• 2017,  Action 4,  action3,  hospital,  jay2,  jay3,  lymphoedema,  spasticity,  wheelchair

    A new chair

    I’m getting a new manual wheelchair provided by the NHS. I had an assessment with a rehab engineer and an OT today.  There was some discussion and after a few minutes I said “So I am getting a new chair then?” And the engineer who is someone I’ve seen in clinic before said “Emma, the only reason we’re letting you go home in that chair is because we don’t have anything here to lend you and we can’t send you home without a chair. If we had something else you’d be in it.” They also got a new type of cushion out for me to try and the OT declared she…

  • 2013,  attitudes,  awareness,  complaints,  hospital,  jay2,  Uncategorized,  wheelchair

    Making a Difference

    I was rereading some old blog entries earlier. I was planning to write something (not this post) and I thought maybe I’d written about it last year. I didn’t find anything but what I did come across was this post. I thought it was kind of apt given a piece of news I received today. After three and a half months I finally received my new wheelchair cushion. It’s strange. It’s good and it’s comfy. But it almost feels off. This is set up differently to my old one and I’m not sure if that’s why (I have the stuff to change the set up to my old one if…

  • 2013,  jay2,  Uncategorized,  wheelchair

    Conditions of Loan

    I’m going to start this entry with a Facebook status I posted on Friday. It’s the easiest way of cutting a very long story short. Requested a new wheelchair cushion. Waited six weeks and got sent part of a wheelchair cushion. Took the old disintegrating one apart and tried to fit new part to still working bit of old cushion. They’re different sizes. Couldn’t put old cushion back together as taking the cover off caused the gel to completely disintegrate. Covered in gel as is my floor. Called wheelchair services. They promise to get me a full new cushion with inserts. Manage not to shout at the OT about maybe…

  • 2012,  jay2,  jay3,  powerchair,  Quickie Salsa,  Uncategorized,  wheelchair

    >My new powerchair

    >[I’ve been trying to upload this with photos in it for two days now. For some reason it wouldn’t work so I’ve deleted them and will share them some other time. Just pretend there’s photos of my awesome chair in here] The new powerchair is great. I’m really enjoying it. Getting sick in the first week of having it and not being able to use it for a few days is seriously unfair. But such is life. There are a few small niggles but none are a big deal. One is that I had planned to use my Jay 2 deep contour cushion that I have in my manual in…

  • action3,  Dad,  hospital,  jay2,  jay3,  laterals,  OT,  physio,  shoes,  spasticity,  spine align,  Uncategorized,  wheelchair

    >Details on my new seating

    >Two weeks ago I went to Wheelchair Services for a new assessment. Two very productive hours later I left with a completely pimped chair and all new seating. And it was so easy.  I didn’t have to fight for anything and didn’t need to argue my case at all – the therapist simply saw me and talked to me and made suggestions.  That was so different to my last assessment where I thought I was constantly having to push for things (and where I didn’t get what I needed looking back).  I’d actually made my Dad take the afternoon off work to take me so I had back up –…

  • action3,  frustrations,  jay2,  jay3,  lyrics,  OT,  pain,  physio,  spasticity,  Uncategorized,  wheelchair

    >Don’t Look Back In Anger

    >I went for my wheelchair assessment on Wednesday.  And it went really well.  The details and all that are for another entry as I’d like for that to be a positive entry. For now lets just say that I’m trialling a new seating configuration and the question of whether I need a new chair as well is on the backburner at present.  So far I like my new seating but I think there maybe a few niggles which need ironing out in the long run. The thing is though I can’t help feeling a little frustrated and even angry.  I was assessed there in 2009 and I told them certain…