• 2013,  acceptance,  access,  awareness,  blogging,  campaigns,  courage,  CP related,  current affairs,  difficulties,  disability,  disability normal,  disability rights,  freedom,  frustrations,  hopes and dreams,  I want to change the world,  identity,  Uncategorized

    In which I ramble and am grouchy when it comes to “awareness”

    (I was going to title this “why I’m not blogging about CP awareness day” and then I realised that by writing this I pretty much was blogging about CP awareness day just not in the way most people are and that would be a pointless title) So. Word on the street the internet is that 25th March is CP awareness day. i.e. that tomorrow is CP awareness day. Except,  to me, it’s not, really.  It’s national CP awareness day in the US.  I’m not in the US and I sometimes feel like the entirety of the fucking internet resolves around people from the US  and that those of us not…

  • 2012,  disability,  Disability Glossary,  disability rights,  good things,  Uncategorized,  writing

    Nothing About Us Without Us

    I’m trying to work my way through a series of disability specific terms and especially some disability specific concepts and define them for my blog. A sort of glossary of disability according to Emma if you will. I’ve also been asked to contribute monthly to Bea Magazine. My first piece went up there today and happily the subject I wanted to write about for them is also something I would have written about in my disability glossary. (Although I hadn’t actually planned for it to me the next entry in my glossary). I’m sure all of my readers are now breathing a sigh of relief that they don’t have to…

  • books and reading,  crafts,  disability,  disability rights,  Uncategorized

    >This is going to be a super short blog post because when I really had time and wanted to be writing it earlier my internet was coming on and off like a prostitutes knickers.  Or some such metaphor, possibly a more appropriate one I can’t think of right now.  Suggestions anyone? I’m not that tired but I’m a bit worried that if I wrote a huge entry my Internet might go stupid again and I’d lose it.  Also, I was going to share photos and I don’t want to mess around with them at the moment.  But I’ve been learning (or have learnt, actually I guess) two new crafts in…

  • ashley treatment,  ashley-x,  disability rights,  Uncategorized

    >The Ashley Treatment is back

    >I will write more about this later because this is a story that needs addressing.  I need some time to think on it though. But I’ve just read that the Ashley Treatment has been decided by an ethics committee to be “Morally Permissible” in certain circumstances.  See: “Stunting disabled children’s growth is ‘morally permssible” group says” (h/t to BendyGirl). They only looked at growth attenuation and not all the other issues that were involved in the treatment of Ashley X.  The very idea of it makes me feel sick however. Other entries I’ve written about The Ashley Treatment and about Ashley X All content copyright Emma Crees, 2006 – 2012…

  • blogging,  disability rights,  disability voices,  political,  Save DLA,  Uncategorized

    >Dear Prime Minister

    >I wrote a relatively long blog post on Tuesday and then my Internet went down and I lost it.  I do have quite a lot to blog about but not today… The cuts which will be made as a part of the Comprehensive Spending Review were announced on Wednesday.  They will seriously affect disabled people and they haven’t been properly thought through.  The government admits that they haven’t looked fully into how they will affect disabled people.  I wrote a small post about this on Disability Voices.  It includes a link to a Scope campaign about it, asking people to e-mail their MP. Fellow blogger and Disability Voices team member…

  • awareness,  C-A-B,  disability,  disability rights,  italian food,  katie thorpe,  Uncategorized

    >Deja vu

    >I do voluntary work a few times a week. And twice a year we get together socially. We do this thing when we go out to eat where every seat apart from mine has a number and after each course everyone gets up and moves on so many places. It’s always arranged so I stay put so I joke about how it makes me the Queen of the evening and how everything revolves around ME! So you talk to loads of different people and you talk about loads of different things. It’s really fun. You learn things about people you never knew and you get to talk to people you…

  • Attempts at World Domination,  disability,  disability rights,  katie thorpe,  Uncategorized,  writing

    >Katie, again.

    >And me, this time, too ;o) The Guardian has an article on it’s website about Katie Thorpe – Whose Life is it Anyway? And they included an extract from one of my blog entries about her in it. How cool is that?!?! I quite like the article, I think it does a fair job of describing the thoughts and feelings of disability bloggers and of Katie’s mother. And it hasn’t degenerated into disablist language or such stereotypes, which had concerned me. As I’m writing this there are two comments left on the article online and neither of them particularly fill me with joy. I’m waiting to see if there is…