• 2012,  botox,  CP related,  hospital,  neurology,  serial casting,  Uncategorized

    A year later

    OK so it’s not quite a year later but it’s as close to a year later as I’ll get. Last July I had my first lot of botox and that was then followed up with serial casting in August. The TL;DR version for anyone who doesn’t want to follow that link to all my entries on it is as follows. Serial casting was not a particularly fun experience but I saw a lot of improvement. Unfortunately not as much improvement as to get my feet into a “normal” position but the amount (approx 20 degrees improvement in range and position improvement) is agreed by everyone to be huge. Yesterday I…

  • botox,  disability,  friends,  frustrations,  language,  Paralympics,  physio,  serial casting,  spasticity,  Uncategorized

    >Interesting Times

    >Lately I feel like I live in Interesting Times as in the Chinese saying.  It’s certainly been an interesting week. Monday my powerchair broke down with no warning. In the middle of Sainsbury’s car park. In the drizzle. Although luckily it wasn’t raining as such at that point in time. I tried to talk a Sainsbury’s employee through putting my chair into freewheel but he couldn’t do it (whether my instructions weren’t right/clear enough or he didn’t force it hard enough I don’t know) so my plan of getting a taxi back here fell through. I called my parents house on the off chance someone was there not expecting there…

  • achievements,  botox,  physio,  serial casting,  standing frame,  Uncategorized,  you know you've got CP

    >You Know You Have CP When…

    >…You aren’t sure that getting discharged from physio is the good thing everyone else is making it out to be. I went back to the hospital on Wednesday and saw two physios and an orthotist. They were very pleased with the progress I’ve made with the standing frame (and so am I). I’ve been able to maintain the improved range of motion in my ankles and my feet are still looking what I consider to be wrong – they used to turn in a lot and I can’t remember a time when they didn’t. Now they are straighter (I believe my talus – one of the bones in the foot…

  • CP related,  physio,  serial casting,  treatment,  Uncategorized

    >(lack of) Progress Report

    >I returned to the hospital last Thursday having had a couple of days without the casts.  It was very nice to be able to get up and get dressed when I wanted rather than when someone could help.  And to wear trackies and go sailing and have showers!  But equally I was very frustrated to not be in the casts because it almost felt like giving up without giving it the best possible shot. My physio got me back in a standing frame for a few minutes when I got there and she measured the angles of my ankles which were the same as they’d been on the Monday.  That…

  • disability,  serial casting,  things people say,  Uncategorized

    >Ask a stupid question…

    >Get a stupid answer! For various reasons I went out yesterday without the fugly clown shoe like cast shoes on top of my casts Fugly cast shoes. The ones I have now are too big for my feet (the ones I had that fit went missing when left at the hospital for the few days I was out of plaster earlier this week) hence the clown shoe description. I went to the supermarket. I was wearing my red skirt which perfectly matches my red casts. Because clearly, matching your clothes and casts is important (unless I want to wear my favourite skirt which clashes but I love, that is…) And…

  • depression,  disability,  me me me,  mental health,  serial casting,  treatment,  Uncategorized

    >Missing – one blog entry

    >If found please return to Emma at A Writer in A Wheelchair. I wrote an update about the serial casting on Wednesday night but for some reason it didn’t post. I can see it in my online drafts in blogpress but it won’t let me post it. So it’ll have to wait until I go on the PC and can go on blogger proper. Am I the only one who finds it surprising that Blogger haven’t released an app of their own or at least made the website iPad friendly? Things have changed and moved on yet again since I wrote it and surprised me yet again. This treatment process…

  • CP related,  physio,  serial casting,  Uncategorized,  you know you've got CP

    >Adventures in Serial Casting

    >This blog entry should have published last Wednesday, the 10th but didn’t for some unknown reason So, the last time I updated about this was the morning before I went back to have the first lot of casts removed. Those had been on for three days and when they were removed I had a small increase in the range of motion in my ankles – approximately five degrees which was described by the physio as small but I think actually is quite good. I also had a substantially improved foot position, especially in my left foot as although both of my feet had turned in my left was the worst.…

  • care,  CP related,  serial casting,  Uncategorized

    >The Crip and The Casts

    >I tried yesterday to post a video blog from my shiny but for some reason it won’t upload.  I will endeavour to cover the main points and do so quickly as I have hospital transport coming and was told to be ready at 9.15 (8.44 now). Casts went on Monday.  that day was a huge struggle and ended in a crying, shaking, sobbing, puking meltdown that necessitated my calling my Mum round at 11:30 pm and unfortunately getting her out of bed in the process.  Basically I couldn’t get out of bed without help, I got my skirt all tangled up, couldn’t get it up or down and it was…

  • botox,  care,  serial casting,  Uncategorized

    >A Few Days On

    >Not quite a week since I had the botox (tomorrow will be a week) and I think my ankles may be a little looser.  This is a very good thing.  It’s about the right timescale too as the physio said it takes 7 – 10 days to kick in.  I’m not 100% sure that’s the case, I need to get a second opinion from my dad, but it’s looking good. The first lot of casts go on on Monday.  I’m feeling a lot calmer about that now but it’s still going to be very different and possibly difficult.  I’m just hopeful I get a good result out of this.  As…

  • botox,  serial casting,  Uncategorized

    >Beginning Treatment

    >On Thursday I had my first ever injections of botox.  I received six injections of a very small dose of botox into my calves.  The hope is this will improve the position of my feet and thus my standing and transfers.  I was incredibly nervous about it (and still am) as for a lot of reasons I’ve always said I’d never have botox.  Saying yes was very scary! As a child I had a similar treatment (alcohol blocks) which left me weak and I lost function and needed calipers. Unfortunately both the consultant and my physio feel that whilst I would benefit from botox in my quads I shouldn’t be…