• 2013,  acceptance,  benefits,  DLA,  ESA,  guest blog,  perceptions,  personal,  Uncategorized,  writing

    File this under “you couldn’t make it up.”

    Last Wednesday I got the news that I’ve been awarded ESA for two years. I’ve been put straight into the support group. It’s definitely the right decision and now I’ve had a chance to think about things and calm down I’m relieved its sorted and ok with it. But it’s not a comfortable place and if I’m completely honest I felt like I must be much more disabled than I realised. I wrote more about that, the ESA process and how it relates to me over on Bea Magazine And then yesterday I got a letter telling me about my DLA entitlement for this year. And all about how DLA…

  • 2013,  benefits,  books and reading,  DLA,  reviews,  Uncategorized

    Bad Mothers United by Kate Long

    Feels like ages since I’ve written a book review. It actually isn’t on the grand scheme of things but its certainly been longer than I would like! I have a few coming up in the next week though so that should be good. There’s no real reason for the break other than I’ve not had much time for reading and also I chose to reread some favourite stuff instead of tackling new books. ANYWAY. Simon and Schuster sent me an advance copy of Bad Mothers United by Kate Long. And then I got chatting to Kate on Twitter and she kindly sent me a signed book plate. This is the…

  • care,  DLA,  guest blog,  The Broken of Britain,  Uncategorized

    >Imagine You’re Four

    >This post was written by Kaliya Franklin and originally appeared at Benefit Scrounging Scum.  It’s reposted here with permission Imagine you’re four. You love your parents, your friends, the way the light comes through your curtains early in the morning, twinkling on the walls while you wait in your princess room patiently for mummy and daddy’s wake up time. Your favourite things are pink ballons and fairies, when it’s all a bit confusing around you you know you’re safe as long as you can catch sight of those pink flashes and know mum and dad are close. You love to give cuddles, hugs so tight there’s no room to wiggle…

  • DLA,  jazzy,  naidex,  powerchair,  Uncategorized

    >Updatey Updateness on the Powerchair Armageddon Situation.

    >I heard from the wheelchair engineers first thing this morning.  They’ve made some adjustments my chair and got it working again by bending some frayed wires and reconnecting them (I think) but asked if I wanted the piece properly replacing.  Baring in mind that they said “it could last a week or it could last six months” and the replacement part is much less than anticipated (as its a different part to the worst case scenario part they thought and told me about) I told them to go ahead and replace it.  They’ve also managed to get the freewheel working again – it was just disconnected or had worked I…

  • CP related,  depression,  disability,  DLA,  Family,  incontinence,  my flat,  Uncategorized,  wheelchair

    >My submission to the consultation on DLA reform

    > I am lifelong disabled. Always have been and always will be.  Specifically I have cerebral palsy (CP) and use a wheelchair 95% of the time.  I’m able to stand and take a couple of steps, enough solely to move between bed, wheelchair, toilet, powerchair etc.  I also have clinical depression and anxiety.  This was not caused by my physical disability but is made much worse by it.  I was diagnosed with this in 2003 and have been on treatment for it almost continually since then.  I have many concerns about DLA reform. As someone who is lifelong disabled I’ve been in receipt of DLA at the rate of Middle…