• 2014,  books and reading,  CP related,  reviews,  Uncategorized

    Trapped: My Life with Cerebral Palsy by Fran Macilvey

    I was lucky enough to receive a free copy of Trapped: My Life with Cerebral Palsy by Fran Macilvey in exchange for an honest review. She also answered some questions for me.  The fact that Fran sent me a free copy of her book doesn’t influence my review but I do attempt to be fair. I think this is the third memoir of a person with CP I’ve had to review (but not the third one I’ve read if that makes sense) and I think of those three this is the one I enjoyed the most.  I think the fact that as of this writing Trapped has 20 reviews on…

  • 2014,  CP related,  crafts,  Uncategorized

    Fabric Fun

    On Saturday I went to a craft taster workshop on fabrics. If I’d been sensible and/or thought about it properly it probably would have occured to me that it wouldn’t be particularly good for my specific  CP. I’ve never been particularly sensible about such things so it never occurred to me. It wasn’t what I expect and I don’t think I’d go again. But I did manage to make something. A crap something, but something. A big part of that was that a friend of mine had also gone and so was able to do needle threading, pinning of fabrics and little bits like that which I couldn’t. I also…

  • 2014,  attitudes,  awareness,  campaigns,  CP related,  disability,  disability normal,  disablism,  internet,  interwebs,  medical model,  perspective,  ranting,  social model,  twitter,  Uncategorized

    In which I get Ranty

    (subtitle: and lose my shit all over the Internet.) This is ridiculous. In fact It’s the most stupid thing ever and frankly I probably shouldn’t dignify it with a response but I can’t let it go. There’s an American company called 3eLove. They sell a range of products with their logo on – the logo is a wheelchair symbol like you see on many different things but with the wheel replaced with a heart. It’s called the wheelchair heart.  I can’t remember if I’ve blogged about it before or not. Their products have a variety of slogans on as well as the wheelchair heart.  In 2012 my parents gave me…

  • 2013,  access,  attitudes,  CP related,  current affairs,  disability,  Disability Glossary,  medical model,  personal,  perspective,  social model,  Uncategorized

    Quick and Dirty #Disability Theory

    I posted on Facebook earlier this afternoon that I’d given someone a spur of the moment elevator pitch length explanation of the social and medical models of disability and they’d understood it without my needing to clarify any further. This was, and is, a win. Especially because I really believe they actually understood it and didn’t just say so to shut me up. Then one of my friends posted that she doesn’t speak disability. And apparently I have blog entries on here dating back to 2006 but have never defined the models. Despite having both a social and a medical model category on here. So here goes. This will be…

  • 2013,  advocacy,  awareness,  CP related,  Uncategorized

    Just for Today

    Dearest blog readers I need to tell you something very important. You see, there’s this thing called Cerebral Palsy (some people call it CP for short). It’s a disability. I have it. So do thousands of other people all over the world, probably even millions. I don’t suffer from it. I have it. That’s important. It’s not a terrible thing. There isn’t a cure and it’s life long but it is what it is. And what it is is difficult at times but generally ok. And what I need to tell you, my dear blog readers, is that I need you to be aware of the fact that CP exists…

  • 2013,  CP related,  Family,  frustrations,  honesty,  shoes,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …the shoes you call your ridiculously impractical shoes are the same sort as your able-bodied sister and mother frequently wear as sensible everyday ones. For years I’ve lived in trainers. But only a specific sort. So much so that the pair I have now is at least my third identical pair but come to think of it is probably actually my fourth. And I should probably buy a new (but still identical pair) because no matter how many times I look for something different I can never find it. The idea that Skechers might one day discontinue them secretly fills me with horror. Because no one else does shoes which…

  • 2013,  C-A-B,  CP related,  powerchair,  Quickie Salsa,  sailing,  Uncategorized,  you know you've got CP

    You Know You Have CP When…

    …you get congratulated on still having the wheels on your powerchair. Twice. On separate days. …you go to say goodbye to the same person who congratulated you because they’re leaving the bureau and moving on to a new job. And amongst the “wishing you well” comments they make they include that they “hope your wheels don’t fall off” …you wear out all four if the castors on your powerchair in 14 months. Hence all the wheel falling off comments because it was a genuine possibility while I was waiting for the replacements. …your Dad books an accessible taxi to take you, him and your mum to your brother’s wedding. When…

  • 2013,  acceptance,  access,  awareness,  blogging,  campaigns,  courage,  CP related,  current affairs,  difficulties,  disability,  disability normal,  disability rights,  freedom,  frustrations,  hopes and dreams,  I want to change the world,  identity,  Uncategorized

    In which I ramble and am grouchy when it comes to “awareness”

    (I was going to title this “why I’m not blogging about CP awareness day” and then I realised that by writing this I pretty much was blogging about CP awareness day just not in the way most people are and that would be a pointless title) So. Word on the street the internet is that 25th March is CP awareness day. i.e. that tomorrow is CP awareness day. Except,  to me, it’s not, really.  It’s national CP awareness day in the US.  I’m not in the US and I sometimes feel like the entirety of the fucking internet resolves around people from the US  and that those of us not…

  • 2013,  acceptance,  access,  argh,  attitudes,  CP related,  difficulties,  disability,  drama,  frustrations,  powerchair,  Quickie Salsa,  ranting,  sarcasm,  so you had a bad day,  things people say,  Uncategorized,  wheelchair

    A word of advice

    For those who don’t know me. Don’t try offering me unsolicited advice or helpful suggestions about my wheelchair and then go off on me when I tell you’re wrong and calmly explain the reasons why I do what I do and/or can’t do anything else. Telling me where you saw me cross the road is dangerous is one thing. Repeatedly screeching at me that I’m going to get myself killed when I tell you its the only place I can is upsetting. And talking to me like I’m stupid and telling me that I do have a choice and could cross the road elsewhere is another that shouldn’t happen. Suggesting…

  • 2013,  attitudes,  blogging,  campaigns,  CP related,  current affairs,  disability,  disability blogs,  disablism,  freedom,  guest blog,  interwebs,  language,  Paralympics,  political,  press,  ranting,  sailing,  Uncategorized

    Disability in the media

    I’m paying a second visit over at Bea Magazine this month.  I wrote about the disability issues which were raised by the news that paralympian Oscar Pistorius has been arrested on suspicion of murdering his girlfriend Reeva Steenkamp. You can read it here: Disability and the Reeva Steenkamp Murder The coverage of disability in the media has always been problematic but I’m really hoping this might be the beginning of it changing. I suspect that it’s more likely that it will change the way violence against women is covered by the media than disability.  Still I hope. Last year I was asked to speak to the local paper about my…