• customer service,  disability rights,  discrimination,  powerchair,  safety,  trains

    A Trip to Paddington

    Last week I wrote about how place are Allegedly Accessible but so often aren’t. About ending up with memories of events that aren’t of the good time I had and the things we laughed about but of things being unexpectedly inaccessible and the pain and struggle that causes. I went to London on Monday. I’m worried that it’s going to be another thing that in years to come my memories are of someone lying to my face and the fear and panic that caused, rather than the fun that came before. I’m angry about what happened. I’m very sad about how my brilliant day ended and being left with those…

  • 2018,  blogging,  personal,  powerchair,  Quickie Jive

    Telling My Story

    I’ve been disabled from birth and I’m proud to be a wheelchair user. I love my powerchair, it’s scratched and squeaky, muddy but magic.  I’ve dripped pasta sauce all over it and bled on it. I’ve tangled the wool from my crafts under it and had to call for help when a duvet cover got jammed in the wheels.  I’ve drunk cocktails in it, danced in it and carted home heavy bags from the supermarket in it. It lets me live my life and do what I want. Someone described it as my independence but it’s more than that, it’s a part of my body. This chair has taken me…

  • 2017,  antidepressants,  Citalopram,  courage,  depression,  disability,  fluoxetine,  perceptions,  personal,  powerchair,  Quickie Jive,  Sertraline

    A Little Bit of Life

    (I am surprised that with nearly 2000 entries on this site I’ve never used the title A Little Bit of Life before) Two bits of not so brilliant but they could be much worse news are in my life at the moment.  I don’t think dominating my life is the right term but they are definitely big factors in everything right now.  And not easy. Life is never easy. I will start with the slightly easier one first – my powerchair is broken. The easiest way to explain it is to say it has a broken castor.  It’s more complicated than that because of the spider-trac but basically it’s not…

  • 2016,  disability,  freedom,  good things,  powerchair,  Quickie Jive,  Uncategorized

    Miles on my tyres

    I’ve officially had the Jive for three months now.   And I’m pleased ro report that I didn’t come anywhere near falling out of my chair in month three so that’s an improvement on the previous two months.  I did freak people out on two occasions but I think that’s always going to be the case with this chair because of how the spider-trac suspension works – when i go up a steep ramp it shoves me really down onto my back castors and the front castors come slightly off the ground. I did 93 miles in my chair this month and set a new record for the most miles…

  • 2016,  powerchair,  Quickie Jive,  Uncategorized

    Miles on My Tyres

    I’ve had my new powerchair for two months now. I don’t want to write very much as I’m stressed and I’m tired and I don’t want to write a moany post about everything that’s going on.  It’s not been a good week or so in many ways as it’s been stupidly busy and there were some unexpected problems both minor and not quite so minor (although it’s not all been bad as amongst all the stress I managed two trips to Oxford to see friends and an evening out at a Jo Caulfield show). What I did want to make a note of somewhere and my blog is as good…

  • 2016,  powerchair,  Quickie Jive,  R-net,  Uncategorized

    Jive Talkin’ (part two)

    Part two of my review of my new Quickie Jive M Hybrid. This is more my thoughts and experiences now I’ve had it a week. Part one is here. I have got on very well with it although I have had a few problems but the tech came back out on Wednesday to troubleshoot (a return visit for troubleshooting was always planned but had to take place much sooner than we had intended due to two full blown problems rather than the niggles we expected) and these appear fully resolved. I got the version with swing away footplates as opposed to a footboard (I like the look of a footboard…

  • 2016,  powerchair,  Quickie Jive,  R-net,  Uncategorized

    Jive Talkin’ (part one)

    I got my new powerchair just over a week ago which means as requested it’s time to give it a review.  This will be a two part blog as it was getting a little long for one entry.  This entry is more about what I’ve got on the chair as opposed to my thoughts on it. I have a Quickie Jive M Hybrid. The M means I have the midwheel drive version.  I got my first midwheel drive chair by accident when I bought a barely used second hand one and ever since I’ve insisted on midwheel drive as they have such a smaller turning circle which means they can…

  • 2016,  powerchair,  Quickie Jive,  Quickie Salsa,  R-net,  Uncategorized

    Miles on my Tyres

    I go pretty much everywhere out of the house in my powerchair (the only place I go with any regularity in the manual is sailing).  And I get there in the powerchair.  I don’t as a general rule use taxis as they are difficult to find around here (accessible ones) and expensive. Plus I live very very close to the train station and close to town so it’s not really necessary. On a daily basis I would say I probably do two or three miles in the powerchair as it’s probably somewhere in the region of two miles to do a round trip to town.  I say probably, I’ve never…

  • 2016,  disability,  powerchair,  Quickie Jive,  Quickie Salsa,  Uncategorized

    Promises to Keep

    When I ordered my new powerchair (8th June) I was told it would take between 4 and 6 weeks to come but the manufacturer (Sunrise Medical) had been told it was urgent.  And if I’m completely honest I didn’t believe that was going to make any difference.  But my previous chair was from the same manufacturer and came really quickly so I was hopeful it would be on the sooner end of that estimate. 5 weeks later I asked my supplier if they had any news of when I’d get the chair and if not could they get me an update.  And it turned out Sunrise had decided that my…

  • 2016,  powerchair,  Quickie Salsa,  Uncategorized

    Wheeling on Broken Glass

    I have solid tyres on my wheelchairs. It’s one of the key things I insist on in a wheelchair. I’ve not had a chair with air tyres since my first year at uni and I’ve never had a powerchair with air tyres.  I know a lot of people aren’t keen on solids and find them uncomfortable but I’ve never noticed any difference between comfort of air or solid tyres. Mentally however it’s huge.  I feel safe with solid tyres and it’s not something I have to worry about. I remember the last time I got a puncture in a wheelchair really clearly.  I was at uni (in my first year)…