It’s generally been a terrrible week but there have been a few good moments and I’ve had a great day today despite a few moments of anxiety (new people, train faffing)
I’ve had three days of antibiotics (nitrofurantoin 100mg x 2 daily) for a UTI. And I ended up feeling physically appalling. Sick, dizzy and yucky on top of the usual UTI symptoms. Finished those yesterday and feel better today which sort of proves the theory that I’ve had for a while that nitrofurantoin makes me nauseaous. As UTIs can make me feel sick it’s been hard to tell. I’m not 100% right yet.
I had a whole night of insomnia. Which may or may not have had to do with the fact that i felt too crappy mid afternoon that day to stay up and slept deeply for two hours. It is unusual for a nap to keep me up all night though.
Depression has been kicking my ass and I think I probably hit the point where I was as bad as I was in the days before I was first diagnosed. I’ve been to the doctors and am back on sertraline – 50mg a day though rather than the 100mg I was on until last year. Well, at the moment I’m taking half a tablet a day for a few days/week to wean on to it slowly. I actually ended up having to tell CAB a day in advance that I couldn’t come in so I could go to that appt (when I rung and got an appt with the GP I wanted to see the day before I wasn’t going to say no) but it’s a good job I did because I was so yucky with the UTI I’d have not been able to go in anyway.
But as I said there have been a few good things.
I was well enough to go to a show on Friday night – Stephen K Amos. Well, I still felt crap but I felt OK enough to go especially given I was only 10 mins from home so if I’d started feeling rubbish I could have got back easily. He was good. A funny guy and a good performer but not one of my favourites. I probably wouldn’t go and see him live again but I’m really glad we went as it was a good evening.
Today I went to Oxford and sort of met up with the NaNo group. A new ish member and I had been chatting online and had agreed to meet up. And then a meet up was set up by someone else for the group. So I went in and found her easily and we chatted loads and enjoyed it. I did eventually figure out that the rest of the group (two I’d met once or twice and two I didn’t know) were over the other side of the Jam Factory but we were having quite a specific conversation which we were enjoying and they were writing so we stayed there. I had a bit of time after she left and debated going over to say hi but decided against it as I didn’t have long. I got my book out and read a couple of pages then one of them came over and said “Emma?” and I joined them for 10 mins before coming home. I enjoyed it.
So things may be looking a little brighter. But there’s still a long way to go.
♥ I still don’t have my new wheelchair cushion. I had my fitting appt at wheelchair services but that was the worlds biggest waste of time because they didn’t have it. The story is a bit more complicated then that and totally ridiculous as well as very badly handled. I made a complaint to PALS about that. It made me feel better if nothing else.
♥ I was diagnosed with anaemia about ten days ago. It was borderline but based on symptoms I’m being treated with ferrous fumarate (prescription strength iron supplements) three times a day for 8 weeks. I keep wanting to call it ferocious fumarate. Sophie said when she was anaemic and had iron pills she felt great. I’ve been feeling crap – nauseous to the extent that on Wednesday I was on my way home and I was convinced I was going to projectile vomit on the street (I’ve not been sick at all). I decided to persevere over the weekend and I’ve felt ok yesterday and today.
♥ I had my 6th UTI of this year. GP I saw this time thinks I’m getting cystitis and not full blown infections and prescribed me nitrofurantoin to keep in the house. 1 on symptoms and a litre of extra water then give it 24 hours. She also said she thought if I took 1000mg vitamin c a day I’d stop getting infections. We shall see.
♥ I’ve started trying to take better care of myself. Baby steps is the plan. At the moment that’s taking most of my meds (well, it was meant to be all but I appear to have run out of sertraline). It was also improving my sleep pattern but that’s slipped big style this weekend.
>For the past few weeks I’ve been really struggling with my depression. Partially I think because I’ve not been getting out and doing stuff as much as I usually would for various reasons. Thursday was a particularly bad day although I did get out for coffee with a friend (although not coffee as I don’t drink that or tea). I’ve been finding that I can get out and do stuff, make it to appointments and the like but the energy and motivation to do stuff at home has been severely lacking and lots of things have slipped – like this blog.
So on Thursday I came to a decision and made plans to meet up with a friend on Friday. We met in Oxford and had a wander round the Ashmolean which was really good fun. Managed to see bits of it I didn’t see last time but I still don’t think I’ve seen all of it by a long shot. I went slightly early and managed to get a couple of small errands done too. I did feel better for that. I also came to the realisation that if things didn’t improve soon I’d need to go to the doctors.
Saturday the same friend came round and we sat and chatted for ages and then went to the cinema to see Pirates of the Carribean – my CEA card making it much more affordable and doable. That was my first ever Pirates film and I have to say I liked it although everyone tells the rest are better. I have two offers of a borrow of the DVDs so we’ll have to see who gets to me first and then I can pass judgement. I got some washing done before she came which was the first washing I’d done in a couple of weeks.
Today too I have felt a little brighter than previously although I do plan to go to the doctors. I attempted to make an appt today but due to the way the system works that wasn’t possible. It’s looking like I might end up going on Friday but I’m not sure yet.
And as some of you may have seen on Twitter, yesterday was a rubbish day for various other reasons.
>I’m slowly getting over this UTI. I am however on my second type of antibiotics for it.
I was put on Nitrofurantoin on Friday. 100mg x 4 daily for five days. Normally people are given 50mg x 4 for three days but I warranted a double dose and extra days due to my history. You know it’s a bad UTI when the doctor takes one look at the sample and goes “yeah you’ve got a UTI my love” before he’s even stuck a test strip in it. Also, how fast did that strip change colours?!
By Monday lunch time I still felt absolutely shit and that was after 3 days worth. My back was really starting to hurt and I was beginning to panic it was going to my kidneys. Rang and spoke to the duty doctor. Switched me to Cefalexin 250mg x4 daily for 7 days on the assumption the Nitrofurantoin wasn’t working which surprised me a bit as it’s worked for me before. I have had a lot of it in the past although not for a good few years. I took another sample up. Don’t know what it showed but it still had the signs which meant the dr knew I had a UTI before he tested it on Friday.
I’m feeling a lot, a lot better since I stopped the Nitrofurantoin and started the Cefalexin. In fact I was surprised how quickly I started feeling better. I still feel totally washed out and tired. I made it sailing yesterday but it took sleeping most of the morning, going back to bed for an hour and a half rest in the afternoon and a very early night. And I only managed a very brief sail – when I came in they all asked what was wrong and didn’t I want to go out for longer?
Today again I managed some of my usual Wednesday stuff but it took staying in bed until the last possible minute, a long sleep in the afternoon and I’ll be headed to bed after Masterchef me thinks.
Logically I do realise that a lot of this has to do with going to Naidex last week. I didn’t drink enough one of the days (or rather I did but didn’t space it well enough to keep my bladder flushed out) and I got really tired which would have taken me a few days to get over and add in this infection and it’s just all worse for it. But I must admit to being really freaked out. I have a long and painful history of UTI’s and I’ve needed months of prophylactic antibiotics before to really break the cycle and totally clear them. And last year one went to my kidneys and I was sat with an out of hours duty doctor asking if I wanted to be hospitalised. I’m just hoping that this will be a one off and not the start of another lot of problems…