• 2021,  acceptance,  care,  Compression,  Family,  friends,  lymphoedema,  things people say

    The Most Supportive Thing

    I wrote an entry a while ago about blog posts I’d been wanting to write (I’m really good at starting things…) this is part of one of the posts, there maybe a part two at some point but not any time soon. Last week (before the phone call about self-isolation) I had a problem with the carers. No one turned up to do my call and then when I eventually tried to call them to chase it up (much later than I should have because I kept thinking “someone will come soon”) I couldn’t get through on the phone, repeatedly. Once I did manage to get hold of them it…

  • 2021,  care,  honesty

    It is a truth universally acknowledged…

    …that I can cope perfectly well at home not going out when I’m not going out because I don’t want to. But the minute I’m stuck at home for the foreseeable for reasons beyond my control I get cabin fever. Haven’t been out since New Years Eve because of my cold. It’s well on it’s way out had decided to do the full 10 days isolation just in case and was planning to go for a walk probably tomorrow. I’ve been happy at home working my way through a long book and an even longer audiobook and playing games on my iPad. I didn’t really have an enthusiasm for the…

  • 2020,  care,  Quarantine 2020,  things people say

    Four Months of Isolation

    It’s been a fair while since I wrote one of these “life in lockdown” posts and it’s definitely something I’ll want to look back on in future years so here’s another one. I just put the washing on for an extra rinse so we’ll see how far I can get before it finishes. Monday was 4 months since I was last in a building other than my house (I went to the gym on Friday 13th March). I’ve probably written this before but although the panic buying that weekend would have made it unsafe for me to go out, I probably would have gone to town in the week after…

  • 2020,  achievements,  care,  disability,  lymphoedema,  Quarantine 2020

    Value for Money

    One of my carers has asked me about two things I’ve bought lately (a stocking aid and some cloth masks) and specifically how much they’ve cost. When I’ve said “about X pounds” she’s said that’s very expensive. I’ve been thinking about that a lot since we had those two conversations. I think she’s wrong. But only because of the bigger picture. The mask conversation was almost irrelevant. She’s told me how much she paid and said delivery was more. I didn’t pay delivery. Hers came from somewhere abroad (I forget) and took ages to come. Mine were here in a few days, from (I think) London. She wasn’t comparing like…

  • 2019,  care,  lymphoedema

    Jinxed it!

    I wanted to write a post about how proud of myself I am about something. I’ve been telling everyone about an achievement since last weekend. Unfortunately telling them seems to have jinxed it! My care package has been in place for a year now and not once have them come and found me still in bed or in the shower. I’ve always had a set of wraps ready to wear and I’ve never been having a “crap I have no clean clothes” or other major crisis. I have been only part dressed or just in a towel a few times but that’s usually down to their changing the time and…

  • 2018,  care

    Five Things I had Forgotten About Having Carers

    According to this blog it’s nearly 9 years since I stopped having carers.  My care package to manage my lymphoedema has been in place for just over three weeks now.  And it’s going well. Most of the carers I’ve met I’ve got on well with (some I’ve only met once so it’s hard to know how I’ll get on with them) and there haven’t been any of the problems I anticipated with getting my wraps applied tightly enough. I am however remembering several things I had forgotten about having carers.  Here are five of them. 1) Your time is not your own. Just because the evening visit is scheduled for…

  • 2018,  care

    Say My Name

    I’m kinda well known for either not spotting people  I know when I’m out and about or for people knowing me but my having no clue who they are.  To be honest, that second one tends to happen a lot – as a CAB adviser I’m often the only person their someone deals with (plus I stand out because of my wheelchair) but if I’m doing drop ins I can see up to four people in a day. For slightly over two months my parents (mostly my Dad) were coming in twice a day to do personal care tasks related to some treatment for my lymphoedema.  However on Tuesday this…

  • care,  CP related,  serial casting,  Uncategorized

    >The Crip and The Casts

    >I tried yesterday to post a video blog from my shiny but for some reason it won’t upload.  I will endeavour to cover the main points and do so quickly as I have hospital transport coming and was told to be ready at 9.15 (8.44 now). Casts went on Monday.  that day was a huge struggle and ended in a crying, shaking, sobbing, puking meltdown that necessitated my calling my Mum round at 11:30 pm and unfortunately getting her out of bed in the process.  Basically I couldn’t get out of bed without help, I got my skirt all tangled up, couldn’t get it up or down and it was…

  • botox,  care,  serial casting,  Uncategorized

    >A Few Days On

    >Not quite a week since I had the botox (tomorrow will be a week) and I think my ankles may be a little looser.  This is a very good thing.  It’s about the right timescale too as the physio said it takes 7 – 10 days to kick in.  I’m not 100% sure that’s the case, I need to get a second opinion from my dad, but it’s looking good. The first lot of casts go on on Monday.  I’m feeling a lot calmer about that now but it’s still going to be very different and possibly difficult.  I’m just hopeful I get a good result out of this.  As…

  • antidepressants,  baclofen,  care,  meds,  pain,  physio,  Sertraline,  transfers,  Uncategorized,  wheelchair

    >Meds and Such Like

    >I think it’s safe to say that at the very least I need to go and chat to my GP about my depression.  I’m much better than I was when my antidepressant was changed to Sertraline but I’m still struggling a lot at times.  That said I don’t necessarily think I need it tweaking again but I’m not sure and I need to keep an eye on these things. And when I went to the physio she was talking about the possibility of changing my muscle relaxants.  Either an increase of my baclofen or taking something else (which said could be instead of or in addition to the baclofen).  I’m…