• 2017,  Action 4

    Ticking Along

    Things are ticking along slowly. For so long I struggled to read but that suddenly kicked in and now I’ve read more both in actual books and in pages read than I did in the whole of last year. Then I was struggling to crochet or knit. Until I spent an afternoon at my parent’s house a couple of weeks ago while my flat was being painted. Mum made me stop talking about the project I wanted to do and actually make a start on it. Then the next day she asked if I’d done more and when I said no told me to do some and then send her…

  • 2017,  Action 4

    Random Bullet Points of Life

    Random bullet points of life are for the little things worth recording but probably not in need of an entry to themselves. I actually think several of these should have an entry to themselves but in the interest of catching up a bit and not forgetting things this will do. +It’s so long since I wrote a blog update! Lots of thoughts about blogging lately and probably some stuff to write about it but not today. + My new manual wheelchair has been a bit of a disaster. I couldn’t use it at all for the first two weeks I had it as it wasn’t safe. It’s still not as…

  • 2017,  Action 4

    A wheelchair related thought

    I’m very excited about my new wheelchair coming but talking to other people about what I’m getting and why and how wheelchair services works has been interesting.   There’s been a definite difference between how other disabled people have taken the news of what chair I’m getting (generally very positive) and how able-bodied people have taken the details of what chair I’m getting (quite negative but in a way that I suspect they think is supportive). At times this has been frustrating and even difficult. I won’t go into any more details because this isn’t meant to be a criticism of anyone or anything.   It’s been eye opening and…

  • 2017,  Action 4,  action3,  hospital,  jay2,  jay3,  lymphoedema,  spasticity,  wheelchair

    A new chair

    I’m getting a new manual wheelchair provided by the NHS. I had an assessment with a rehab engineer and an OT today.  There was some discussion and after a few minutes I said “So I am getting a new chair then?” And the engineer who is someone I’ve seen in clinic before said “Emma, the only reason we’re letting you go home in that chair is because we don’t have anything here to lend you and we can’t send you home without a chair. If we had something else you’d be in it.” They also got a new type of cushion out for me to try and the OT declared she…