• 2019,  advocacy,  CP related,  things people say

    Picking my battles

    Unfortunately I had to gently complain about an ableist comment that someone made about/to me last week. The comment had been shouted across to someone (it was about my access needs) and that had been my biggest issue with it. It’s one thing to say something inappropriate and ableist to me, it’s a whole nother ball game to shout it for hundreds of people to potentially hear. It was in one of my favourite places and the person I complained to I’ve known for a few years through there. She commented that I’m always patient with them. And I thought “I’m not. “ I’m not. I’m picking my battles. If…

  • 2019,  Life,  NaNoWriMo

    Some News…

    …not the big deal, slightly life changing news that people usually post online after the words “Some news” but I couldn’t resist it for a title. A friend just wrote in an email to me that she hasn’t really seen any news type blogs lately. And she’s right, I haven’t been sharing any. But I’m also not sure there’s any major news to share. Having said I wanted to share more of the day to day stuff though, here’s what’s going on. Several of these points probably deserve longer entries of their own, but this will do for now. My wound on my thigh is healed. It was a much…

  • 2019

    I’ve had a little time to find the truth

    (title is a line from the song A Little Time by The Beautiful South) I’ve been thinking a lot lately about how much time simply being disabled takes. Although there had always been the odd thing that took a long time or a lot of effort to sort out because of my disability it’s only really in the last year or so (since I started wearing compression and particularly since the carers started coming twice a day) that I really understood what people meant when they said being disabled takes a lot of time. But suddenly I’m waiting twice a day for a carer to turn up. I get a…

  • 2019

    The Life and Times of Emma

    I seem to have accidentally abandoned my blog again over the last two months. I didn’t intend to do that but life seemed to get in the way rather and it stopped me doing what I planned (the changes to this I talked about last time). And I’ve been thinking for a few weeks that I should write something here but not doing it. Then yesterday my diaryland days popped into my mind. Those were my uni years and a year or two after (from the end of 2000 until early 2006 ish) I think when I use to post something most days. Often just simple and what I’d been…

  • 2019,  books and reading,  reviews

    The Cornish Cream Tea Bus by Cressida McLaughlin

    Thanks to NetGalley I received a free copy of The Cornish Cream Tea Bus by Cressida McLaughlin in exchange for an honest review. The Cornish Cream Tea Bus was originally released as four separate parts in ebook but it is being published as a complete novel (in paperback and ebook) today. Here is the blurb:Baking fanatic, Charlie Quilter, is surprised when her late uncle bequeaths his vintage bus to her in his will. Keen to give the bus a new lease of life, Charlie thinks it will be the perfect mobile café for afternoon tea, and when her friend, Juliette, suggests Charlie comes to stay with her in the picturesque…

  • 2019,  books and reading,  reviews

    Living My Best Li(f)e by Claire Frost

    I received a free copy of Living My Best Li(f)e by Claire Frost in exchange for this review. It was published in ebook earlier this week and is out in paperback in September. Here is the synopsis: Recently dumped by her boyfriend of ten years, Bell is struggling to move on with her life – and surrender the fleecy pyjamas she’s been living in since January. Haunted by #blessed on social media, she can’t help but compare her life to those she follows online, wondering where she is going wrong . . . In the world of social media, Millie is the successful online influencer @mi_bestlife. But in real life she’s just a regular…

  • 2019

    A Day at Wimbledon

    Last Tuesday my friend Carrie and I went to Wimbledon. She goes almost every year and queues for tickets but it was the first time I had been. I wasn’t sure about queuing so I entered the ballot and I heard about two weeks before that some tickets had been returned and redrawn and I had them. The tickets were for the Ladies Quarter Finals and were for Centre Court. To be completely honest I’m not really interested in tennis. I am, however, interested in disability sport and really had wanted to go to Wimbledon to see the wheelchair tournament. But when you enter the ballot you can’t specify what…

  • 2019,  attitudes,  CP related,  lymphoedema,  things people say

    Realistic

    I’ve been thinking a lot over the last week or so about how having a chronic condition or disability shapes your thinking and how this can be taken by those who don’t have the same experience (this is a topic I thought I’d written about follow a similar incident back in 2017 but I can’t find a blog. Which suggests it may have been a social media rant and lost to the abyss). When I went to lymphoedema clinic recently my legs were still the same size as when I was last seen in clinic in March. And the specialist nurse I see told me that she thinks it’s likely…

  • 2019,  books and reading,  reviews

    Critical by Dr Matt Morgan

    I’ve been feeling the need to expand my reading horizons lately so I read Critical: Science and stories from the brink of human life by Dr Matt Morgan. I received a review copy via NetGalley. Here is the synopsis: Being critically ill means one or more of your vital organs have failed – this could be your lungs, your heart, your kidneys, gut or even your brain. Starting with the first recognised case in which a little girl was saved by intensive care in 1952 in Copenhagen, Matt writes brilliantly about the fascinating history, practices and technology in this newest of all the major medical specialties. Matt guides us around…

  • 2019,  books and reading,  reviews

    My Lemon Grove Summer by Jo Thomas

    My Lemon Grove Summer by Jo Thomas is already out in ebook but is being published in paperback and audio on 11th July 2019. I received a free copy via the publisher/NetGalley to review. When life hands you lemons … is it ever too late for a second chance? Zelda’s impulsive nature has got her precisely nowhere up until now. A fresh start in a beautiful hilltop town in Sicily looking for new residents, together with her best friend Lennie, could be just what she needs. And who better to settle down with than the person who knows her best? But the sun-filled skies and sparkling seas can’t hide the shadow…