• 2014,  BADD,  Uncategorized

    BADD 2014 will be Thursday 1st May 2014

    It’s nearly 1st May!  And if you’ve been around my blog (or many other disability blogs) in the years dating back to 2006 you might know that in the disability blogging world 1st May is also known as Blogging Against Disablism Day or BADD. BADD is run by The Goldfish – you can see this year’s launch post here. She describes it as   This is the day where all around the world, disabled and non-disabled people blog about their experiences, observations and thoughts about disability discrimination (known as disablism or ableism). In this way, we hope to raise awareness of inequality, promote equality and celebrate the progress we’ve made.…

  • 2014,  books and reading,  reviews,  Uncategorized

    A Jersey Affair by Georgina Troy

    I received a free copy of A Jersey Affair by Georgina Troy in exchange for review.  The fact I received a free copy in no way influences my review but I do try to be fair. A Jersey Affair is book two in Georgina Troy’s Jersey Romance series which she describes as “a series of stand alone romance novels set in Jersey.”  I don’t think you need to read the first one, A Jersey Kiss, before reading this one.  I haven’t read it and it didn’t make any difference to my enjoyment of A Jersey Affair.  But that said I would like to read A Jersey Kiss.  Rumour has it…

  • 2014,  books and reading,  Uncategorized

    April Readathon

    11:06 am Today is Dewey’s Readathon.  I think this is probably the sixth time I’ve taken part in this.  And I nearly didn’t sign up this time, kept changing my mind for several days.  Right now I’m thinking that probably deciding against it would have been a better idea.  Mostly because I’m tired and not feeling 100% well (I’ve had a cold which turned to very painful sinusitis which is clearing up but I feel off today). But I will be reading because I need a lazy day catching up on some rest and trying to do something about the ridiculous amount of books I have in my flat with…

  • 2014,  disablism,  things people say,  Uncategorized

    Can you actually hear yourself?

    Sometimes I think I should start carrying a dictaphone or similar around with me everywhere and recording my conversations.  Because just lately so many people have said things to me – people who I know – and have come across so ableist that I’ve been shocked.  And in a couple of the cases I’ve known what they’ve actually meant and suspected that if I made them listen back to what they said they may well realise how inappropriate their wording was. In two of the three most recent cases I feel confident that the other person in the conversation didn’t mean to hurt me and was just wording things wrong…

  • 2014,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    I’ve had my hair in all sorts of lengths, styles and colours over the years.  But it’s been over two years since I last dyed it and I’ve just about grown my roots out. When people commented on my outlandish hair they’d sometimes ask if people stared. I used to joke that I dyed my hair purple or blue or pink or shocking red because people would always stare at me because of my chair so why not have my hair a crazy colour and give them something to stare at.  Putting it on my terms rather than theirs.  The last time I dyed my hair purple (not the last…

  • 2014,  disability,  quotes,  Uncategorized

    We’re all going on a quote hunt

    I’ve been looking at disability statistics lately.  I wanted one particularly statistic and ended up getting sucked in by several different ones.  But that’s a story for a different blog entry.  One that I don’t feel like writing right now.  I was then thinking about one of those statistics and thinking that I’ve read a quote similar to it.  I was pretty sure I’d shared it here so I went hunting through my quote entries.  I don’t think it actually is here but I found several I’d forgotten about and thought I’d reshare. “If someone asked you ‘can you swim a mile?’ you’d say ‘nah’. But if you found yourself…

  • 2014,  Uncategorized

    Busy

    It feels like ages since I sat down to properly update my blog.  It hasn’t, actually, been ages.  Just over a week since I last updated my blog and a few days before that when I posted before that.  It has however been about two weeks since I posted update type general stuff.  Just haven’t felt like updating.  And I guess you could say I’ve been too busy living to write about it.  But that feels a bit pretentious. And wrong. I went to London twice last week.  Once to a matinee of Charlie and The Chocolate Factory.  It was good and I liked it but it’s not the best…

  • 2014,  Uncategorized

    For Good

    For literally years I wanted to go and see Wicked the Musical but I couldn’t because it wasn’t touring and the London venue has dodgy access (basically, they say it’s dodgy but based on what they say and my parents sussing it out when they went to see Wicked it wasn’t going to be possible).  Then it was touring but it wasn’t coming anywhere near here. Then I had my last birthday. On the table with my presents and cake there was one about the size of a shoe box but incredibly light.  When I unwrapped it I found a plain brown box full of paper.  And when I got…

  • 2014,  sailing,  Uncategorized

    Spotted at the sailing club

    The sunset at about 7:30 last night at the sailing club.  I love how blue the sky is in this despite how rapidly the last of the light was fading.  The reservoir is completely empty. This is a close up of the same sunset taken a minute or so later.  Our accessible pontoon is clearly shown here as well as the sunset.  This picture feels darker because zooming in has removed a lot of blue of the sky. Also spotted at the sailing club: an Emma having her first sail of the year.  Unexpected as there wasn’t any wind so it looked like it wouldn’t happen and then when I…

  • 2014,  action3,  Uncategorized

    A part of my body – me and my Action 3

    When you’re given a wheelchair on the NHS it’s expected that it won’t be replaced for five years.  The exception to this rule is if you’ve had a change of need.  For example growing up I never, ever, hit the five year mark because I was growing taller and needed bigger chairs.  I was told when I got my current chair and asked for clarification of what a change of need might be that they “wouldn’t expect to see a change of need in someone with CP.”  The five year life of my Action 3 (my current manual chair) is up in about six months.  So I’ve been thinking over…