• 2020,  40 before 40,  Action 4,  manual wheelchair,  wheelchair

    40 Before 40 – Use My Manual Everyday for 40 Days

    At the end of 2021 I turn 40. So at the end of last year I wrote a 40 before 40 list (it’s not on this blog before anyone goes looking). I always thought that with the number of trips away it would involve I wouldn’t manage all 40 tasks. But that it was good to have aims and I could probably manage a fair number. With the current restrictions I definitely won’t manage most of them because even the one day trips are out of reach. I might write a new “pandemic edition” 40 before 40 list to start after I turn 39, I need to have a think…

  • 2019,  Action 4,  disability normal,  Quickie Jive,  things people say

    In which able-bodied people are weird but if I point it out I’m the weird one.

    I was in my manual chair on Thursday while the powerchair was with the tech. My morning carer said “Wow you must be strong doing that.” And I was pleased because I feel like I’ve lost so much strength and can do so little in my manual compared to years ago. But I was managing well and I liked the compliment. An hour later the tech came and took my powerchair. Once he left the guy who was here working on my bathroom asked if there was something wrong with it. I explained that it had gone for some routine stuff. Then he said “it must be hard pushing that…

  • 2017,  Action 4

    Ticking Along

    Things are ticking along slowly. For so long I struggled to read but that suddenly kicked in and now I’ve read more both in actual books and in pages read than I did in the whole of last year. Then I was struggling to crochet or knit. Until I spent an afternoon at my parent’s house a couple of weeks ago while my flat was being painted. Mum made me stop talking about the project I wanted to do and actually make a start on it. Then the next day she asked if I’d done more and when I said no told me to do some and then send her…

  • 2017,  Action 4

    Random Bullet Points of Life

    Random bullet points of life are for the little things worth recording but probably not in need of an entry to themselves. I actually think several of these should have an entry to themselves but in the interest of catching up a bit and not forgetting things this will do. +It’s so long since I wrote a blog update! Lots of thoughts about blogging lately and probably some stuff to write about it but not today. + My new manual wheelchair has been a bit of a disaster. I couldn’t use it at all for the first two weeks I had it as it wasn’t safe. It’s still not as…

  • 2017,  Action 4

    A wheelchair related thought

    I’m very excited about my new wheelchair coming but talking to other people about what I’m getting and why and how wheelchair services works has been interesting.   There’s been a definite difference between how other disabled people have taken the news of what chair I’m getting (generally very positive) and how able-bodied people have taken the details of what chair I’m getting (quite negative but in a way that I suspect they think is supportive). At times this has been frustrating and even difficult. I won’t go into any more details because this isn’t meant to be a criticism of anyone or anything.   It’s been eye opening and…

  • 2017,  Action 4,  action3,  hospital,  jay2,  jay3,  lymphoedema,  spasticity,  wheelchair

    A new chair

    I’m getting a new manual wheelchair provided by the NHS. I had an assessment with a rehab engineer and an OT today.  There was some discussion and after a few minutes I said “So I am getting a new chair then?” And the engineer who is someone I’ve seen in clinic before said “Emma, the only reason we’re letting you go home in that chair is because we don’t have anything here to lend you and we can’t send you home without a chair. If we had something else you’d be in it.” They also got a new type of cushion out for me to try and the OT declared she…