• awareness,  BADD,  disability,  so you had a bad day,  Uncategorized

    >So you had a BADD day

    >I’ve got loads and loads to blog about and I’m definitely going to catch up tomorrow.  But I just wanted to remind people that Blogging Against Disablism Day 2010 is this Saturday.  Please pass the message on and take part if you want to/can.  It’s really important and it’s usually interesting and good fun. Today I was chatting to the hygienist when I went for a double whammy dentist and hygienist appointment back to back thing. She asked what I’d been up to and I said I’d been swimming this morning.  So she was chattering away about how she likes to swim but doesn’t go often, which pool had I…

  • awareness,  disability,  Uncategorized

    >Balance

    >The Disability Blog Carnival is coming soon.  And it’s theme this time is “balance” The obvious thing as a CP-er with a topic of balance would be to talk about walking and standing and transferring and the fact that I have very poor balance.  I can stand unsupported but only for a few seconds and a physio once described it as “controlled falling”  But that doesn’t suit me as something to talk about. There’s a lot of other things that I could talk about when it comes to balance and disability.  Or even balance and life in general. I suspect that being disabled doesn’t make balancing life and responsibilities and…

  • awareness,  BADD,  disability,  Uncategorized

    >Blogging Against Disablism Day 2010 is coming!

    >Blogging Against Disablism Day 2010 (the 5th one! Wow!) will be 1st May 2010. The Goldfish is hosting as usual and details can be found here. I could say something amazing and fantastic and wonderful about BADD and what it is and what we try to do.  But I think The Goldfish has said it all already. So I will just quote this one small bit and send you over to read the rest: Blogging Against Disablism day will be on Saturday, 1st May. This is the day where all around the world, disabled and non-disabled people will blog about their experiences, observations and thoughts about disability discrimination. In this…

  • awareness,  me me me,  Uncategorized,  you know you've got CP

    >You know….

    >You know you’ve got CP when… You’re looking at the saintary towels in the supermarket  and the security guard comes up to ask if you need any help. I was tempted at that point to ask him which product was better just to see what he would say or do but I didn’t. You know you’re fat when… You ask a member of staff to pass you something in the supermarket, specifying you want the small one and they have to ask you exactly which you mean and then go “that’s not small.” To be fair, it was the smaller of the two products. You know you’re a CAB volunteer…

  • access,  awareness,  baclofen,  fluoxetine,  goals,  meds,  Uncategorized,  weight loss,  wii

    >A Bordering on TMI Update Type Post

    >Being that it’s over a week since I wrote a “proper” catch up type blog entry I thought I better see what I could do about that right now.  This entry contains items which fall under the category of TMI – you have been warned! The goals I wrote about a few weeks ago are… OK but kinda stalled.  My TV license is renewed, I’ve e-mailed or called or spoken to on facebook chat most of my friends I wanted to catch up with but not all.  I have looked briefly into changing my ISP but need to do more for that really.  I haven’t even started my shawl I…

  • awareness,  friends,  Uncategorized

    >Christmas Magic

    >I’m very interested in all things medical and especially in transplants as some of you will know. You also might have seen a few months ago I was including the hash tag #savejess in most of my tweets. This is the story of why. And more importantly, of a little bit of a Christmas Miracle. Two of my friends had Cystic Fibrosis and had extra time due to transplants. I also know of two others whose lives have benefited through loved ones having transplants (the mother of a once acquaintance and the son of someone I met through CAB training several years ago – I’ve lost touch with both people…

  • 101 in 1001,  awareness,  disability,  Uncategorized

    >101 in 1001 – Item 81…

    > Sort out a funky and appropriate bag to live on my powerchair …has been completed! I actually figured out a couple of months ago just what sort of bag it needed and how I needed to put it on the chair and got the bag on Saturday just gone.  But the story of the bag involves the trading standards story I mentioned a few days ago so I was waiting until I had an answer on that before blogging it.  Also a few more attempts at using it to be sure it worked seemed a good idea. Basically I can’t put a regular bag on the back of my…

  • awareness,  disability,  Uncategorized

    >Worked up

    >Twice in the last two days I’ve been all geared up to be really stroppy and a strong self advocate and really get my point made and things done.  Because with both things things looked as though they would be difficult (previous experience for one and information on the website for the other).  I was NOT going to take no for an answer.  And with the previous experience one (voting not being particularly accessible previously) I’d had several years of being annoyed for letting it go and voting in not fabulous situations with nary a complaint to be seen. And both things have gone off without a single hitch or…

  • awareness,  disability,  Uncategorized

    >Access thoughts, things people say etc

    >Someone said to me yesterday that they thought our town was pretty good for a wheelchair user.  I suppose it is, I’ve not thought of it like that for a while. And then they mentioned another town about 8 or maybe 10 miles away saying they “wouldn’t want to go there in a wheelchair.” To which I said “yeah but you’re not in a wheelchair”.  I find comments like that to be somewhat annoying. I have a good friend whose parents live in that town, when she is in this country I visit her at their house, I’ve been loads although not into the town itself for some years.  I…

  • awareness,  books and reading,  Uncategorized

    >The Vagina Monologues, Vagina Pagina, etc

    >When I was surfing the blogcarnival site the other day I noticed the featured carnival was Advice for Women from Women.  Which is hosted on the blog of the same name. I’ve read a few posts from the last edition and they seem interesting.  At my first glance of the carnival I thought not much would be relevant or would appeal to be.  But this seems to be a very large carnival and as I scrolled further down I did find interesting posts on reusable menstrual products and also on letter writing amongst other things.  Hopefully when I have more time I will remember to go back and read more. And…