• 2018,  creative,  disability,  disability normal,  things that make me smile,  yayness

    Unlimited Festival 2018

    On Wednesday, a friend and I went to London to visit Unlimited Festival at The Southbank Centre. Unlimited is a festival of disability arts. We saw a variety of different art exhibits. One was a messy house, meant to represent how the artist’s disability means she struggles with cleaning. The different fabrics and wallpapers had bright patterns, inspired by the dirt in her own home. Another was pictures by two people with learning disabilities who had spent a year exploring London and based the pictures on that. One, Ian Wornast, had drawn map like layouts in what appeared to be felt tip. I think they were my favourite. The big…

  • 2016,  C-A-B,  disability,  disability normal,  Uncategorized

    An Unexpected Revelation

    At CAB today we did some training on how to support clients who are appealing disability benefit decisions. What to do, what type of information to put in the various letters (for mandatory reconsideration) or forms (for appeal). And the subject of getting dressed came up. So we covered  the need to check how long it takes, do they avoid certain items of clothing or look for certain fastenings because that’s the only type they can put on (for example I can dress myself but I mostly wear trousers I can pull on and don’t wear socks as I can’t get them on and my shoes sometimes fall off as…

  • 2015,  blogging,  disability normal,  trains,  Uncategorized

    Normal, Mundane and Boring

    This is something I’ve been thinking I should blog for a few months but haven’t got round to. I was talking to someone about the internet and disability earlier and this was something I mentioned. So now I’m blogging it. I think sometimes it’s very easy to blog about the things that make me angry or that annoy me or that happen out of the ordinary. Generally things I blog about are things that I’m passionate about and often times that passion comes across in blogging about negative things.  It’s easy to forget to blog about the other side of the story – the times when things go well or…

  • 2014,  disability normal,  travel,  Uncategorized

    Travel

    I feel like this should have a much catchier title but I don’t know what it is! I’ve been thinking a lot over the last few months about travel.  About whether I could swing a proper trip next year, financially, practically and most importantly all of the disability related aspects that go into it.  And I’ve been considering the disability aspects of it even more over the last few weeks. I’ve had a night or two away in this country over the last few years but I’ve not had a proper holiday since 2007 I have two options in mind – a dream trip and a more realistic trip, closer…

  • 2014,  books and reading,  CP related,  disability,  disability normal,  guest blog,  Uncategorized

    Emma, Elsewhere

    If you were looking for a blog post from me today you’ll have to wander over to Disability In Kidlit where a discussion post I contributed to has just been published. Say What You Will is a YA book by Cammie McGovern where one of the main characters has CP and the other OCD.  If you’re like me and in the UK you’ll find it in book shops under the title Amy and Matthew. ***This link contains spoilers but this post on my blog hopefully doesn’t*** Emma Crees, Courtney Gilfillian, and s.e. smith review SAY WHAT YOU WILL I really enjoyed the discussion and getting to chat with Courtney and s.e. …

  • 2014,  attitudes,  awareness,  campaigns,  CP related,  disability,  disability normal,  disablism,  internet,  interwebs,  medical model,  perspective,  ranting,  social model,  twitter,  Uncategorized

    In which I get Ranty

    (subtitle: and lose my shit all over the Internet.) This is ridiculous. In fact It’s the most stupid thing ever and frankly I probably shouldn’t dignify it with a response but I can’t let it go. There’s an American company called 3eLove. They sell a range of products with their logo on – the logo is a wheelchair symbol like you see on many different things but with the wheel replaced with a heart. It’s called the wheelchair heart.  I can’t remember if I’ve blogged about it before or not. Their products have a variety of slogans on as well as the wheelchair heart.  In 2012 my parents gave me…

  • 2013,  acceptance,  access,  awareness,  blogging,  campaigns,  courage,  CP related,  current affairs,  difficulties,  disability,  disability normal,  disability rights,  freedom,  frustrations,  hopes and dreams,  I want to change the world,  identity,  Uncategorized

    In which I ramble and am grouchy when it comes to “awareness”

    (I was going to title this “why I’m not blogging about CP awareness day” and then I realised that by writing this I pretty much was blogging about CP awareness day just not in the way most people are and that would be a pointless title) So. Word on the street the internet is that 25th March is CP awareness day. i.e. that tomorrow is CP awareness day. Except,  to me, it’s not, really.  It’s national CP awareness day in the US.  I’m not in the US and I sometimes feel like the entirety of the fucking internet resolves around people from the US  and that those of us not…

  • 2012,  acceptance,  advocacy,  Attempts at World Domination,  CP related,  disability,  disability normal,  disablism,  discrimination,  influences,  normal,  perspective,  Uncategorized

    Happy Tears

    I was asked to speak at an equality event today. About the access group (AFA) I’m chair of and a bit about my own story as a disabled person. I think it well. I didn’t write a speech, I had a few ideas but wanted to just talk off the cuff. It helped that this is I think the third time I’ve explained to people what and why AFA is (although previously I’ve only done so in informal settings). The very first idea I’d thought of when thinking it over I forgot to use. I talked about how I don’t suffer from CP because it’s all I’ve ever known. How…

  • disability normal,  Life,  Uncategorized

    >”I’m Fine” or Telling It Like It Really Is

    >I’ve been saying for a while that I planned to write a “what’s life really like” type blog post.  This isn’t intended to be a moan or a woe is me type post… it’s just intended to highlight that which I don’t often show and what saying “I’m fine” can really mean. So far today I have Spasmed and kicked the shower screen as a result knocking it open.  But thankfully the shower was facing away from it and I caught it quickly so didn’t flood the bathroom.  This happens most times I shower and the screens no longer fit together well. Needed help to put my left shoe on…

  • access,  BADD,  disability,  disability normal,  disablism,  Uncategorized

    >The Fight Never Ends – #BADD2011

    >Today is Blogging Against Disablism Day (BADD).  BADD started in 2006 I believe making this the 6th BADD.  When it was first set up I was a campaigner and an advocate but not as much as I am now.  I was really excited by the prospect of this day when we could all come together and work towards a common goal – the fight against disablism. 6 years later? Not so much. Days like BADD and other events like One Month Before Heartbreak are wonderful at raising awareness.  And they take a lot of work to organise so I have big respect for The Goldfish from that point of view…