• 2013,  BADD,  disability,  disablism,  discrimination,  Uncategorized

    Bored

    I’m bored. I’m bored of being seen only as the one in the wheelchair. I’m bored of my disability being all people remember about me I’m bored of being defined by my CP. I’m bored of complete strangers demanding to know how long I’ve been in a wheelchair Of them asking “what happened?” And then when that doesn’t get the answer they want demanding to know “what’s wrong with you? I’m bored of fighting. Of having my concerns ignored Of asking for something and having it decided for me that something else will do. I’m bored of saying that I need something and explaining why. Then having that explanation ignored…

  • 2012,  acceptance,  access,  discrimination,  freedom,  friends,  frustrations,  I want to change the world,  influences,  Life,  mental health,  nano group,  personal,  powerchair,  Quickie Salsa,  quotes,  Uncategorized

    Rekindled

    I’m reading a good book at the moment.  I hope to finish it tonight and I’ll review it for my blog in the next few days most likely.  When I flicked to the back to see how many pages it has I noticed that on the page after the end of the story there is the following quote. “Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light.” Albert Schweitzer I’ve had a tough year I think it’s fair to say.  And things are greatly improving and I feel like I’m not in…

  • 2012,  acceptance,  advocacy,  Attempts at World Domination,  CP related,  disability,  disability normal,  disablism,  discrimination,  influences,  normal,  perspective,  Uncategorized

    Happy Tears

    I was asked to speak at an equality event today. About the access group (AFA) I’m chair of and a bit about my own story as a disabled person. I think it well. I didn’t write a speech, I had a few ideas but wanted to just talk off the cuff. It helped that this is I think the third time I’ve explained to people what and why AFA is (although previously I’ve only done so in informal settings). The very first idea I’d thought of when thinking it over I forgot to use. I talked about how I don’t suffer from CP because it’s all I’ve ever known. How…

  • 2012,  acceptance,  access,  advocacy,  Attempts at World Domination,  Cheerful Stuff,  depression,  disability,  discrimination,  so you had a bad day,  songs of my life,  Uncategorized

    Loser Like Me

    This entry may come across as cagy. It is deliberately so. I’ve been dealing with a completely ridiculous access fail for the past 12 weeks. Basically it’s done a complete number on my self confidence and depression, serving as a weekly reminder every Thursday that I’m different and that I’m not worthy of what everyone else has. Twelve weeks of being told they’d made a decision to do X about including me and then suddenly two weeks later we’ll do Y or oh no Z instead. It is dealt with. I’m not exactly enamoured with the reasonable adjustment type solution they’ve come with. Full the same as everyone else access…

  • competitions,  disability,  discrimination,  fiction,  short story,  Uncategorized,  writing

    >Unreasonable Adjustments

    >I wrote a while ago about entering some creative writing competitions.  I heard yesterday that I didn’t win the last of them.  Which I’m totally fine with, I didn’t expect that.  I did pay extra for a critique and whilst a little hard to read it is very useful.  I do agree with a lot of what the critique says although this remains a piece I am proud of.  I thought I would share it below.  As yet I haven’t made any changes. Feedback is welcome Unreasonable Adjustments “You have the run of my home”  said Lady Howlett ending her welcoming speech and sweeping gracefully from the room. The run…