• 2017,  antidepressants,  Citalopram,  courage,  depression,  disability,  fluoxetine,  perceptions,  personal,  powerchair,  Quickie Jive,  Sertraline

    A Little Bit of Life

    (I am surprised that with nearly 2000 entries on this site I’ve never used the title A Little Bit of Life before) Two bits of not so brilliant but they could be much worse news are in my life at the moment.  I don’t think dominating my life is the right term but they are definitely big factors in everything right now.  And not easy. Life is never easy. I will start with the slightly easier one first – my powerchair is broken. The easiest way to explain it is to say it has a broken castor.  It’s more complicated than that because of the spider-trac but basically it’s not…

  • 2016,  honesty,  mental health,  perceptions,  personal,  Self-Care,  sharing,  Things I am proud of,  twitter,  Uncategorized,  writing

    Safe Space

    A couple of weeks ago, a new collaborative blog – Safe Space – was launched. For the past year or so I’ve been unconvinced by the concept of “safe space” on the internet – a space where people can be free to share/be who and what they are completely without fear of abuse, hate, ridicule, triggers or trolling.  It seems like too big a goal both with how massive the internet and it’s trolling problems have become and the fact that for some people what is acceptable and OK can be what’s triggering, abusive or upsetting for others. Online (and in person) safe spaces are a worthwhile goal and one…

  • 2014,  C-A-B,  campaigns,  guest blog,  I want to change the world,  mental health,  my flat,  perceptions,  personal,  perspective,  political,  success stories,  Uncategorized

    On Volunteering and Housing Day

    Today is #HousingDay (hashtag housing day) a day designed to promote social housing and highlight all it does for people in the UK, how important it is and just what the need for social housing is. I know from my own experiences just how much having access to a flat that is fully adapted to my needs, is safe and secure (in terms of both safety and tenancy) and affordable is.  It’s more than a roof over your head it’s the ability to make plans and do things and get on with your life that might otherwise be impossible. And in both parts of my CAB  role (adviser/gateway assessor and…

  • 2013,  acceptance,  benefits,  DLA,  ESA,  guest blog,  perceptions,  personal,  Uncategorized,  writing

    File this under “you couldn’t make it up.”

    Last Wednesday I got the news that I’ve been awarded ESA for two years. I’ve been put straight into the support group. It’s definitely the right decision and now I’ve had a chance to think about things and calm down I’m relieved its sorted and ok with it. But it’s not a comfortable place and if I’m completely honest I felt like I must be much more disabled than I realised. I wrote more about that, the ESA process and how it relates to me over on Bea Magazine And then yesterday I got a letter telling me about my DLA entitlement for this year. And all about how DLA…

  • 2013,  blogging,  Family,  forwards,  internet,  interwebs,  letter unsent,  me me me,  perceptions,  personal,  perspective,  sharing,  thinking,  twitter,  Uncategorized

    Legacy

    I can’t remember where but a few weeks ago I read something that I’ve been thinking about on and off ever since. It said that in the future our descendants won’t need to employ traditional genalogy techniques to learn about us. Because what they know about us will be from our facebook posts, tweets, and blogs. I like that idea because it means that potentially (should it turn out to be true) it means those in the future will know a lot more about my past then I will tell them. And they’ll know more about me than I do my own ancestors. I knew all of my grandparents and…

  • acceptance,  advocacy,  attitudes,  awareness,  courage,  disability,  Disability Glossary,  honesty,  I want to change the world,  perceptions,  perspective,  tv,  Uncategorized

    Inspiration Porn

    Tonight is the yearly Children in Need appeal here in the UK. BBC One is taken over by a telethon for about seven hours. The idea is to raise money to help disadvantaged children. So you see video clips of children from other countries walking miles for water, young carers helping their mum or dad and disabled children doing things too. And it’s a given that those children will either look sad or have their story told using emotive language such as “suffers from…” Or “whilst other children are playing little Johnny must…” Interspersed with those clips are famous people doing silly stuff, frequent updates on how much has been…

  • 2012,  acceptance,  courage,  CP related,  perceptions,  personal,  Uncategorized

    Time and Change

    “Time, which changes people, does not alter the image we have retained of them.” ~ Marcel Proust. I was looking for quotes and I came across this.  It’s very apt particularly as I seem in be in a period of ongoing change in my life at the moment. I think some of the changes may have the potential to be very good for me once they’re finished with.  But not all of them were my choice or are under my control.  And a couple of them are pretty scary.  I had a pretty big panicked cry over one the other day. Not fun. I know that once this is sorted…

  • care,  perceptions,  trains,  Uncategorized

    >Perspective and a refreshing carer experience

    >Quite a lot of the other wheelchair users who live locally to me I know, at least to say hello to if nothing more. I keep seeing this guy around in a chair who I don’t know but his chair catches my eye as it’s covered in stickers and its red and it has an unusual control (or at least I’ve not seen it before). Today we were both on the train to Reading so I got a chance to chat to him and his carer. Mostly me and his carer doing the talking, you know what it’s like when two women with a common subject (disability/carers) get together. B,…

  • attitudes,  disability,  perceptions,  things people say,  Uncategorized

    >Dealing

    >Earlier in the week my landline phone went and it was a wrong number of a sort. I was sure it was actually a guy I know (he asked for “Stan” but then gave my exact phone number as the one he was after) and so I said “is that so and so, it’s Emma.” and it was and we chatted a little. I asked how he was and he said “oh struggling, but not as much as you do.” Hmm. I didn’t say anything to him about it for various reasons but dude, I think I’m insulted! My sister and I did have a bit of a giggle about…

  • disability,  language,  perceptions,  Uncategorized

    >”adverse medical conditions”

    >Outside the supermarket earlier there was a guy collecting money for a charity providing days out for kids. I forget the name which I’m annoyed about because I had intended to e-mail them about their ableist language on the board they had up. The conditions of the children they help include, in this order: Cancer, Leukaemia, Cerebral Palsy, The deaf and blind, terminal illnesses and other adverse medical conditions. This is their wording, not mine. So first I was a bit like “cancer, leukaemia, CP??!” I don’t know why but it just struck me as a strange list. Two serious life threatening illnesses, a touch of CP, two other disabilities…