• 2016,  acceptance,  argh,  attitudes,  awareness,  CP related,  frustrations,  things people say,  Uncategorized,  wheelchair

    “She’ll run you over”

    There are a lot of allegedly jokey comments that people make about or to me as a wheelchair user.  Usually well meaning and perhaps an attempt at being funny. They aren’t funny.  Most of them never were but one or two may have been if not for the fact that I hear them all the time.  I’m talking about the “women drivers” comments. The people who say “do you have a license for that thing?” Those who randomly see me and go “no speeding!” And many others. I often roll my eyes at that sort of thing and let it go because it’s usually strangers and theres no point getting…

  • 2016,  action3,  Attempts at World Domination,  CP related,  falls,  Uncategorized,  you know you've got CP,  you know...

    You Know You’ve Got CP When…

    …you don’t know whether to post an “argh terrible disaster it’s all going wrong crisis.” status update or a “oh wow this just happened I rock” status update – and the two things relate to different parts of the same incident. So it was something like 11:30pm last night. I’m on the computer and beginning to think about bed but I’m waiting for something on here to finish. I decided to leave it on and go to the loo, start getting sorted.  I’m in the hall, almost to the bathroom when something happened to my manual chair and not only wasn’t I moving but it had dropped in one corner…

  • 2016,  attitudes,  complaints,  courage,  CP related,  customer service,  disability,  Uncategorized

    So Take Me As I Am

    (title is a lyric from the Meredith Brooks song Bitch) A couple of weeks ago I was asked how I’d enjoyed a show I went to by a member of staff there who I know. I had enjoyed it but there had been one thing that had happened – which was tangentally access related – that had really irritated me.  It was totally inconsequential and unlikely to be repeated but it had had an impact on my enjoyment and they asked so… I said “If I could just make one slightly bitchy point….” More recently than that I discovered that the actions of someone else have left me with a…

  • 2016,  acceptance,  access,  CP related,  Uncategorized

    “Well”

    Earlier this week I was talking to an acquaintance who was saying I handle things very well.  They’d been around when I’d found myself struggling with access woes a while ago and been impressed with how I handled it. It’s not the first time since that this has come up. They mentioned that I’m not the only disabled person they know and the others get angry in ways I don’t. I think it is – or was meant to be – a compliment. I’m not sure I did handle it well. I’m not sure it’s a situation that can be handled well – life doesn’t come with a handbook for…

  • 2015,  CP related,  furosemide,  lymphoedema,  Uncategorized

    It’s Okay

    For me blogging is an outlet. And it’s a pretty good one.  I’m generally very open in what I share about myself although I try and protect other people’s privacy. I’ve been blogging for fifteen years and in that time how and what I share has changed.  I’ve been quiet on my blog lately because that seems to be going through another change. Not really a welcome change. I welcome comments and questions and responses to my blog – the majority of which come through twitter nowadays. That’s brilliant. But there are some people who seem to read a completely different story to what I’m writing – One time someone…

  • 2015,  blogging,  carnivals,  CP related,  depression,  disability,  disability blog carnival,  disability blogs,  disability voices,  I want to change the world,  internet,  personal,  perspective,  questions,  things people say,  thinking,  twitter,  Uncategorized

    Rotation Curation for #Disability #rocur

    I’ve been curating the @OxfordIsYours twitter account.  It’s a RoCur (Rotation Curation) account for Oxford and the person who runs it said living in Oxfordshire counts. Basically RoCur is where there’s an account (often on twitter) where people take a week at a time to run it and share their experiences and tweet on the subject.  Most of these relate to places – like with Oxford Is Yours I’ve been tweeting about where I’ve been and what I’ve done – but some relate to hobbies or jobs or organisations or anything else. I’ve been enjoying it and have learned about a place in Oxford I’m going to visit soon I…

  • 2014,  books and reading,  CP related,  disability,  disability normal,  guest blog,  Uncategorized

    Emma, Elsewhere

    If you were looking for a blog post from me today you’ll have to wander over to Disability In Kidlit where a discussion post I contributed to has just been published. Say What You Will is a YA book by Cammie McGovern where one of the main characters has CP and the other OCD.  If you’re like me and in the UK you’ll find it in book shops under the title Amy and Matthew. ***This link contains spoilers but this post on my blog hopefully doesn’t*** Emma Crees, Courtney Gilfillian, and s.e. smith review SAY WHAT YOU WILL I really enjoyed the discussion and getting to chat with Courtney and s.e. …

  • 2014,  Book A Day,  books and reading,  CP related,  Uncategorized

    Should have sold more copies

    As I wrote on one of the earlier prompts I can’t help thinking this “Should have sold more copies” prompt is a bit samey with two of the prompts that have already been done. See here. I don’t keep track of the number of copies that a book sells.  I might have a good idea of how popular something is because of reading stuff online, particularly on twitter, blogs and goodreads (facebook, less so) but numbers no I don’t.  No idea either of what sort of numbers sold would be considered below average, normal, good, outstanding etc.  I might google that because now I think of it I’m intrigued.  But…

  • 2014,  books and reading,  CP related,  reviews,  Uncategorized

    Trapped: My Life with Cerebral Palsy by Fran Macilvey

    I was lucky enough to receive a free copy of Trapped: My Life with Cerebral Palsy by Fran Macilvey in exchange for an honest review. She also answered some questions for me.  The fact that Fran sent me a free copy of her book doesn’t influence my review but I do attempt to be fair. I think this is the third memoir of a person with CP I’ve had to review (but not the third one I’ve read if that makes sense) and I think of those three this is the one I enjoyed the most.  I think the fact that as of this writing Trapped has 20 reviews on…

  • 2014,  CP related,  crafts,  Uncategorized

    Fabric Fun

    On Saturday I went to a craft taster workshop on fabrics. If I’d been sensible and/or thought about it properly it probably would have occured to me that it wouldn’t be particularly good for my specific  CP. I’ve never been particularly sensible about such things so it never occurred to me. It wasn’t what I expect and I don’t think I’d go again. But I did manage to make something. A crap something, but something. A big part of that was that a friend of mine had also gone and so was able to do needle threading, pinning of fabrics and little bits like that which I couldn’t. I also…