• 2018,  blogging,  personal,  powerchair,  Quickie Jive

    Telling My Story

    I’ve been disabled from birth and I’m proud to be a wheelchair user. I love my powerchair, it’s scratched and squeaky, muddy but magic.  I’ve dripped pasta sauce all over it and bled on it. I’ve tangled the wool from my crafts under it and had to call for help when a duvet cover got jammed in the wheels.  I’ve drunk cocktails in it, danced in it and carted home heavy bags from the supermarket in it. It lets me live my life and do what I want. Someone described it as my independence but it’s more than that, it’s a part of my body. This chair has taken me…

  • 2017,  antidepressants,  Citalopram,  courage,  depression,  disability,  fluoxetine,  perceptions,  personal,  powerchair,  Quickie Jive,  Sertraline

    A Little Bit of Life

    (I am surprised that with nearly 2000 entries on this site I’ve never used the title A Little Bit of Life before) Two bits of not so brilliant but they could be much worse news are in my life at the moment.  I don’t think dominating my life is the right term but they are definitely big factors in everything right now.  And not easy. Life is never easy. I will start with the slightly easier one first – my powerchair is broken. The easiest way to explain it is to say it has a broken castor.  It’s more complicated than that because of the spider-trac but basically it’s not…

  • 2016,  honesty,  mental health,  perceptions,  personal,  Self-Care,  sharing,  Things I am proud of,  twitter,  Uncategorized,  writing

    Safe Space

    A couple of weeks ago, a new collaborative blog – Safe Space – was launched. For the past year or so I’ve been unconvinced by the concept of “safe space” on the internet – a space where people can be free to share/be who and what they are completely without fear of abuse, hate, ridicule, triggers or trolling.  It seems like too big a goal both with how massive the internet and it’s trolling problems have become and the fact that for some people what is acceptable and OK can be what’s triggering, abusive or upsetting for others. Online (and in person) safe spaces are a worthwhile goal and one…

  • 2015,  blogging,  carnivals,  CP related,  depression,  disability,  disability blog carnival,  disability blogs,  disability voices,  I want to change the world,  internet,  personal,  perspective,  questions,  things people say,  thinking,  twitter,  Uncategorized

    Rotation Curation for #Disability #rocur

    I’ve been curating the @OxfordIsYours twitter account.  It’s a RoCur (Rotation Curation) account for Oxford and the person who runs it said living in Oxfordshire counts. Basically RoCur is where there’s an account (often on twitter) where people take a week at a time to run it and share their experiences and tweet on the subject.  Most of these relate to places – like with Oxford Is Yours I’ve been tweeting about where I’ve been and what I’ve done – but some relate to hobbies or jobs or organisations or anything else. I’ve been enjoying it and have learned about a place in Oxford I’m going to visit soon I…

  • 2014,  C-A-B,  campaigns,  guest blog,  I want to change the world,  mental health,  my flat,  perceptions,  personal,  perspective,  political,  success stories,  Uncategorized

    On Volunteering and Housing Day

    Today is #HousingDay (hashtag housing day) a day designed to promote social housing and highlight all it does for people in the UK, how important it is and just what the need for social housing is. I know from my own experiences just how much having access to a flat that is fully adapted to my needs, is safe and secure (in terms of both safety and tenancy) and affordable is.  It’s more than a roof over your head it’s the ability to make plans and do things and get on with your life that might otherwise be impossible. And in both parts of my CAB  role (adviser/gateway assessor and…

  • 2014,  antidepressants,  depression,  fluoxetine,  honesty,  meds,  mental health,  personal,  Sertraline,  things people say,  treatment,  Uncategorized

    Apparently people with mental health problems just need to “tell someone”

    So Robin Williams has died.  Suicide.  And that’s sad as any death is. Facebook is full of posts with his picture sharing phone numbers and websites of helplines.  Ones telling people that “suicide is a permanent solution to a temporary problem.”  And declarations that if you’re feeling down, if you have depression to make sure you tell someone.  Friend’s saying that they hope their friends feel capable of telling them.  And similar on twitter and other places. Here’s the thing: I have a depression diagnosis and I have a lot of anxiety at times which has been recognised by medics although it’s never been given a label like GAD (generalised…

  • 2013,  access,  attitudes,  CP related,  current affairs,  disability,  Disability Glossary,  medical model,  personal,  perspective,  social model,  Uncategorized

    Quick and Dirty #Disability Theory

    I posted on Facebook earlier this afternoon that I’d given someone a spur of the moment elevator pitch length explanation of the social and medical models of disability and they’d understood it without my needing to clarify any further. This was, and is, a win. Especially because I really believe they actually understood it and didn’t just say so to shut me up. Then one of my friends posted that she doesn’t speak disability. And apparently I have blog entries on here dating back to 2006 but have never defined the models. Despite having both a social and a medical model category on here. So here goes. This will be…

  • 2013,  anaemia,  courage,  depression,  down,  friends,  memories,  personal,  Uncategorized,  unexpected things

    Surrounded by Sadness

    After I wrote the things that make me happy post on Saturday I’d planned to write some more on the subject. I will write more on the subject I’m sure but tonight sees me writing about the opposite of happiness. Because there is a hell of a lot of sadness around me lately. I heard of the death of a friend of mine and my parents yesterday. It was I think the sixth death I’ve heard of in the past seven weeks. Plus my Dad was saying he and my mum know of two others who have died recently. Two distant family members. For one she was in her nineties…

  • 2013,  achievements,  C-A-B,  personal,  success stories,  Things I am proud of,  things people say,  Uncategorized

    Thank You

    I’m quite well known for not noticing people waving to me when I’m out and about. Or not knowing who people are when they know me. Part of that has to do with the fact I meet so many people through things like CAB. I’m usually the only person they deal with but depending on if I’m doing appointments of gateway (10 minute triage like interviews) I might see up to 4 people in one session. The big thing in training for CAB is confidentiality. One of the points made about it is that due to that you shouldn’t acknowledge clients outside the bureau. That’s easier than it sounds because…

  • 2013,  acceptance,  benefits,  DLA,  ESA,  guest blog,  perceptions,  personal,  Uncategorized,  writing

    File this under “you couldn’t make it up.”

    Last Wednesday I got the news that I’ve been awarded ESA for two years. I’ve been put straight into the support group. It’s definitely the right decision and now I’ve had a chance to think about things and calm down I’m relieved its sorted and ok with it. But it’s not a comfortable place and if I’m completely honest I felt like I must be much more disabled than I realised. I wrote more about that, the ESA process and how it relates to me over on Bea Magazine And then yesterday I got a letter telling me about my DLA entitlement for this year. And all about how DLA…