• 2017,  Action 4,  action3,  hospital,  jay2,  jay3,  lymphoedema,  spasticity,  wheelchair

    A new chair

    I’m getting a new manual wheelchair provided by the NHS. I had an assessment with a rehab engineer and an OT today.  There was some discussion and after a few minutes I said “So I am getting a new chair then?” And the engineer who is someone I’ve seen in clinic before said “Emma, the only reason we’re letting you go home in that chair is because we don’t have anything here to lend you and we can’t send you home without a chair. If we had something else you’d be in it.” They also got a new type of cushion out for me to try and the OT declared she…

  • 2016,  action3,  jay3,  laterals,  Uncategorized

    Wheelchair Woes

    So I was really happy. I finally after nine weeks+ had two working wheelchairs. My manual for the house (and the little bit out the house I use it for) and an absolutely amazing new powerchair that – teething problems aside – blows my mind. Only my manual had been making a really terrible noise intermittantly along with moments of not feeling right. I had no idea what was wrong with it and it was so intermittant that I didn’t see the point of calling the NHS maintenance team. I just knew they’d come out and it would be working fine at that point and it would be a waste…

  • 2012,  jay2,  jay3,  powerchair,  Quickie Salsa,  Uncategorized,  wheelchair

    >My new powerchair

    >[I’ve been trying to upload this with photos in it for two days now. For some reason it wouldn’t work so I’ve deleted them and will share them some other time. Just pretend there’s photos of my awesome chair in here] The new powerchair is great. I’m really enjoying it. Getting sick in the first week of having it and not being able to use it for a few days is seriously unfair. But such is life. There are a few small niggles but none are a big deal. One is that I had planned to use my Jay 2 deep contour cushion that I have in my manual in…

  • action3,  Dad,  hospital,  jay2,  jay3,  laterals,  OT,  physio,  shoes,  spasticity,  spine align,  Uncategorized,  wheelchair

    >Details on my new seating

    >Two weeks ago I went to Wheelchair Services for a new assessment. Two very productive hours later I left with a completely pimped chair and all new seating. And it was so easy.  I didn’t have to fight for anything and didn’t need to argue my case at all – the therapist simply saw me and talked to me and made suggestions.  That was so different to my last assessment where I thought I was constantly having to push for things (and where I didn’t get what I needed looking back).  I’d actually made my Dad take the afternoon off work to take me so I had back up –…

  • action3,  frustrations,  jay2,  jay3,  lyrics,  OT,  pain,  physio,  spasticity,  Uncategorized,  wheelchair

    >Don’t Look Back In Anger

    >I went for my wheelchair assessment on Wednesday.  And it went really well.  The details and all that are for another entry as I’d like for that to be a positive entry. For now lets just say that I’m trialling a new seating configuration and the question of whether I need a new chair as well is on the backburner at present.  So far I like my new seating but I think there maybe a few niggles which need ironing out in the long run. The thing is though I can’t help feeling a little frustrated and even angry.  I was assessed there in 2009 and I told them certain…

  • action3,  jay3,  jazzy,  powerchair,  Uncategorized

    >If My Chairs’ Had a Voice – A Blog for International Wheelchair Day

    >Today is International Wheelchair Day. As such the wheelchairs that are part of this A Writer In A Wheelchair blog are having there say after I dreamt of blogging a photo of my powerchair with a “I am in disgrace” sign on it. Because it is. Long story and it’s all on twitter anyway. My powerchair speaks… [A photo of my Pride Jazzy 1121 powerchair with a piece of paper with what she wants to say handwritten on it.] Happy International Wheelchair Day! I am a powerchair usually loved but currently in disgrace.  I broke down twice in 2 days, taking Emma’s freedom, making her housebound.  I’m not lucky enough…

  • action3,  impressions,  jay3,  Uncategorized,  wheelchair

    >Initial thoughts on the new chair.

    >I started writing a longer post about my new chair but for now some brief observations. It’s an action 3 wheelchair (invacare, don’t google it the standard ones look shit) but it has a Jay backrest on it. I’ve never been this upright in a wheelchair before. It’s really cool. It feels like it stretching my spine out which is probably a good thing. Or at least that’s the best way I can describe it. Also I think it would be physically impossible for me to end up slumped over in this chair. You know how they say “once you’ve tried…. whatever …. you’ll never go back.” ? This is…