• 2020,  books and reading,  reviews

    What I’m Reading

    I feel like I’m suddenly reading with more regularity than I’ve been for a while. It might be the lockdown, it might just be the fact I’ve been getting the garden for at least a few minutes everyday and I usually take my book with me. Anyway I thought it would be nice to post an entry once a week or so with mini reviews of what I’ve been reading. There’s quite a lot here because it’s covering several weeks. While I Was Sleeping by Dani Atkins This sat on my shelf for years waiting for the right time to read it. I got my carer to reach it down…

  • 2020,  books and reading,  Fanfiction

    On Rereading

    As a child and teen I read and reread books time and again. I would finish a book and then immediately go back and reread my favourite bits again. On one holiday to Norway when I was 16 one of the books I took was Junk by Melvin Burgess. I only actually read it cover to cover once. But I spent so long dipping in and out of it once I finished it that I probably read the whole thing three times in those two weeks. It was the same with the other books I took on that holiday (although Junk was the one I read most). And I was…

  • 2019

    40 Before 40: Book of Mormon

    I’m not sure I wrote about this in detail here before but as I’m turning 40 at the end of next year (I’m just over 38 now) I wrote a list of 40 goals to achieve (or at least try to) before I’m 40. Several of them are travel related which was already going to be a stretch at best and most honestly unrealistic. But a girl can dream. With coronavirus those are now looking even more out of reach. However two weeks ago (7th March) my friend Carolyn and I went to Birmingham for the day to tick one of them off the list – we went to see…

  • 2019

    Damned if you do, damned if you don’t

    So. Things have got a bit scary out there with this Coronavirus/Covid-19 stuff. I’m possibly, possibly not at a higher risk because of it. It’s hard to say because I don’t have any of the health conditions like high blood pressure or diabetes that are being said to increase your risk. And I’m not elderly. But having a neurological condition does put you in at risk group and qualify you for the flu jab. And it’s known that respiratory stuff can be difficult to clear for wheelchair users as a group (although for me, personally, I am not fully reliant on my chair and I can cough). So it’s fair…

  • 2019

    The Times They Are A-Changin’

    I always thought this year would be a bit of a year of change for me. I had talked to friends and my need to do less, in order to do more but I’m not sure I really wrote about that here. But in order to do that a few things were going to need to change. And I’m less interested in some of the things I was doing and more interested in trying some new things – photography is taking more of a role in my life this year than it has before. When I was at uni (back in the days before digital cameras) I would often take…

  • 2019

    Reading Thoughts

    I feel like I’m reading more regularly at the moment than I have in a long time. I also feel like my 100 book goal for Goodreads is actually going to be met this year – and with longish books rather than novellas and serialisations (like the novel released in 4 part ones). I’m enjoying reading more too and reading different stuff. It feels like sci-fi and memoir are going to feature heavily this year but we’ll have to see. Certainly I’ve read and loved two memoirs and a scifi book since Christmas (in amongst other things). And I’m trying to be more mindful in my choices and in my…

  • 2019

    Project 365

    I have started doing Project 365 over on Instagram this year. I’ve always known it as “take a photo a day, every day. Something you’ve done or seen (or someone” but I think there are some websites that give a daily prompt etc. I’ve tried to do the project a few times in the past and failed. This is the longest in a year that I’ve got as far 16 days in I think. It’s actually not as easy to do as you might think. Personally I’ve come to the conclusion that it’s probably easier to do the project if you live with someone (probably more so if it’s a…

  • 2020

    When the bad is good

    Sometimes being disabled is really weird. Because I got told something today that I’m sure for a lot of other people would be a bad thing but for me, it’s a good thing. And also because sometimes you can’t explain what your reality is like and how it differs to the norm to the person whose asking because your reality is all you’ve ever known. And you’ve no idea what normal is. All my life I’ve been told my circulation in my legs isn’t great. That I don’t have full sensation in my feet and legs either. Which is a strange thing to experience because people ask about it and…

  • 2019

    Happy New Year

    I’m not making any new years resolutions for 2020 but looking at my draft posts list for this blog it seems “actually finish writing the blog entries I start” would be a good one. I didn’t realise quite how many unfinished drafts I had. I do have lots of plans and ideas for the new year. But in terms of goals I’m working on a “40 Before 40” list. I need a couple more goals before it’s finished but I’ve already arranged a couple of things on the list and started one. I keep changing my mind about whether I will share the completed list here but suffice to say…

  • 2019,  advocacy,  CP related,  things people say

    Picking my battles

    Unfortunately I had to gently complain about an ableist comment that someone made about/to me last week. The comment had been shouted across to someone (it was about my access needs) and that had been my biggest issue with it. It’s one thing to say something inappropriate and ableist to me, it’s a whole nother ball game to shout it for hundreds of people to potentially hear. It was in one of my favourite places and the person I complained to I’ve known for a few years through there. She commented that I’m always patient with them. And I thought “I’m not. “ I’m not. I’m picking my battles. If…