• 2013,  anaemia,  powerchair,  questions,  Sertraline,  Thursday Thirteen,  Uncategorized

    I’ve been wondering…

    A Thursday Thirteen list of things I’ve been pondering lately: …who invented chips? …does anyone ever use just one piece of loo roll? …why does one of my powerchair tires have zero tread left but the one on the other side still has a little? …why are knickers called knickers? …when will John Green bring another book out? …how long is too long to wear a bra before washing? …will I ever get sent another appointment to see my neurologist if I don’t chase him? …what shall I read next? …what does mono printing involve exactly? …do I need my antidepressant dose increasing? …how long my soon to start second…

  • 2013,  C-A-B,  CP related,  powerchair,  Quickie Salsa,  sailing,  Uncategorized,  you know you've got CP

    You Know You Have CP When…

    …you get congratulated on still having the wheels on your powerchair. Twice. On separate days. …you go to say goodbye to the same person who congratulated you because they’re leaving the bureau and moving on to a new job. And amongst the “wishing you well” comments they make they include that they “hope your wheels don’t fall off” …you wear out all four if the castors on your powerchair in 14 months. Hence all the wheel falling off comments because it was a genuine possibility while I was waiting for the replacements. …your Dad books an accessible taxi to take you, him and your mum to your brother’s wedding. When…

  • 2013,  acceptance,  access,  argh,  attitudes,  CP related,  difficulties,  disability,  drama,  frustrations,  powerchair,  Quickie Salsa,  ranting,  sarcasm,  so you had a bad day,  things people say,  Uncategorized,  wheelchair

    A word of advice

    For those who don’t know me. Don’t try offering me unsolicited advice or helpful suggestions about my wheelchair and then go off on me when I tell you’re wrong and calmly explain the reasons why I do what I do and/or can’t do anything else. Telling me where you saw me cross the road is dangerous is one thing. Repeatedly screeching at me that I’m going to get myself killed when I tell you its the only place I can is upsetting. And talking to me like I’m stupid and telling me that I do have a choice and could cross the road elsewhere is another that shouldn’t happen. Suggesting…

  • 2013,  action3,  baclofen,  dream diary,  identity,  laterals,  personal,  perspective,  powerchair,  Quickie Salsa,  songs of my life,  thinking,  Uncategorized,  walking,  wheelchair

    A Dream Is A Wish Your Heart Makes…

    I’ve been doing a fair amount of writing (fiction) and the character I was writing about was thinking about the disney version of Cinderella. Specifically the song lyric “A dream is a wish your heart makes when you’re fast asleep.” And then I started thinking about it. I frequently remember my dreams. They are very detailed and often borderline surreal. I can remember dreams I had months or years ago although not usually when I had them. I also have a recurring dream. I’ve not had it for absolutely ages but it was the one that came to mind. I think taking baclofen might have something to do with the…

  • 2012,  acceptance,  access,  discrimination,  freedom,  friends,  frustrations,  I want to change the world,  influences,  Life,  mental health,  nano group,  personal,  powerchair,  Quickie Salsa,  quotes,  Uncategorized

    Rekindled

    I’m reading a good book at the moment.  I hope to finish it tonight and I’ll review it for my blog in the next few days most likely.  When I flicked to the back to see how many pages it has I noticed that on the page after the end of the story there is the following quote. “Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light.” Albert Schweitzer I’ve had a tough year I think it’s fair to say.  And things are greatly improving and I feel like I’m not in…

  • 2012,  jay2,  jay3,  powerchair,  Quickie Salsa,  Uncategorized,  wheelchair

    >My new powerchair

    >[I’ve been trying to upload this with photos in it for two days now. For some reason it wouldn’t work so I’ve deleted them and will share them some other time. Just pretend there’s photos of my awesome chair in here] The new powerchair is great. I’m really enjoying it. Getting sick in the first week of having it and not being able to use it for a few days is seriously unfair. But such is life. There are a few small niggles but none are a big deal. One is that I had planned to use my Jay 2 deep contour cushion that I have in my manual in…

  • 100 days of writing,  2012,  powerchair,  Quickie Salsa,  spine align,  Uncategorized,  wheelchair

    >It’s The Most Wonderful Time of The Year

    >I got my new powerchair this afternoon! It’s a Quickie Salsa M with a jay3 backrest. And it’s red and silver. The silver part of that was a surprise. I’ll post more about it when I’ve had the chance to give it a good run. But so far I’m enjoying it. I didn’t know it was coming today but when I got up (after sleeping late) I saw I’d missed a call from the supplier and found out they could come in a few hours. I got in the shower after that, practically bouncing with excitement. And I was singing “it’s the most wonderful time of the year”. Badly. I…

  • CP related,  disability blog carnival,  jazzy,  powerchair,  Uncategorized

    >Milestones – The 75TH Disability Blog Carnival!

    >Welcome to the 75th Disability Blog Carnival!  I chose the theme Milestones based solely on the fact that 75 seems to be a huge number! I have to say I didn’t realise when I chose the theme that the day of the carnival would be a bit of a milestone day for me.  And yet the sort of milestone that only another crip can truly understand the meaning of. My powerchair broke down almost four weeks ago.  It’s been a long and complicated road to getting it working again.  And it’s been really hard.  Today it returned home, cleaned, with new tires and with the fault fixed.  I’ve been treating…

  • disability,  down,  Family,  fluoxetine,  friends,  jazzy,  powerchair,  Uncategorized

    >I’ve Had Enough

    > It’s three and a half weeks since my powerchair broke down.   And I’ve done relatively well since then.  I’m proud of how well I’ve done in fact.  I’ve done more wheeling in my manual chair than I probably have in years.  Admittedly I was in a lot of pain for two days after with a very sore neck and achy shoulders but doing so felt good. And the tears have only fallen once (although they came close to coming again this morning.).  A big part of that is probably my antidepressant – but that’s why I take it and a big proof that it’s working. Wheelchair repairs taking…