• 2019,  Dad

    At the moment (18th January 2019)

    So, this was the week that was… This week I finished listening to an audiobook that I started listening to on New Years Day.  East of the Sun by Julia Gregson was a very interesting book. I was hooked to start with and really wanted to know what happened. By the end I was fed up with it and ready to be done (but still wanting to know). It felt like it could have been seriously trimmed down.  I have been wondering however if part of the issue is that I had it in audio. The narrator was a good one but I definitely read much, much faster than I…

  • 2019

    At the moment (11th Jan 19)

    A recap on this past week. I haven’t finished a single book this week but I continue to listen to an excellent audiobook most days, I’m dipping in and out of two ebooks and I did read a couple of chapters of a paperback. Plan for the weekend is to finish a book! Crocheting the blanket continues – it’s an ever evolving plan. I’ve put it aside to try to finish knitting a scarf I started before Christmas. I have two other scarves made and I want to get them posted off to charity. Slow progress on the writing but there is progress. Mum helped me sort my lounge a…

  • 2019

    At The Moment (4th Jan 19)

    I follow a couple of blogs who post weekly or monthly updates on what they’re up to – things they’ve done, what they are watching, crafting and reading etc. I also follow a couple of blogs who post daylogs either in daily entries or a few of them every couple of days. I used to do similar back when I was at uni and blogging was still outside the mainstream. But now I hardly do and I kinda miss it. I thought to start with that I might try and start writing a daylog again but we all know that’s a goal I’m not likely to meet. And to be…

  • 2018

    As 2018 Draws To A Close…

    …I wanted to once again blow the cobwebs off this oft neglected blog to wish everyone who reads it and those who have supported me a very Happy New Year and best wishes for 2019. I think, on the whole, 2018 has been a good year. There have been some difficult times and more difficulties than I would like (particularly with having to have carers again, and such an intense care package at that). But there have been many good times, exciting achievements and positive things to remember from this year. Ones that, taken as a whole, out weigh the bad. As I’m writing this I’m reminded of all the…

  • 2018,  books and reading

    All things bookish (@readathon October 2018)

    Firstly, for those wondering about Blogtober (daily blogging in October) the story goes: got a bit depressed, some stressful stuff happened, got more depressed, sorted some of the stressful stuff, got a nasty ear infection that’s still gungy and sore (and probably goes someway to explaining my low mood) and then it’s today. It’s the readathon today! I’m aiming low and hoping to finish one book (not sure what yet) and listen to a chunk of an audiobook. I also have a couple of books of essays/short stories so I might dip into those too. Well, that’s my sensible goal. My not so sensible head would like to finish two…

  • 2018

    Random Bullet Points of Life

    For the little things that need recording At the moment I am starting a lot of crochet but not finishing much of it! This week I am going to try to start using my manual chair in the house again. My care package has been in place for so long now that I have little “remember when…” anecdotes which a couple of the carers. I am pleased with the writing I’ve been working on lately but am in need of a new project and have multiple vague ideas. Yesterday was Henry’s birthday. I enjoyed seeing him tear around at his party but just watching was exhausting. Mum and I went…

  • 2018,  benefits,  C-A-B,  DLA,  ESA,  OT

    Oh, the irony

    I was referred for an OT assessment back in April. I actually saw the OT just over two weeks ago. One of the great many questions I was asked (the form had approx 17 pages) was about social involvement. I told him about volunteering for Citizens Advice. He asked if I liked it and we somehow got onto the topic of benefits advice. He mentioned that another service user he had been to see had shown him the medical report from their work capability assessment for ESA. Being that for almost two years now I’ve been doing a lot of supporting clients through either the Mandatory Reconsideration or appeal processes…

  • 2018,  blogging

    An update on Blogtober

    My attempts to do Blogtober, were I said, going to be kill or cure for this blog that I keep almost abandoning, then trying to resurrect only to practically abandon it again. And actually they are going pretty well. I have several ideas for blogs but sometimes I don’t have time to write them. That’s the problem today. There’s been a few tiny niggles. Insignificant in the grand scheme of things but time consuming and a little bit mentally draining. And as much as I planned to write a post about Frida Kahlo and disability, another one about disabled characters in books and possible one with some writing thoughts, my…

  • 2018,  access

    The Future Starts Here

    One of the exhibitions we went round at the V&A on Monday was The Future Starts Here – 100 projects shaping the world of tomorrow. Going to that was a spur of the moment decision but definitely a good one. Some of the things featured where everyday type products – iPhone’s and smart devices (Amazon Echo/Alexa, specifically). Some were products and projects I’d heard of like driverless cars and cryogenics (referred to as “life extension”) – I couldn’t decide if the emergency kit and instructions for what to do when someone who has chosen cryogenics dies were scary creepy or interesting. Others were things I had heard of used in…

  • customer service,  disability rights,  discrimination,  powerchair,  safety,  trains

    A Trip to Paddington

    Last week I wrote about how place are Allegedly Accessible but so often aren’t. About ending up with memories of events that aren’t of the good time I had and the things we laughed about but of things being unexpectedly inaccessible and the pain and struggle that causes. I went to London on Monday. I’m worried that it’s going to be another thing that in years to come my memories are of someone lying to my face and the fear and panic that caused, rather than the fun that came before. I’m angry about what happened. I’m very sad about how my brilliant day ended and being left with those…