• 2013,  acceptance,  access,  argh,  attitudes,  CP related,  difficulties,  disability,  drama,  frustrations,  powerchair,  Quickie Salsa,  ranting,  sarcasm,  so you had a bad day,  things people say,  Uncategorized,  wheelchair

    A word of advice

    For those who don’t know me. Don’t try offering me unsolicited advice or helpful suggestions about my wheelchair and then go off on me when I tell you’re wrong and calmly explain the reasons why I do what I do and/or can’t do anything else. Telling me where you saw me cross the road is dangerous is one thing. Repeatedly screeching at me that I’m going to get myself killed when I tell you its the only place I can is upsetting. And talking to me like I’m stupid and telling me that I do have a choice and could cross the road elsewhere is another that shouldn’t happen. Suggesting…

  • disability,  drama,  Life in 2009,  Uncategorized

    >A week in the life of a moaning minnie constructive complainer

    >I’ve sent multiple e-mails of complaints about things this week.  I’m a complainer and I kinda like it because if we don’t complain how will things change? I e-mailed my care agency and really threw my toys out of the pram so to speak over an issue.  They reply that they have noted my comments and will be discussing them.  Good.  They didn’t apologise which is a little annoying but given I fully expected (from past experience) they wouldn’t reply… I did kinda feel like I was going over the top in what I said but it was what I felt and sometimes making nice doesn’t get results.  The thing…

  • drama,  Uncategorized

    >Amongst all the drama I forgot to title this post!

    >Soooo much drama today it’s unreal. And it’s left me with no energy.  So all in I’ve gone from really excited about some possibilities to kinda low. The short version: Fell out of my wheelchair, bruised my bum and bashed my shoulder.  Pretty sore as a result.  Situation normal. Mentioned it in passing to my carer and whilst falls might be just one of those things to me she then spent the hour she was here trying to convince me to go see a doctor.   And when she realised I was having none of that switched to trying to convince me to let her get a doctor out to…

  • drama,  trains,  Uncategorized

    >”I’m NEVER doing that again.”

    >For reasons only known to one person and one person only instead of getting the train to Oxford on Saturday I was sent in an accessible taxi. I’d had a phone call from Oxford Friday evening to say their lift was broken but they could let me out of another door (not public use normally) which would avoid my needing to use the broken lift.  Would that be a problem?  And I said no so long as they showed me where I was going as it would mean I was leaving from completely the opposite side of the station.  Fine, she says, I’ll walk you round to the front of…

  • argh,  care,  disability,  drama,  Uncategorized

    >Poor little crippled girl

    >I had a new carer tonight.  For so long now I’ve just had the same person that having someone completely new (and having someone who rarely does my care as I did last week) was strange.  Time was having new carers was my normal and I had my “new person” speech down to a t. Now?  Not fun. Didn’t help that several of her comments had me convinced that she saw me as a “poor little crippled girl.”  In fact at one point I disagreed with her over something and said “you’re looking at that from the point of view of ‘she’s a poor disabled girl'” which she denied.  Points…

  • disability,  drama,  Uncategorized

    >Irony – wheelchair stylee

    >When I first got my quickie five years ago the footplates were literally the bane of my existence.  I have no idea how many times they broke but it was many many and it seemed to happen every couple of weeks.They bent out of shape, they snapped off (repeatedly), they wouldn’t stay up when I folded them.  Then I stopped using it for maybe 18 months.   The kuschall which I switched too wasn’t great for me and Mum doesn’t like it.  To be honest I’m glad I gave it a try but it’s not a road I’d go down again.  My cousin was getting married and we knew the…

  • awareness,  drama,  Uncategorized

    >Alarms and Human Responses

    >I went out to a local pub for lunch today; I go there on an irregularly regular basis with various different friends.  And for once in my life I was actually the first person to get there (I know! don’t faint). I started pushing a chair away from the table using my feet and the woman who runs it came over to help me and she moved it well away rather than my just moving so i could get there and abandoning it.  She made a comment about them having different size/shape/design tables and that some were better for wheelchairs than others they had found.  I thanked her and said…

  • argh,  disability,  drama,  Uncategorized

    >”save yo’ drama for yo’ mama”

    >How many of us out there blithely go off to the public disabled toilets in train stations, shopping centres, restaurants and other places?  How many of us assume that were we to fall or otherwise need assistance we could pull the red alarm cord, the light would go on and the bell would buzz incessantly and that help would come? I’ve seen people respond to the disabled loo alarms in The Oracle in Reading (shopping centre) and I assumed it happened in most places. I’m shocked, sickened, and even a little scared that it doesn’t seem to be the case I was waiting for a friend at London Waterloo  train…