2018,  care

Five Things I had Forgotten About Having Carers

According to this blog it’s nearly 9 years since I stopped having carers.  My care package to manage my lymphoedema has been in place for just over three weeks now.  And it’s going well. Most of the carers I’ve met I’ve got on well with (some I’ve only met once so it’s hard to know how I’ll get on with them) and there haven’t been any of the problems I anticipated with getting my wraps applied tightly enough. I am however remembering several things I had forgotten about having carers.  Here are five of them.

1) Your time is not your own. Just because the evening visit is scheduled for 8 doesn’t mean it’ll happen at 8. Officially they are allowed to come 15 minutes either side of the time without letting you know. But that doesn’t account for the times they changed the scheduled time to earlier and forget to tell you.

2) Never make an attempt to finish reading your book or watch a film before the carer comes they’ll turn up as you’re about to finish it when the ending has just got interesting. The same applies for making dinner to be ready not long before they come

3) The actual carers who come out are brilliant but invariable you’ll get annoyed with the people doing the organising because it’s a difficult job filled with bureaucracy and bureaucracy and being able to live your life with support aren’t good matches.

4) Every carer needs a different level of reminders/prompting when doing your care and it’s a really tricky line to negotiate between giving someone enough instruction to do it right and so much they feel you think they’re stupid. It also requires remembering who which applies to.

5) Everyone you’ve ever met has an opinion on you having carers and for the majority of those (especially from those who’ve never had carers themselves) it’s best to ignore it.  The experience of care and how the system works is very hard to describe and it’s probably best not to try.


  • Fran Macilvey

    Interesting to read this, as I have friends with carers, and they have similar challenges – thank you. It’s lovely to be back on your notification list, Emma! 🙂

    We still have snow here, so it’s good to know it’ll be gone in a couple of days.

  • filmelacinema

    Is it the thing something you sit on to stop you getting bed sores? I had the same trouble with carers when they came in three times a day to look after my Husband. If they could get away with not shaving him they would. They were supposed to make the bed if you could call it that. They never turned up on time or one would come and I was expected to do the other ones job. Love Margaret x x

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