. I thought it was kind of apt given a piece of news I received today.
After three and a half months I finally received my new wheelchair cushion. It’s strange. It’s good and it’s comfy. But it almost feels off. This is set up differently to my old one and I’m not sure if that’s why (I have the stuff to change the set up to my old one if necessary), if its because it needs to learn how I sit or if it’s just because I spent the last two months with makeshift temporary cushions.
In the box with the cushion was a 20 page instruction booklet in 8 different languages. And an envelope with my name on it marked “private and confidential”
It was a letter. One with information about my cushion.
And then acknowledging the complaint I made to PALS about my five hour round trip to wheelchair services when they didn’t have my cushion in yet. They’re sorry but hope I did find some use in the appt (uh… Not so much).
Finally it said they’ve had a meeting with their administration team and put a system in place. One that will make sure what happened to me won’t happen again. I’m pleased. In fact I’m really pleased. If the system works and I truly have made a difference for other patients that’s huge.
But as I wrote in the entry I linked above for once I’d like not to be the one who is first and discovers a problem or the one who has it last and finds the solution. I’d like to be the one who came next.
Still, there’s always next time. Or the time after that. Failing that there’s also the time after that. Because god only knows the disability related fuck ups aren’t going to stop happening.
Maybe just once I’ll be the lucky one.