• 2013,  access,  attitudes,  CP related,  current affairs,  disability,  Disability Glossary,  medical model,  personal,  perspective,  social model,  Uncategorized

    Quick and Dirty #Disability Theory

    I posted on Facebook earlier this afternoon that I’d given someone a spur of the moment elevator pitch length explanation of the social and medical models of disability and they’d understood it without my needing to clarify any further. This was, and is, a win. Especially because I really believe they actually understood it and didn’t just say so to shut me up. Then one of my friends posted that she doesn’t speak disability. And apparently I have blog entries on here dating back to 2006 but have never defined the models. Despite having both a social and a medical model category on here. So here goes. This will be…

  • 2013,  acceptance,  access,  awareness,  blogging,  campaigns,  courage,  CP related,  current affairs,  difficulties,  disability,  disability normal,  disability rights,  freedom,  frustrations,  hopes and dreams,  I want to change the world,  identity,  Uncategorized

    In which I ramble and am grouchy when it comes to “awareness”

    (I was going to title this “why I’m not blogging about CP awareness day” and then I realised that by writing this I pretty much was blogging about CP awareness day just not in the way most people are and that would be a pointless title) So. Word on the street the internet is that 25th March is CP awareness day. i.e. that tomorrow is CP awareness day. Except,  to me, it’s not, really.  It’s national CP awareness day in the US.  I’m not in the US and I sometimes feel like the entirety of the fucking internet resolves around people from the US  and that those of us not…

  • 2013,  acceptance,  access,  argh,  attitudes,  CP related,  difficulties,  disability,  drama,  frustrations,  powerchair,  Quickie Salsa,  ranting,  sarcasm,  so you had a bad day,  things people say,  Uncategorized,  wheelchair

    A word of advice

    For those who don’t know me. Don’t try offering me unsolicited advice or helpful suggestions about my wheelchair and then go off on me when I tell you’re wrong and calmly explain the reasons why I do what I do and/or can’t do anything else. Telling me where you saw me cross the road is dangerous is one thing. Repeatedly screeching at me that I’m going to get myself killed when I tell you its the only place I can is upsetting. And talking to me like I’m stupid and telling me that I do have a choice and could cross the road elsewhere is another that shouldn’t happen. Suggesting…

  • 2012,  acceptance,  access,  discrimination,  freedom,  friends,  frustrations,  I want to change the world,  influences,  Life,  mental health,  nano group,  personal,  powerchair,  Quickie Salsa,  quotes,  Uncategorized

    Rekindled

    I’m reading a good book at the moment.  I hope to finish it tonight and I’ll review it for my blog in the next few days most likely.  When I flicked to the back to see how many pages it has I noticed that on the page after the end of the story there is the following quote. “Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light.” Albert Schweitzer I’ve had a tough year I think it’s fair to say.  And things are greatly improving and I feel like I’m not in…

  • 2012,  access,  awareness,  Uncategorized

    Tools, Tenants and Tang, TPAS 2012

    The general opinion yesterday was that I “look really tired”. First I met up with a friend and they said it, then the other person we were with came along and said it a couple of times yesterday. And someone at the event we were at asked me if I’d enjoyed it saying I looked tired. I was chatting to one of the journey care staff at Oxford who knows me and she went “oh Emma you look really tired.” Finally when I spoke to mum when I got home she asked if I was tired. I’m still pretty tired today but less so. Yesterday everyone got simply told “yeah…

  • 2012,  acceptance,  access,  advocacy,  Attempts at World Domination,  Cheerful Stuff,  depression,  disability,  discrimination,  so you had a bad day,  songs of my life,  Uncategorized

    Loser Like Me

    This entry may come across as cagy. It is deliberately so. I’ve been dealing with a completely ridiculous access fail for the past 12 weeks. Basically it’s done a complete number on my self confidence and depression, serving as a weekly reminder every Thursday that I’m different and that I’m not worthy of what everyone else has. Twelve weeks of being told they’d made a decision to do X about including me and then suddenly two weeks later we’ll do Y or oh no Z instead. It is dealt with. I’m not exactly enamoured with the reasonable adjustment type solution they’ve come with. Full the same as everyone else access…

  • 100 days of writing,  access,  falls,  Sertraline,  trains,  Uncategorized

    >Declaration

    >My mood is somewhat better today; I actually feel like I’ve achieved some stuff which helps. I have a positive looking outcome to an access issue I flagged on the horizon and as that was one of the things that made things tough the other week it’s a help to move things forward. My bruises from my fall are completely gone and a plan is in place to hopefully lessen the impact of future falls (so long as I can avoid falling in the next month or so) I REALLY must blog about that. The third crap thing I think will never be resolved but I’ve almost finished doing everything…

  • 100 days of writing,  2012,  access,  disability,  Poetry,  Uncategorized

    >Snotty Letter #disability #100daysofwriting

    >It’s timeFor aSnotty Letter It’s timeTo showWhy I’veGot my Rep People sayI’ve aBAD ATTITUDE Or thatThey neverMet aMore ungratefulLittle Madam The fact Is I’ve Got rights Unthinking changesAllegedly toHelp staffRuined myDay out So it’sSnotty LetterTime again The staffWere greatThey hateThe changeAs well I had To laughAt that I saidThis thingIs shitThey saidWe know!!! Impossible problemsNo solutionNo excuses I’ll bePolite yetVery firmInsisted onAdvertised access Bite my Tongue andThink first It wasVery disappointingNeeded betterPlanning andUser consultation Snotty annoyedAnd notSnotty screaming What theFuck wereYou thinking?Fucking ridiculousAnd unnecessary My friendsHelped rescueMy dayPark picnicsCafe drinks But thatWon’t make Snotty Letter If askingFor myRights meansPeople don’tLike me That’s fineI’ve neverBeen afraid Secretly I Hate itIf IWeren’t…

  • 2012,  access,  awareness,  disability,  sarcasm,  Uncategorized

    >What Access Is – And Isn’t #spartacusreport #disability #access

    >A few situation I’ve encountered when it comes to “wheelchair access” and what I’d like to have said in return. If you’ve got toilets on the ground floor but not a disabled toilet then don’t tell me you’ve got wheelchair access. If you had wheelchair access you’d have a disabled loo. A toilet which has no grab rails and which you can get a wheelchair in but not if you want to shut the door is not a disabled loo. So kindly take a moment to stop a think and stop claiming you’ve got one. Don’t tell me you’re really used to dealing with wheelchair users and then tell me…

  • access,  BADD,  disability,  disability normal,  disablism,  Uncategorized

    >The Fight Never Ends – #BADD2011

    >Today is Blogging Against Disablism Day (BADD).  BADD started in 2006 I believe making this the 6th BADD.  When it was first set up I was a campaigner and an advocate but not as much as I am now.  I was really excited by the prospect of this day when we could all come together and work towards a common goal – the fight against disablism. 6 years later? Not so much. Days like BADD and other events like One Month Before Heartbreak are wonderful at raising awareness.  And they take a lot of work to organise so I have big respect for The Goldfish from that point of view…