• 2014,  baclofen,  Self-Care,  Sertraline,  snow,  Uncategorized

    Self Care Sunday

    I’m not sure what form self care has taken this week that I can blog about.  I’ve been getting into quite a good routine, taking my baclofen and sertraline (muscle relaxant and anti-depressant) everyday, writing everyday – although not the stuff I’d really like to be writing everyday, getting a break from my wheelchair every afternoon or early evening, a fair amount of stretching but not everyday and some form of exercise most days (usually a very small amount and some days it’s been more of a phoning it in thing). But at the same time I’ve also had a brand new PC which is very very exciting but has…

  • 2013,  action3,  baclofen,  dream diary,  identity,  laterals,  personal,  perspective,  powerchair,  Quickie Salsa,  songs of my life,  thinking,  Uncategorized,  walking,  wheelchair

    A Dream Is A Wish Your Heart Makes…

    I’ve been doing a fair amount of writing (fiction) and the character I was writing about was thinking about the disney version of Cinderella. Specifically the song lyric “A dream is a wish your heart makes when you’re fast asleep.” And then I started thinking about it. I frequently remember my dreams. They are very detailed and often borderline surreal. I can remember dreams I had months or years ago although not usually when I had them. I also have a recurring dream. I’ve not had it for absolutely ages but it was the one that came to mind. I think taking baclofen might have something to do with the…

  • 100 days of writing,  2012,  baclofen,  botox,  hospital,  neurology,  physio,  spasticity,  Uncategorized

    >The Man With The Needles

    >I’m going to see my neurologist tomorrow in spasticity clinic. Hopefully this will be a joint appt with my physio (it’s meant to be but the track record on that isn’t good) to discuss whether I need more Botox. And for me to have the jabs if so. I suspect that will be the case. I also wonder if my baclofen will be upped. I described that to a friend as “going to see the man with the needles” last week and thought that was an intriguing idea for writing. Today is day 35 of 100 which feels like a huge number of days achieved. Especially as I almost forgot…

  • antidepressants,  baclofen,  care,  meds,  pain,  physio,  Sertraline,  transfers,  Uncategorized,  wheelchair

    >Meds and Such Like

    >I think it’s safe to say that at the very least I need to go and chat to my GP about my depression.  I’m much better than I was when my antidepressant was changed to Sertraline but I’m still struggling a lot at times.  That said I don’t necessarily think I need it tweaking again but I’m not sure and I need to keep an eye on these things. And when I went to the physio she was talking about the possibility of changing my muscle relaxants.  Either an increase of my baclofen or taking something else (which said could be instead of or in addition to the baclofen).  I’m…

  • baclofen,  fluoxetine,  friends,  fun stuff,  meds,  naidex,  physio,  Sertraline,  Uncategorized,  uni

    >Updates

    >Recent happenings and not so recent things I’ve forgotten to mention but occur to me now: I’ve made some baby steps on the way to starting to lose weight again so I’m hoping the scales will start moving downwards again very soon!  Specifically I’ve given up coke and chocolate again. My leg is still nasty but is improving very slowly.  I’m really glad they gave me more antibiotics after all because clearly they are doing something.  Being on this level of antibiotics and having been on antibiotics for so long is making me feel a bit rubbish though!  I’ve been resting a lot these last two days and trying to…

  • antibiotics,  baclofen,  depression,  fluoxetine,  meds,  Sertraline,  spasticity,  Uncategorized,  UTI

    >Changing my meds

    >Mostly for my own records because otherwise I won’t remember when this happened and it might be useful at some point in the future. Went to the Dr today.  I was very nervous about going to talk depression for some reason and threw up before I left. Not that unusual when I’m anxious but not nice. At all.  It wasn’t my usual GP but a different one (who I asked to see as my GP was unavailable and I’d seen him recently and knew he was easy to talk to and also good).  The different in perspective and opinion on my meds was interesting Baclofen increased to 40mg a day…

  • baclofen,  fluoxetine,  meds,  spasticity,  terbinafine,  trains,  Uncategorized

    >In which CP makes things complicated

    >Sometimes being disabled is soooo complicated. Yesterday, I saw my GP. When I was waiting to go in something made me jump – and then spasm (my CP means I jump really easily and jumping usually triggers spasms of some form).  This woman sitting opposite me went “oooh that made you jump” which was apparently the funniest thing ever because she burst out laughing as she said it.  Pretty upsetting. My GP asked how I was when I went in and I said “OK” but I was feeling down because of that. Luckily she knows me and went “what does that mean?” So I told her, generally I’m good but…

  • baclofen,  Family,  fluoxetine,  meds,  terbinafine,  Uncategorized,  walking,  weight loss

    >A (Mostly Medical) Few Things

    >I started a new medication last week, Terbinafine.  It’s only one tablet a day but it tastes disgusting and no matter what I do it seems to dissolve in my mouth.  I’m gonna be on it for three months, maybe a little longer (possibly up to six) which is a bit better than a new permanent medication.  That’s apparently harsh on the liver which made me worry a bit about whether I should take it.  So we agreed that I would have a blood test part way through the course which they don’t normally do.  I’m hoping the fact I’ve lost more weight will mean that it’s a lot easier…

  • access,  awareness,  baclofen,  fluoxetine,  goals,  meds,  Uncategorized,  weight loss,  wii

    >A Bordering on TMI Update Type Post

    >Being that it’s over a week since I wrote a “proper” catch up type blog entry I thought I better see what I could do about that right now.  This entry contains items which fall under the category of TMI – you have been warned! The goals I wrote about a few weeks ago are… OK but kinda stalled.  My TV license is renewed, I’ve e-mailed or called or spoken to on facebook chat most of my friends I wanted to catch up with but not all.  I have looked briefly into changing my ISP but need to do more for that really.  I haven’t even started my shawl I…

  • baclofen,  Uncategorized

    >Meds Mess

    >In 2010 I feel I need to learn to count properly. Or at least to be a little bit more organised. Because I should not have been able to get to 28 without realising that 100 tablets prescribed part way through November to be taken at a rate of 2 a day was not going to get me to the first full week in January. Or at least figured it out before I took the last pills! I was on such a roll with taking my meds too. Part of me is still convinced that I must have some left here somewhere but the numbers don’t lie and I’m damned…