• 2013,  acceptance,  achievements,  Attempts at World Domination,  disability,  friends,  Uncategorized

    The National Diversity Awards

    So if I were to mention the name Hannah Ensor or Stickman Communications I suspect a lot of people who read this would know who I meant. Hannah and I have known each other since our school days. Back then I was rocking the wheelie thing but not quite as well as I do now. I was walking a lot of the time which took a lot of energy and I’d fall a lot. I didn’t hurt myself often having learnt mad falling skills. And the level of acceptance i have now (possibly better referred to as my “sod it quota”) was an unthought of dream, Hannah was this accident…

  • 2012,  acceptance,  access,  discrimination,  freedom,  friends,  frustrations,  I want to change the world,  influences,  Life,  mental health,  nano group,  personal,  powerchair,  Quickie Salsa,  quotes,  Uncategorized

    Rekindled

    I’m reading a good book at the moment.  I hope to finish it tonight and I’ll review it for my blog in the next few days most likely.  When I flicked to the back to see how many pages it has I noticed that on the page after the end of the story there is the following quote. “Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light.” Albert Schweitzer I’ve had a tough year I think it’s fair to say.  And things are greatly improving and I feel like I’m not in…

  • 2012,  Cheerful Stuff,  Family,  friends,  fun stuff,  good things,  songs of my life,  surprises,  things that make me smile,  Uncategorized,  unexpected things,  yayness

    Party Memories (part one)

    Small bullet point memories of my 30th birthday party.  I’ve been putting off writing this until I feel less depressed.  I do feel like things are moving forward from that point of view but they’re still bad.  It occurred to me however that I might feel better for thinking and writing about something very cheerful so here goes… It was really, really good fun. I danced so much that my back hurt most of the next day.  That was totally worth it. I’d really agonised over the venue because the party room and bar are on one floor and the two disabled loos are on another (right next to each…

  • 100 days of writing,  2012,  disability,  down,  friends,  pain,  Poetry,  Uncategorized

    >I Should Be

    >Day 14 of 100! A bit of bad news and very high pain levels led to an accidental 3 hour nap and my not being my usual self. I Should Be I should be I should be writingI should be sleepingI should be doing the washing.I should be doing my physio.I should be sending emailsExercising, knitting or reading a book. There are many things I should be doingBut I’m not I’m sat hereBack hurtsSpasming musclesAnd spasticityIn my legsLike youWouldn’t believe Bad news hitsMy mood is Sad. But meds meanI’m not in bitsWithout themI’d really be that Bad. My body hurtsOne wayMy mind Another Both conspireTo stop meIn my tracks Suddenly…

  • Family,  friends,  NaNoWriMo,  tv,  Uncategorized,  writing

    >Somethings are more important

    >I had hoped to update my blog this evening with the news that I had won NaNoWriMo for the third fourth (was sure it would be the third but then after I hit publish I looked on the NaNo site which says otherwise) time.  But that was not to be. I am so close to winning that it’s pretty much a given that will happen.  Just not today.  I have about 4K left I think.  In all honest it’s a bit of a mess though as I’ve ended up writing bits of both the projects I considered dong for NaNo and a tiny bit of a short story that landed in…

  • botox,  disability,  friends,  frustrations,  language,  Paralympics,  physio,  serial casting,  spasticity,  Uncategorized

    >Interesting Times

    >Lately I feel like I live in Interesting Times as in the Chinese saying.  It’s certainly been an interesting week. Monday my powerchair broke down with no warning. In the middle of Sainsbury’s car park. In the drizzle. Although luckily it wasn’t raining as such at that point in time. I tried to talk a Sainsbury’s employee through putting my chair into freewheel but he couldn’t do it (whether my instructions weren’t right/clear enough or he didn’t force it hard enough I don’t know) so my plan of getting a taxi back here fell through. I called my parents house on the off chance someone was there not expecting there…

  • blogging,  friends,  memories,  safety,  Uncategorized,  uni

    >Looking Back – and then briefly forward

    >I wrote my first ever blog entry almost 11 years ago.  A couple of days ago I started playing with the “you might also like” feature on this blog and started reading some of my older entries (which go back to March 2006 on her as my Wheelchair Princess archives are also here).  And then yesterday I went back even earlier and was reading stuff from 2003/2004.  This evening I went all the way back to the very beginning 8th November 2000. And it really hooked me in. It’s really interesting going back all those years and seeing what I was up too then.  My style back then seems to…

  • disability,  friends,  Monday Music,  Uncategorized

    >Monday Music – Space Rabbits of Brocklevoon

    >Myself and two friends went to see The Spooky Men’s Chorale recently. They were supported by Kate Rowe. And as soon as I heard her Space Rabbits of Brocklevoon song I knew it had to be a Monday Music on my blog. Why? Spoons. The whole song is based around spoon stealing. You could tell the audience liked it. But with two of the three of us using The Spoon Theory in our own lives sometimes and the third knowing of it. Lots and lots and lots of laughter. It was such a brilliant coincidence and a bit of an inside joke type because it had unique to us meaning.…

  • baclofen,  fluoxetine,  friends,  fun stuff,  meds,  naidex,  physio,  Sertraline,  Uncategorized,  uni

    >Updates

    >Recent happenings and not so recent things I’ve forgotten to mention but occur to me now: I’ve made some baby steps on the way to starting to lose weight again so I’m hoping the scales will start moving downwards again very soon!  Specifically I’ve given up coke and chocolate again. My leg is still nasty but is improving very slowly.  I’m really glad they gave me more antibiotics after all because clearly they are doing something.  Being on this level of antibiotics and having been on antibiotics for so long is making me feel a bit rubbish though!  I’ve been resting a lot these last two days and trying to…

  • depression,  doctors,  friends,  Uncategorized

    >An Explanation for my Absence

    >For the past few weeks I’ve been really struggling with my depression.  Partially I think because I’ve not been getting out and doing stuff as much as I usually would for various reasons.  Thursday was a particularly bad day although I did get out for coffee with a friend (although not coffee as I don’t drink that or tea).  I’ve been finding that I can get out and do stuff, make it to appointments and the like but the energy and motivation to do stuff at home has been severely lacking and lots of things have slipped – like this blog. So on Thursday I came to a decision and…