• 2020,  crafts,  Family,  friends,  hospital,  lymphoedema,  powerchair,  Quarantine 2020

    Random Bullet Points of Quarantine-ish Life

    I have been meaning to write a blog post for ages. And as always I’ve started writing a couple and not posted them. So here is a post of Random Bullet Points of Life, written whilst waiting for a carer. I’ve been advised that it’s worth me started to look into a new powerchair. I’ve trialled the one they recommended three times (I trialled, then when the tech came back to work on my Jive and brought it a second time as the weather was better and I could have a longer go, then it turned out I’d have to have a different seating type if I got a seat…

  • 2020,  powerchair,  Quickie Jive,  things people say

    Another of those stories

    A couple of years ago I wrote about discovering I’d become one of the stories my wheelchair supplier tells. A tale of a disaster that they sorted and makes them look good. (And I was thrilled with the way they supported me with that) I’d hope two years later that someone else has taken my place in the stories rotation. But sadly I suspect I’ve probably just edged my way back onto the list. Because less than a week after it was in the workshop for routine maintenance (and after I told a new tech who dropped it back that “I’ve stopped saying see you soon instead of goodbye to…

  • 2020,  Crochet,  friends,  powerchair,  Quarantine 2020,  Quickie Jive,  shopping

    Hints of Normality

    I’ve been quiet here lately as I experienced some ableism (that was made worse by the fact it was from someone I thought was a friend) and that took up a lot of head space made me withdraw slightly for a bit. But as much as I did need to step back for a few weeks I don’t want to stop blogging here completely. The other thing that’s taken up rather more of my headspace than it should have is a problem with a carer. Now resolved and handled very well by the agency. It was sad for two reasons – one it was completely ridiculous and a carer I…

  • 2019,  my flat,  powerchair,  Quickie Jive

    At The Moment (15th February 2019)

    I think it probably has been a good week – a productive  one at least. But it doesn’t really feel like it. Because for me the productiveness has meant I’ve had to be at home all day every day. I have managed to get out quickly all of the days apart from one but I’ve not been to CAB, writing or disability active. There’s been contractors here all week sorting out my bathroom once and for all. They are here now laying the floor. It’s been quicker than I thought it would be (I had been told the work may go into next week) and it looks like it’s going…

  • customer service,  disability rights,  discrimination,  powerchair,  safety,  trains

    A Trip to Paddington

    Last week I wrote about how place are Allegedly Accessible but so often aren’t. About ending up with memories of events that aren’t of the good time I had and the things we laughed about but of things being unexpectedly inaccessible and the pain and struggle that causes. I went to London on Monday. I’m worried that it’s going to be another thing that in years to come my memories are of someone lying to my face and the fear and panic that caused, rather than the fun that came before. I’m angry about what happened. I’m very sad about how my brilliant day ended and being left with those…

  • 2018,  blogging,  personal,  powerchair,  Quickie Jive

    Telling My Story

    I’ve been disabled from birth and I’m proud to be a wheelchair user. I love my powerchair, it’s scratched and squeaky, muddy but magic.  I’ve dripped pasta sauce all over it and bled on it. I’ve tangled the wool from my crafts under it and had to call for help when a duvet cover got jammed in the wheels.  I’ve drunk cocktails in it, danced in it and carted home heavy bags from the supermarket in it. It lets me live my life and do what I want. Someone described it as my independence but it’s more than that, it’s a part of my body. This chair has taken me…

  • 2017,  antidepressants,  Citalopram,  courage,  depression,  disability,  fluoxetine,  perceptions,  personal,  powerchair,  Quickie Jive,  Sertraline

    A Little Bit of Life

    (I am surprised that with nearly 2000 entries on this site I’ve never used the title A Little Bit of Life before) Two bits of not so brilliant but they could be much worse news are in my life at the moment.  I don’t think dominating my life is the right term but they are definitely big factors in everything right now.  And not easy. Life is never easy. I will start with the slightly easier one first – my powerchair is broken. The easiest way to explain it is to say it has a broken castor.  It’s more complicated than that because of the spider-trac but basically it’s not…

  • 2016,  disability,  freedom,  good things,  powerchair,  Quickie Jive,  Uncategorized

    Miles on my tyres

    I’ve officially had the Jive for three months now.   And I’m pleased ro report that I didn’t come anywhere near falling out of my chair in month three so that’s an improvement on the previous two months.  I did freak people out on two occasions but I think that’s always going to be the case with this chair because of how the spider-trac suspension works – when i go up a steep ramp it shoves me really down onto my back castors and the front castors come slightly off the ground. I did 93 miles in my chair this month and set a new record for the most miles…

  • 2016,  powerchair,  Quickie Jive,  Uncategorized

    Miles on My Tyres

    I’ve had my new powerchair for two months now. I don’t want to write very much as I’m stressed and I’m tired and I don’t want to write a moany post about everything that’s going on.  It’s not been a good week or so in many ways as it’s been stupidly busy and there were some unexpected problems both minor and not quite so minor (although it’s not all been bad as amongst all the stress I managed two trips to Oxford to see friends and an evening out at a Jo Caulfield show). What I did want to make a note of somewhere and my blog is as good…

  • 2016,  powerchair,  Quickie Jive,  R-net,  Uncategorized

    Jive Talkin’ (part two)

    Part two of my review of my new Quickie Jive M Hybrid. This is more my thoughts and experiences now I’ve had it a week. Part one is here. I have got on very well with it although I have had a few problems but the tech came back out on Wednesday to troubleshoot (a return visit for troubleshooting was always planned but had to take place much sooner than we had intended due to two full blown problems rather than the niggles we expected) and these appear fully resolved. I got the version with swing away footplates as opposed to a footboard (I like the look of a footboard…