• 2016,  acceptance,  argh,  attitudes,  awareness,  CP related,  frustrations,  things people say,  Uncategorized,  wheelchair

    “She’ll run you over”

    There are a lot of allegedly jokey comments that people make about or to me as a wheelchair user.  Usually well meaning and perhaps an attempt at being funny. They aren’t funny.  Most of them never were but one or two may have been if not for the fact that I hear them all the time.  I’m talking about the “women drivers” comments. The people who say “do you have a license for that thing?” Those who randomly see me and go “no speeding!” And many others. I often roll my eyes at that sort of thing and let it go because it’s usually strangers and theres no point getting…

  • 2015,  A to Z blogging challenge,  argh,  Uncategorized

    Y is for…

    Y is for “you have got to be kidding me” Today has been a day filled with aggravations and annoyances and has left me feeling pretty battered. It’s all little stuff and bar two things it’s petty stuff – someone was thanking the key people involved in doing something and forgot that I’d been one of them. I popped quickly into Waterstones to look for a birthday present as I had a spare 15 mins and the layout of the store meant I couldn’t get into the section I wanted (too closely packed).  The trouble is it’s all today and no matter how petty something is and how unimportant in…

  • 2014,  acceptance,  access,  advocacy,  argh,  Uncategorized

    Fed Up

    I’m a bit fed up of not getting actual answers to my questions but just a stream of talking that dances around the question of not being treated with respect of having to point out what should be really obvious of having people blame things on my disability which in reality have nothing to do with my disability. Only thinking or saying “well she is disabled” makes it easier for them than having to accept and admit  that they fucked up. of the fear that this time when they’re predicting snow will be the time when it actually comes. of the words “but it’s your rent money that pays for…

  • 2013,  acceptance,  access,  argh,  attitudes,  CP related,  difficulties,  disability,  drama,  frustrations,  powerchair,  Quickie Salsa,  ranting,  sarcasm,  so you had a bad day,  things people say,  Uncategorized,  wheelchair

    A word of advice

    For those who don’t know me. Don’t try offering me unsolicited advice or helpful suggestions about my wheelchair and then go off on me when I tell you’re wrong and calmly explain the reasons why I do what I do and/or can’t do anything else. Telling me where you saw me cross the road is dangerous is one thing. Repeatedly screeching at me that I’m going to get myself killed when I tell you its the only place I can is upsetting. And talking to me like I’m stupid and telling me that I do have a choice and could cross the road elsewhere is another that shouldn’t happen. Suggesting…

  • 2012,  argh,  attitudes,  disability,  Uncategorized

    “really nice”

    There’s an acquaintance of mine who is said to be “really nice”.  We really don’t know each other well and I can’t say I have much desire to as we very blatantly have little in common. A little less than a year ago they shared their view that my disability is tragic amongst other well meaning yet offensive comments. A few days ago in another conversation they asked me yet more rude questions and were in my opinion very inappropriate in things they said to another disabled person. Here’s the thing: if they had made similar comments with a racist or homophobic slant that “really nice” label would soon disappear.…

  • argh,  care,  disability,  drama,  Uncategorized

    >Poor little crippled girl

    >I had a new carer tonight.  For so long now I’ve just had the same person that having someone completely new (and having someone who rarely does my care as I did last week) was strange.  Time was having new carers was my normal and I had my “new person” speech down to a t. Now?  Not fun. Didn’t help that several of her comments had me convinced that she saw me as a “poor little crippled girl.”  In fact at one point I disagreed with her over something and said “you’re looking at that from the point of view of ‘she’s a poor disabled girl'” which she denied.  Points…

  • argh,  awareness,  disability,  Uncategorized

    >Accessibility, Bondage, Awareness.

    >Sometimes I swear the world is trying to make me crazy (or maybe thats crazier?). And I am so SICK of all this stupid stuff thats been going on lately.  On my 101 in 1001 list (linked over in the side bar) I had write three letters of complaints as one (believe it or not I used not to be such a good advocate) and three praising good service.  I’ve sent more than three complaint letters since I set that goal in 2006.  But as for letters praising good service?  Nary one. Also, it please me most of the time to be an advocate and stand up for myself and…

  • argh,  awareness,  disability,  Uncategorized

    >”I touched the wheelchair!”

    >Fact: I don’t like people to touch my wheelchair without my permission. And earlier today at swimming one of the idiotic people there was doing stuff she really shouldn’t do with someone elses wheelchair – sitting in it*. As soon as I saw it, I was mad and I was ranting to everyone “that better not be my wheelchair, all hells gonna break lose if that’s my wheelchair.” Thankfully we soon realised whose chair it was – not mine. The person whose chair it was wasn’t happy but wouldn’t go and say anything. The same person also moved my chair later on because she “thought it would be easier for…

  • argh,  CP related,  Uncategorized

    >Fallin’

    >I had a pretty spectacular fall about an hour ago. Definitely the only full on fall I’ve had this year I’ve lost my balance transfering and ended up not quite sat properly a few times and I’ve also ended up standing then losing my balance and ending up back in my chair without meaning too a few times. Those count but don’t count because I have caught myself on furniture or door frames or whatever. Today I well and truly lost my balance and went. I’m not really hurt but I’m sore and I’m pretty sure I’m gonna be black. It’s probably not the worst fall I’ve ever had; I’ve…

  • argh,  trains,  Uncategorized

    >The mind boggles, it really does

    >I went into Reading today to do some shopping.  I was stressed out and depressed and by the end of yesterday knew that I had to escape today for the good of my mental health.  So I went to Reading. It was your typical Saturday in a shopping town – busy and hectic and crawling with people and noise.  I saw lots of other wheelchair users.  Probably there weren’t any more of  “my people” in Reading today than there normally is but I was just more aware of them. Because I had an encounter with someone who seemed to think there could only ever be one wheelchair user  *sigh* .…