• 2016,  action3,  Attempts at World Domination,  CP related,  falls,  Uncategorized,  you know you've got CP,  you know...

    You Know You’ve Got CP When…

    …you don’t know whether to post an “argh terrible disaster it’s all going wrong crisis.” status update or a “oh wow this just happened I rock” status update – and the two things relate to different parts of the same incident. So it was something like 11:30pm last night. I’m on the computer and beginning to think about bed but I’m waiting for something on here to finish. I decided to leave it on and go to the loo, start getting sorted.  I’m in the hall, almost to the bathroom when something happened to my manual chair and not only wasn’t I moving but it had dropped in one corner…

  • 2013,  Attempts at World Domination,  creative,  ranting,  thinking,  Uncategorized,  writing

    On being a writer

    I know you want to sing. See. I love to sing. Nothing makes me happier.I either wanted to be a singer or the head of the Ice Capades. Hey. Do you know who the Ice Capades are? Don’t roll your eyes. They were very cool. I went to my mother who gave me this book…called Letters To A Young Poet. Rainer Maria Rilke. He’s a fabulous writer. A fellow used to write to him and say: “I want to be a writer. Please read my stuff.” And Rilke says to this guy: “Don’t ask me about being a writer. lf when you wake up in the morning you can think…

  • 2013,  acceptance,  achievements,  Attempts at World Domination,  disability,  friends,  Uncategorized

    The National Diversity Awards

    So if I were to mention the name Hannah Ensor or Stickman Communications I suspect a lot of people who read this would know who I meant. Hannah and I have known each other since our school days. Back then I was rocking the wheelie thing but not quite as well as I do now. I was walking a lot of the time which took a lot of energy and I’d fall a lot. I didn’t hurt myself often having learnt mad falling skills. And the level of acceptance i have now (possibly better referred to as my “sod it quota”) was an unthought of dream, Hannah was this accident…

  • 2012,  acceptance,  advocacy,  Attempts at World Domination,  current affairs,  disability,  Uncategorized

    International Day of Persons with Disabilities

    Today is the UNs annual International Day of Persons with Disabilities.  That’s a very medical model term (although I suspect it was changed because it’s “people first language”) and I’m much more of a social model girl so I shall henceforth refer to it as a day of Disabled People. The UN statistics state that 1 billion people worldwide have a disability or approximately 15% of the population.  I don’t know how they’ve classified disability but I have to say whilst the 1 billion figure feels right to me based on previous figures I’ve heard, I was a little surprised it was so low as 15%. I realise this makes…

  • 2012,  achievements,  Attempts at World Domination,  CP related,  disability,  dose of happy,  standing frame,  Uncategorized

    Gold!

    “And on this banner day during the Oxfordshire Crip-Olympics 2012 the Gold medal in the standing frame event is awarded to Emma Crees. In a breathtaking performance she wows the crowds and sets a personal best of 40 minutes standing in the frame. A well deserved gold for the talented CPer who just a year ago was a novice in the standing frame with no expectation of ever achieving greatness. The grin on her face when she realised just what she’d managed has to be seen to be believed. A gold medal day to never be forgotten.” And the crowd goes wild…. ♥ Emma

  • 2012,  acceptance,  advocacy,  Attempts at World Domination,  CP related,  disability,  disability normal,  disablism,  discrimination,  influences,  normal,  perspective,  Uncategorized

    Happy Tears

    I was asked to speak at an equality event today. About the access group (AFA) I’m chair of and a bit about my own story as a disabled person. I think it well. I didn’t write a speech, I had a few ideas but wanted to just talk off the cuff. It helped that this is I think the third time I’ve explained to people what and why AFA is (although previously I’ve only done so in informal settings). The very first idea I’d thought of when thinking it over I forgot to use. I talked about how I don’t suffer from CP because it’s all I’ve ever known. How…

  • 2012,  acceptance,  access,  advocacy,  Attempts at World Domination,  Cheerful Stuff,  depression,  disability,  discrimination,  so you had a bad day,  songs of my life,  Uncategorized

    Loser Like Me

    This entry may come across as cagy. It is deliberately so. I’ve been dealing with a completely ridiculous access fail for the past 12 weeks. Basically it’s done a complete number on my self confidence and depression, serving as a weekly reminder every Thursday that I’m different and that I’m not worthy of what everyone else has. Twelve weeks of being told they’d made a decision to do X about including me and then suddenly two weeks later we’ll do Y or oh no Z instead. It is dealt with. I’m not exactly enamoured with the reasonable adjustment type solution they’ve come with. Full the same as everyone else access…

  • Attempts at World Domination,  sailing,  Uncategorized

    I’m in the Oxford Mail!

    Ever since I joined Oxford Sailability in 2006 I heard about the brilliant accessible pontoon they planned to build. Just as soon as the raised the money. I helped with several fundraising events when I could. And on Tuesday after raising £500,000 over ten years thanks to dedicated volunteers who never gave up and months of building work the finished product was officially opened. I was interviewed by the Oxford Mail about what it means to me. Pontoon makes it plain sailing I’m pleased with the article but wish I’d had more notice than having a mobile thrust at me with a reporter on the other end. I may have…

  • achievements,  Attempts at World Domination,  sailing,  Uncategorized

    >Burghfield Regatta 2011

    >Last weekend was the Burghfield Sailing Club’s Challenger Open Meeting.  And I took part. I sail in the Bronze class which is for people who need someone with them on the boat.  I do sail by myself on a Tuesday evening at sailability but the regattas can get a little scary with how close people get to each other and all jockeying for the best start etc.  So I don’t feel quite ready to go by myself in a competition. As I think I’ve blogged before, I’ve previously found the competitions great fun but difficult because although they are for disabled people they’re not a great match for my own…