• 2017,  Action 4,  action3,  hospital,  jay2,  jay3,  lymphoedema,  spasticity,  wheelchair

    A new chair

    I’m getting a new manual wheelchair provided by the NHS. I had an assessment with a rehab engineer and an OT today.  There was some discussion and after a few minutes I said “So I am getting a new chair then?” And the engineer who is someone I’ve seen in clinic before said “Emma, the only reason we’re letting you go home in that chair is because we don’t have anything here to lend you and we can’t send you home without a chair. If we had something else you’d be in it.” They also got a new type of cushion out for me to try and the OT declared she…

  • 2015,  dose of happy,  Emma,  Family,  good things,  hospital,  photos,  Uncategorized

    Auntie Emma

    Last week I became an Aunt for the first time! Several of my cousins have children as do one or two friends and lot of those kids know me as Auntie Emma (something which surprised me).  But last week I became a proper Auntie.  My brother and sister in law welcomed their first child which was really exciting. Henry David Nicholas was born Tuesday 13th October 2015 weighing 8lb 1oz. The level of excitement in the Crees family really had to be seen to be believed. I think in the past week most of us have fallen in love with the baby but calmed down somewhat. I haven’t seen my…

  • 2013,  attitudes,  awareness,  complaints,  hospital,  jay2,  Uncategorized,  wheelchair

    Making a Difference

    I was rereading some old blog entries earlier. I was planning to write something (not this post) and I thought maybe I’d written about it last year. I didn’t find anything but what I did come across was this post. I thought it was kind of apt given a piece of news I received today. After three and a half months I finally received my new wheelchair cushion. It’s strange. It’s good and it’s comfy. But it almost feels off. This is set up differently to my old one and I’m not sure if that’s why (I have the stuff to change the set up to my old one if…

  • 2013,  blogging,  books and reading,  hospital,  Uncategorized,  you know...

    You know you’re a book blogger when…

    …you’re people watching outside a hospital whilst on patient transport and most of your thoughts revolve around the people you can see’s reading material. Yup, I had a hospital appt yesterday. and the patient transport took a guy from near where I live to one of the other hospitals in Oxford before taking me to the hospital ten minutes drive away and my appointment at wheelchair services (which, frankly, lets not talk about). So I’m sat in the transport outside the hospital for I’d guess ten minutes. I sort of like to look around and see what’s what. Sometimes ideas come from that for writing. I’m noticing they whoever designed…

  • 2012,  botox,  CP related,  hospital,  neurology,  serial casting,  Uncategorized

    A year later

    OK so it’s not quite a year later but it’s as close to a year later as I’ll get. Last July I had my first lot of botox and that was then followed up with serial casting in August. The TL;DR version for anyone who doesn’t want to follow that link to all my entries on it is as follows. Serial casting was not a particularly fun experience but I saw a lot of improvement. Unfortunately not as much improvement as to get my feet into a “normal” position but the amount (approx 20 degrees improvement in range and position improvement) is agreed by everyone to be huge. Yesterday I…

  • 100 days of writing,  2012,  hospital,  Poetry,  Uncategorized

    >Hospital Thoughts

    >Hospitals are interesting places to people watch and get inspired for writing. This hopefully catches some of the experience. In a way I wished I’d taken my iPad and written there but I enjoyed reading my book. Day 36 of 100 Hospital Thoughts Hospital smellGrotty food like school dinnersToo many people in a small spaceAnd some kind of cleaner. Paramedics and transport techsNurses, doctors and other staffAdd in patients, visitors and familyA constant swarm of people Wheelchairs wheel all over the placePowerchairs glide silentlyStretchers trundle and squeakAnd crutches add an extra rhythm to footsteps An alcohol wipe gets rid of bacteriaThe smell probably scares them away“sharp scratch now”The drug stings…

  • 100 days of writing,  2012,  baclofen,  botox,  hospital,  neurology,  physio,  spasticity,  Uncategorized

    >The Man With The Needles

    >I’m going to see my neurologist tomorrow in spasticity clinic. Hopefully this will be a joint appt with my physio (it’s meant to be but the track record on that isn’t good) to discuss whether I need more Botox. And for me to have the jabs if so. I suspect that will be the case. I also wonder if my baclofen will be upped. I described that to a friend as “going to see the man with the needles” last week and thought that was an intriguing idea for writing. Today is day 35 of 100 which feels like a huge number of days achieved. Especially as I almost forgot…

  • action3,  Dad,  hospital,  jay2,  jay3,  laterals,  OT,  physio,  shoes,  spasticity,  spine align,  Uncategorized,  wheelchair

    >Details on my new seating

    >Two weeks ago I went to Wheelchair Services for a new assessment. Two very productive hours later I left with a completely pimped chair and all new seating. And it was so easy.  I didn’t have to fight for anything and didn’t need to argue my case at all – the therapist simply saw me and talked to me and made suggestions.  That was so different to my last assessment where I thought I was constantly having to push for things (and where I didn’t get what I needed looking back).  I’d actually made my Dad take the afternoon off work to take me so I had back up –…