• 2014,  access,  Uncategorized

    I can’t be bothered

    This is not the blog post that the two people I went to London with yesterday are expecting to read. Because that’s about so much access fail and ridiculous stuff. And it’s frustrating as hell and it had a huge impact on our day and didn’t need to happen.  But at the same time as much as those who I was with were shocked and appalled, I wasn’t.  I wasn’t surprised because I’ve been there, done that in so many places. And as soon as I saw the photos of the venue on their website I realised that it would have been built at a time when the idea of…

  • 2014,  access,  disability,  Uncategorized

    When Disabilities Collide

    I recently met a disabled person I hadn’t met before. We were both at the same event. We spoke but only in the context of the group, about stuff to do with the event which had nothing to do with disability..   You know how they talk about gaydar? Well, if there’s such a thing as CP-dar this person really set mine off.  I don’t know that’s what their disability is but I’d put good money on their being a non-wheelchair using CP-er (or at least they weren’t using a chair at that point) Today an email went round.  There’s this training workshop that sometimes happens.  The nearest place is London…

  • 2013,  access,  attitudes,  CP related,  current affairs,  disability,  Disability Glossary,  medical model,  personal,  perspective,  social model,  Uncategorized

    Quick and Dirty #Disability Theory

    I posted on Facebook earlier this afternoon that I’d given someone a spur of the moment elevator pitch length explanation of the social and medical models of disability and they’d understood it without my needing to clarify any further. This was, and is, a win. Especially because I really believe they actually understood it and didn’t just say so to shut me up. Then one of my friends posted that she doesn’t speak disability. And apparently I have blog entries on here dating back to 2006 but have never defined the models. Despite having both a social and a medical model category on here. So here goes. This will be…

  • 2013,  acceptance,  access,  awareness,  blogging,  campaigns,  courage,  CP related,  current affairs,  difficulties,  disability,  disability normal,  disability rights,  freedom,  frustrations,  hopes and dreams,  I want to change the world,  identity,  Uncategorized

    In which I ramble and am grouchy when it comes to “awareness”

    (I was going to title this “why I’m not blogging about CP awareness day” and then I realised that by writing this I pretty much was blogging about CP awareness day just not in the way most people are and that would be a pointless title) So. Word on the street the internet is that 25th March is CP awareness day. i.e. that tomorrow is CP awareness day. Except,  to me, it’s not, really.  It’s national CP awareness day in the US.  I’m not in the US and I sometimes feel like the entirety of the fucking internet resolves around people from the US  and that those of us not…

  • 2013,  acceptance,  access,  argh,  attitudes,  CP related,  difficulties,  disability,  drama,  frustrations,  powerchair,  Quickie Salsa,  ranting,  sarcasm,  so you had a bad day,  things people say,  Uncategorized,  wheelchair

    A word of advice

    For those who don’t know me. Don’t try offering me unsolicited advice or helpful suggestions about my wheelchair and then go off on me when I tell you’re wrong and calmly explain the reasons why I do what I do and/or can’t do anything else. Telling me where you saw me cross the road is dangerous is one thing. Repeatedly screeching at me that I’m going to get myself killed when I tell you its the only place I can is upsetting. And talking to me like I’m stupid and telling me that I do have a choice and could cross the road elsewhere is another that shouldn’t happen. Suggesting…

  • 2012,  acceptance,  access,  discrimination,  freedom,  friends,  frustrations,  I want to change the world,  influences,  Life,  mental health,  nano group,  personal,  powerchair,  Quickie Salsa,  quotes,  Uncategorized

    Rekindled

    I’m reading a good book at the moment.  I hope to finish it tonight and I’ll review it for my blog in the next few days most likely.  When I flicked to the back to see how many pages it has I noticed that on the page after the end of the story there is the following quote. “Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light.” Albert Schweitzer I’ve had a tough year I think it’s fair to say.  And things are greatly improving and I feel like I’m not in…

  • 2012,  access,  awareness,  Uncategorized

    Tools, Tenants and Tang, TPAS 2012

    The general opinion yesterday was that I “look really tired”. First I met up with a friend and they said it, then the other person we were with came along and said it a couple of times yesterday. And someone at the event we were at asked me if I’d enjoyed it saying I looked tired. I was chatting to one of the journey care staff at Oxford who knows me and she went “oh Emma you look really tired.” Finally when I spoke to mum when I got home she asked if I was tired. I’m still pretty tired today but less so. Yesterday everyone got simply told “yeah…

  • 2012,  acceptance,  access,  advocacy,  Attempts at World Domination,  Cheerful Stuff,  depression,  disability,  discrimination,  so you had a bad day,  songs of my life,  Uncategorized

    Loser Like Me

    This entry may come across as cagy. It is deliberately so. I’ve been dealing with a completely ridiculous access fail for the past 12 weeks. Basically it’s done a complete number on my self confidence and depression, serving as a weekly reminder every Thursday that I’m different and that I’m not worthy of what everyone else has. Twelve weeks of being told they’d made a decision to do X about including me and then suddenly two weeks later we’ll do Y or oh no Z instead. It is dealt with. I’m not exactly enamoured with the reasonable adjustment type solution they’ve come with. Full the same as everyone else access…

  • 100 days of writing,  access,  falls,  Sertraline,  trains,  Uncategorized

    >Declaration

    >My mood is somewhat better today; I actually feel like I’ve achieved some stuff which helps. I have a positive looking outcome to an access issue I flagged on the horizon and as that was one of the things that made things tough the other week it’s a help to move things forward. My bruises from my fall are completely gone and a plan is in place to hopefully lessen the impact of future falls (so long as I can avoid falling in the next month or so) I REALLY must blog about that. The third crap thing I think will never be resolved but I’ve almost finished doing everything…