• 2018,  disability,  twitter

    We Are Disabled #blogtober

    I love twitter. I don’t do as much with it as I used to as my boundaries have changed (as they have with a lot of online stuff – I am missing the times when the internet community was smaller and people knew you but they only knew an online, anonymous you). But I still love it. One thing I enjoy about twitter is RoCur – rotation curation – accounts. Those are the ones where a different person tweets every week or even everyday. There are different ones for people from certain places, who work in particular jobs or who have certain interests. They give a snapshot of people’s lives…

  • 2018,  acceptance,  disability,  things people say

    The Things I Can’t Do

    Someone declared a few months ago that there “must be lots of things I want to do but can’t.” They mentioned someone they knew was ill (I believe – had been hospitalised anyway) and was finding they couldn’t do stuff. I think they may have been venting frustrations. I said no, I didn’t know how that felt because I can do everything I want to do. From her reaction, I don’t think she believed me and I ended up back tracking and justifying that statement by pointing out that I’m lifelong disabled so I’ve never known any different (I am annoyed with myself that I allowed her to make me…

  • 2018,  attitudes,  disability

    Blogging and Blogtober

    I have been thinking a lot about blogging lately (and about writing in general). And I came to many conclusions, the main one of which was I don’t want to stop blogging. So I decided that I would take part in #Blogtober this month (blogging everyday) because if that doesn’t help me find my love for blogging again, nothing will. (One of these days I’m going to look back and see how many times I’ve shared similar thoughts on here in the last three or so years. Probably an embarrassing number of times). My bio on Facebook describes me as “writer, blogger, reader, adviser, crafter, reviewer, wheelchair user, advocate, crip.”…

  • 2018,  creative,  disability,  disability normal,  things that make me smile,  yayness

    Unlimited Festival 2018

    On Wednesday, a friend and I went to London to visit Unlimited Festival at The Southbank Centre. Unlimited is a festival of disability arts. We saw a variety of different art exhibits. One was a messy house, meant to represent how the artist’s disability means she struggles with cleaning. The different fabrics and wallpapers had bright patterns, inspired by the dirt in her own home. Another was pictures by two people with learning disabilities who had spent a year exploring London and based the pictures on that. One, Ian Wornast, had drawn map like layouts in what appeared to be felt tip. I think they were my favourite. The big…

  • 2017,  antidepressants,  Citalopram,  courage,  depression,  disability,  fluoxetine,  perceptions,  personal,  powerchair,  Quickie Jive,  Sertraline

    A Little Bit of Life

    (I am surprised that with nearly 2000 entries on this site I’ve never used the title A Little Bit of Life before) Two bits of not so brilliant but they could be much worse news are in my life at the moment.  I don’t think dominating my life is the right term but they are definitely big factors in everything right now.  And not easy. Life is never easy. I will start with the slightly easier one first – my powerchair is broken. The easiest way to explain it is to say it has a broken castor.  It’s more complicated than that because of the spider-trac but basically it’s not…

  • 2017,  attitudes,  disability,  Uncategorized

    What Have You Done Today To Make You Feel Proud?

    (title is a lyric from the Heather Small song Proud) A few days ago an acquaintance heard I’d done something and was really impressed. She was trying to encourage me to write about it for Tenants Times because doing so could inspire other people and it was a big deal what I’ve done. I was frustrated by that conversation because I couldn’t see what the big deal was and I don’t understand why it’s news and people who don’t know me would be interested in it. Plus all I could see was it turning into some form of inspiration porn even if I was the one to write it. I…

  • 2016,  disability,  freedom,  good things,  powerchair,  Quickie Jive,  Uncategorized

    Miles on my tyres

    I’ve officially had the Jive for three months now.   And I’m pleased ro report that I didn’t come anywhere near falling out of my chair in month three so that’s an improvement on the previous two months.  I did freak people out on two occasions but I think that’s always going to be the case with this chair because of how the spider-trac suspension works – when i go up a steep ramp it shoves me really down onto my back castors and the front castors come slightly off the ground. I did 93 miles in my chair this month and set a new record for the most miles…

  • 2016,  attitudes,  complaints,  courage,  CP related,  customer service,  disability,  Uncategorized

    So Take Me As I Am

    (title is a lyric from the Meredith Brooks song Bitch) A couple of weeks ago I was asked how I’d enjoyed a show I went to by a member of staff there who I know. I had enjoyed it but there had been one thing that had happened – which was tangentally access related – that had really irritated me.  It was totally inconsequential and unlikely to be repeated but it had had an impact on my enjoyment and they asked so… I said “If I could just make one slightly bitchy point….” More recently than that I discovered that the actions of someone else have left me with a…

  • 2016,  C-A-B,  disability,  disability normal,  Uncategorized

    An Unexpected Revelation

    At CAB today we did some training on how to support clients who are appealing disability benefit decisions. What to do, what type of information to put in the various letters (for mandatory reconsideration) or forms (for appeal). And the subject of getting dressed came up. So we covered  the need to check how long it takes, do they avoid certain items of clothing or look for certain fastenings because that’s the only type they can put on (for example I can dress myself but I mostly wear trousers I can pull on and don’t wear socks as I can’t get them on and my shoes sometimes fall off as…

  • 2016,  disability,  Paralympics,  Uncategorized

    Yes I Can

    Channel 4 have a released an advert for the upcoming Paralympic Games.  It’s once again based around the “superhumans” concept they used when broadcasting the Paralympics in 2012. I like this advert. I like the way it shows lots of disabled people doing both sport and everyday things like brushing their teeth.  I like how it makes disability both an in your face thing you can’t avoid and a normal thing. I also especially like the fact that signed, subtitled and audio described versions are available making this a really inclusive, accessible advert. That’s fantastic. At the same time I’ve been reading and hearing a lot of things about how…