• 2013,  acceptance,  access,  argh,  attitudes,  CP related,  difficulties,  disability,  drama,  frustrations,  powerchair,  Quickie Salsa,  ranting,  sarcasm,  so you had a bad day,  things people say,  Uncategorized,  wheelchair

    A word of advice

    For those who don’t know me. Don’t try offering me unsolicited advice or helpful suggestions about my wheelchair and then go off on me when I tell you’re wrong and calmly explain the reasons why I do what I do and/or can’t do anything else. Telling me where you saw me cross the road is dangerous is one thing. Repeatedly screeching at me that I’m going to get myself killed when I tell you its the only place I can is upsetting. And talking to me like I’m stupid and telling me that I do have a choice and could cross the road elsewhere is another that shouldn’t happen. Suggesting…

  • 2013,  attitudes,  blogging,  campaigns,  CP related,  current affairs,  disability,  disability blogs,  disablism,  freedom,  guest blog,  interwebs,  language,  Paralympics,  political,  press,  ranting,  sailing,  Uncategorized

    Disability in the media

    I’m paying a second visit over at Bea Magazine this month.  I wrote about the disability issues which were raised by the news that paralympian Oscar Pistorius has been arrested on suspicion of murdering his girlfriend Reeva Steenkamp. You can read it here: Disability and the Reeva Steenkamp Murder The coverage of disability in the media has always been problematic but I’m really hoping this might be the beginning of it changing. I suspect that it’s more likely that it will change the way violence against women is covered by the media than disability.  Still I hope. Last year I was asked to speak to the local paper about my…

  • 2013,  advocacy,  attitudes,  awareness,  campaigns,  current affairs,  disability,  disablism,  good/bad,  Uncategorized

    Tell A Feminist Thank You and Disability Mentors

    Since this afternoon I keep seeing tweets pop up with #tellafeministthankyou (hashtag “tell a feminist thank you” for those who find those hard to read). I got to thinking.  It would be good to have a similar thing for people who campaign on disability issues.  But what would you call it? Feminism is generally considered to be a good thing and to have made amazing strides forward in rights for women both in this country and others.  The suffragette movement and the fact women in the UK can vote being just one example.  It’s the one that comes to mind because I just read The Children’s Book by AS Byatt…

  • acceptance,  advocacy,  attitudes,  awareness,  courage,  disability,  Disability Glossary,  honesty,  I want to change the world,  perceptions,  perspective,  tv,  Uncategorized

    Inspiration Porn

    Tonight is the yearly Children in Need appeal here in the UK. BBC One is taken over by a telethon for about seven hours. The idea is to raise money to help disadvantaged children. So you see video clips of children from other countries walking miles for water, young carers helping their mum or dad and disabled children doing things too. And it’s a given that those children will either look sad or have their story told using emotive language such as “suffers from…” Or “whilst other children are playing little Johnny must…” Interspersed with those clips are famous people doing silly stuff, frequent updates on how much has been…

  • 2012,  acceptance,  attitudes,  crafts,  customer service,  disability,  Uncategorized

    The need to be grateful

    I went shopping in a brand new craft shop last week.  It had one of those lifts where just the platform moves and you have to hold the button down the whole time.  It was also one where you have to open the door yourself. And on the ground floor it had a ramp up to it.  I got another customer to open the door for me so I could go in it and then backed my chair into the door so I could open it at the top And when I came down I grabbed a member of staff and asked for help.  She offered to come down in…

  • 2012,  argh,  attitudes,  disability,  Uncategorized

    “really nice”

    There’s an acquaintance of mine who is said to be “really nice”.  We really don’t know each other well and I can’t say I have much desire to as we very blatantly have little in common. A little less than a year ago they shared their view that my disability is tragic amongst other well meaning yet offensive comments. A few days ago in another conversation they asked me yet more rude questions and were in my opinion very inappropriate in things they said to another disabled person. Here’s the thing: if they had made similar comments with a racist or homophobic slant that “really nice” label would soon disappear.…

  • 2012,  attitudes,  awareness,  disability,  Uncategorized

    >Positive About #Disability #attitudes #language

    >I think most people know that I generally have a very positive attitude to disability, especially my own disability. Obviously I have my down days and I do have depression. But it’s really rare that it’s related to being a crip. If disability does come into it it’s often due to the attitudes of others or access issues. Being positive about having CP and needing to use a wheelchair is something I’ve always been. it’s something I’ve grown into an has evolved throughout my life. I’ve noticed that a lot of disabled people can’t always relate to that and people have even accused me of lying or deluding myself when…

  • attitudes,  books and reading,  disability,  disability blogs,  reviews,  Uncategorized

    >What About The Boy by Stephen Gallup

    >A few months ago I had an e-mail from Stephen asking if I wanted to review his soon to be self published book (it’s out in September).  You can read more about the book on Stephen’s blog  or find it on Amazon. Here’s the text on the back: Nobody knew what hurt little Joseph, and no one was offering a way to help him. He cried most of the time, and thrashed about as if in pain. He wasn’t learning how to crawl, talk, or interact normally. Doctors told his parents to seek counseling, because nothing could help their son, and the quality of their own lives was at risk.…

  • attitudes,  disability,  language,  the r word,  Uncategorized,  video

    >Not Acceptable

    >Regular readers of my blog will know that the R word is one that I hate.  I’ve written about it many times before and unfortunately will more than likely have cause to write about it many more times in the future.  An argument I’ve made to many people is “if you wouldn’t use … (insert derogatory term about another minority group) then don’t use the R word”.  It’s hate speech, it’s unacceptable and it hurts.  It actually, physically, hurts. Unfortunately the R word is alive and well at present as demonstrated by the fact that Caitlin Moran used it in her recently published book which is being pimped left right…

  • attitudes,  trains,  Uncategorized,  wheelchair

    >A Refreshing Experience.

    >I’m having a couple of weeks of from some of my regular responsibilities and activities.  A bit of a staycation if you will.  I’ve got several very fun things planned including some very long days out.  I’m also doing some bits I’ve been meaning to do for a long time (like today I did some baking, and I synced my iPod, removing some music and putting a load more on) and having a bit of a chillax.  I spent a while this morning working out some of the train journeys I’ll be making and then rang through to book the assisted travel.  I need to work out two more at least…