• 2012,  acceptance,  advocacy,  awareness,  CP related,  current affairs,  language,  Uncategorized

    Speaking Out

    A few days ago it came out that the little girl who went missing in Machynlleth in Wales last week, April Jones has cerebral palsy.  It kinda made me stop and pause a moment hearing that she’s got CP just like me more than anything else I’d heard about the case. The news coverage all seemed to use the term suffer “Missing Girl April Suffers from CP” screamed the headlines. I posted to a facebook group for CPers that I belong too that I wasn’t sure whether to be impressed that she’d gone missing Monday night and it had taken until Wednesday night before mention of her disability was made in…

  • 2012,  access,  awareness,  Uncategorized

    Tools, Tenants and Tang, TPAS 2012

    The general opinion yesterday was that I “look really tired”. First I met up with a friend and they said it, then the other person we were with came along and said it a couple of times yesterday. And someone at the event we were at asked me if I’d enjoyed it saying I looked tired. I was chatting to one of the journey care staff at Oxford who knows me and she went “oh Emma you look really tired.” Finally when I spoke to mum when I got home she asked if I was tired. I’m still pretty tired today but less so. Yesterday everyone got simply told “yeah…

  • 2012,  attitudes,  awareness,  disability,  Uncategorized

    >Positive About #Disability #attitudes #language

    >I think most people know that I generally have a very positive attitude to disability, especially my own disability. Obviously I have my down days and I do have depression. But it’s really rare that it’s related to being a crip. If disability does come into it it’s often due to the attitudes of others or access issues. Being positive about having CP and needing to use a wheelchair is something I’ve always been. it’s something I’ve grown into an has evolved throughout my life. I’ve noticed that a lot of disabled people can’t always relate to that and people have even accused me of lying or deluding myself when…

  • 2012,  access,  awareness,  disability,  sarcasm,  Uncategorized

    >What Access Is – And Isn’t #spartacusreport #disability #access

    >A few situation I’ve encountered when it comes to “wheelchair access” and what I’d like to have said in return. If you’ve got toilets on the ground floor but not a disabled toilet then don’t tell me you’ve got wheelchair access. If you had wheelchair access you’d have a disabled loo. A toilet which has no grab rails and which you can get a wheelchair in but not if you want to shut the door is not a disabled loo. So kindly take a moment to stop a think and stop claiming you’ve got one. Don’t tell me you’re really used to dealing with wheelchair users and then tell me…

  • awareness,  disability,  identity,  language,  twitter,  Uncategorized

    >Why I’m Going Off The Term Spoonie

    >For the past several weeks, in fact probably the last two months or so, I’ve been really going off the term Spoonie. I mentioned something about that on twitter earlier this week and it didn’t go down well. I sort of had the impression that, perhaps, people were reacting to what I’d said without looking at all of what I’d said.  This is my attempt at explaining myself properly.  Please don’t take offense, these are my views and only that.  I in no way mean to imply that I think the term shouldn’t be used.  It just doesn’t work for me. The Spoon Theory is a way of describe what…

  • awareness,  campaigns,  language,  the r word,  Uncategorized

    >Why is the R word so offensive?

    >A few days ago an anonymous comment was left on one of my entries asking why the R word is more offensive to me than idiot or moron. For some reason that seemed to be a bit of a difficult question for me to answer; I’m not sure why.  I think for me it’s an obvious thing (not that I mean to suggest the person who asked the question is wrong, I should probably make my points clearer when I write).  I’ve been wanting to respond but not sure how to. I think that both the I word and the M word aren’t used as deliberate insults designed to target…

  • awareness,  creative writing class,  disability,  me me me,  Uncategorized,  wheelchair,  writing

    >Been There, Done That

    >I’ve been writing a piece about a woman in a wheelchair over the last week or so.  Basically, we’re doing a creative writing anthology in the class I go to. The tutor wrote an opening to a story, the premise of which is that this woman owns a haunted mansion and offers £1 Million to anyone who can last an entire night in there.  We’re all writing our own versions of what happens next. And as soon as I heard about that idea my first thought was “that sort of place probably wouldn’t have wheelchair access”  I took that idea and ran with it for my part.  Writing it gave…

  • awareness,  disability,  Uncategorized

    >Marginalised

    >my friend Sarah commented in an e-mail today that Other people really don’t get that ALWAYS having to ask and have help is exhausting and marginalising do they?! and all I could do was nod as I was reading it and think she’d got it head on again. Plus, marginalising was just the word I’d been trying to think of for it and been stumped by.  The best I could come up with was it made me feel like a second class citizen. Marginalised is a much better word although both basically mean the same thing. After a trying few weeks where things keep happening that leave me feeling like…

  • awareness,  campaigns,  disability,  political,  Uncategorized

    >The Resistance Campagn

    >If you’re in the UK, please take the time to sign this Not Dead Yet petition.  It’s asking MPs to take the time to sign up and say they support the Resistance Charter.  By signing the charter they will be declaring that they will support palliative care and independent living services and also that they will maintain legal protection for disabled and terminally ill people. There is also the option on the website to e-mail your MP about the issue – which I’ve done Basically a lot of people are concerned about what might happen to the rights of disabled and terminally ill people – and the services a lot…

  • attitudes,  awareness,  BADD,  disability,  thinking,  Uncategorized

    >You’ve come a long way, baby

    >Today is Blogging Against Disablism Day.  I’m not really sure what to write about today and I’ve been thinking about it a lot, on and off, all day. The other night I was at an event and I got talking to an older lady.  It’s to do with a project we’re both working on and we’d said we were both interested in doing a certain part of it.  There were people from all over this area there but it turns out she lives in the same town as me.  In fact I don’t think she’s too far from me although she’s not right on my doorstep and I’m not 100%…