• 2015,  acceptance,  attitudes,  books and reading,  disability,  fiction,  language,  quotes,  Uncategorized

    “Special Needs”

    Language around disability is a really tricky thing. Some terms are acceptable to some people and completely unacceptable to others. Some are fine for disabled people to use amongst themselves or to refer to themselves but problematic when used by strangers.  And there are times when disabled people argue amongst themselves about the terms.  People first language and identity first language are two of the biggest culprit’s there. One term that I’ve been saying I don’t like and arguing against for the last few years is “special needs”  I can explain why I don’t like it but it’s something I find others always agree with although some people do come…

  • 2015,  A to Z blogging challenge,  acceptance,  access,  disability,  Uncategorized

    I is for…

    I is for Impossible As a disabled person and particularly as one who is both life long disabled and a woman there can be a lot of barriers in my way. Actual physical access is the big one although awareness of that and facilities are improved a lot and the amount they’ve changed just within my lifetime is huge.  That’s not to say there isn’t a long way to go because there is.  I just read an interesting blog by Anika about that. Attitudes and awareness are in many ways a much bigger barrier.  If people refuse to understand why I can’t be carried down a flight of stairs or…

  • 2015,  blogging,  carnivals,  CP related,  depression,  disability,  disability blog carnival,  disability blogs,  disability voices,  I want to change the world,  internet,  personal,  perspective,  questions,  things people say,  thinking,  twitter,  Uncategorized

    Rotation Curation for #Disability #rocur

    I’ve been curating the @OxfordIsYours twitter account.  It’s a RoCur (Rotation Curation) account for Oxford and the person who runs it said living in Oxfordshire counts. Basically RoCur is where there’s an account (often on twitter) where people take a week at a time to run it and share their experiences and tweet on the subject.  Most of these relate to places – like with Oxford Is Yours I’ve been tweeting about where I’ve been and what I’ve done – but some relate to hobbies or jobs or organisations or anything else. I’ve been enjoying it and have learned about a place in Oxford I’m going to visit soon I…

  • 2015,  books and reading,  disability,  reviews,  Uncategorized

    Three Amazing Things About You by Jill Mansell

    I received a free copy of Three Amazing Things About You by Jill Mansell to review on this blog. From the No. 1 bestselling author of THE ONE YOU REALLY WANT comes a poignant romantic novel about a young woman whose time is running out. Not to be missed by readers of Jojo Moyes and Erica James. Jill Mansell’s enchanting new novel will drive readers to seize life with both hands and make the most of every minute… Hallie has a secret. She’s in love. He’s perfect for her in every way, but he’s seriously out of bounds. And her friends aren’t going to help her because what they do…

  • 2014,  books and reading,  CP related,  disability,  disability normal,  guest blog,  Uncategorized

    Emma, Elsewhere

    If you were looking for a blog post from me today you’ll have to wander over to Disability In Kidlit where a discussion post I contributed to has just been published. Say What You Will is a YA book by Cammie McGovern where one of the main characters has CP and the other OCD.  If you’re like me and in the UK you’ll find it in book shops under the title Amy and Matthew. ***This link contains spoilers but this post on my blog hopefully doesn’t*** Emma Crees, Courtney Gilfillian, and s.e. smith review SAY WHAT YOU WILL I really enjoyed the discussion and getting to chat with Courtney and s.e. …

  • 2014,  disability,  things people say,  Uncategorized

    Polite Small Talk

    I meet usually at least two new people each week through CAB.  If I see them as clients I can often find out a lot about them.  They rarely learn much about me.  I do tell them my  name but often that and the fact I’m sat there in a powerchair is all they learn about me. I also do resident involvement stuff with the housing association I rent from.  I’ve made one really good friend through that and I’m friendly with several others.  But I’ve met loads of people there.  And also because I’ve done disability awareness talks there for staff and tenants there have been a few occasions…

  • 2014,  disability,  Uncategorized,  wheelchair

    On knowing other wheelchair users

    Recently I was in a coffee shop waiting for a friend.  I’d gone a bit early to do some writing (which didn’t happen in the end) and as I was queuing for a drink a very vague acquaintance was in the queue in front of me.  They turned and said Hi. I said hello and asked how they were and we chatted a bit.  Briefly but friendly, but not really involved.  I don’t know this person and I don’t think we have much in common so I guess that’s how that’s going to stay. They then mentioned having seen someone we both know recently who for the purposes of this…

  • 2014,  disability,  quotes,  Uncategorized

    We’re all going on a quote hunt

    I’ve been looking at disability statistics lately.  I wanted one particularly statistic and ended up getting sucked in by several different ones.  But that’s a story for a different blog entry.  One that I don’t feel like writing right now.  I was then thinking about one of those statistics and thinking that I’ve read a quote similar to it.  I was pretty sure I’d shared it here so I went hunting through my quote entries.  I don’t think it actually is here but I found several I’d forgotten about and thought I’d reshare. “If someone asked you ‘can you swim a mile?’ you’d say ‘nah’. But if you found yourself…

  • 2014,  comments,  disability,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    Went to get my blood pressure checked (normal and I suspect I’ve now had “white coat hypertension” added to my records given how very very high it was when I saw a new to me GP last week) and have some blood taken. The results of the bloods came back a few days later as “normal” which isn’t the most reassuring thing ever as I’d rather be told what they actually are along with the fact they’re normal. But that’s something to take up with the GP at a later date rather than the receptionist giving me the results. Anyway I was talking to the healthcare assistant about the fact…

  • 2014,  access,  disability,  Uncategorized

    When Disabilities Collide

    I recently met a disabled person I hadn’t met before. We were both at the same event. We spoke but only in the context of the group, about stuff to do with the event which had nothing to do with disability..   You know how they talk about gaydar? Well, if there’s such a thing as CP-dar this person really set mine off.  I don’t know that’s what their disability is but I’d put good money on their being a non-wheelchair using CP-er (or at least they weren’t using a chair at that point) Today an email went round.  There’s this training workshop that sometimes happens.  The nearest place is London…