• 2014,  Monday Music,  songs of my life,  Uncategorized,  wheelchair

    Monday Music: All About That Chair

    It’s ages since I did a Monday Music post. I quite like Megan Trainor’s All About That Bass.  But if I am going to share a version of that song it’s not going to be that one.  Because you know I’m all about that disability bout that disability bout that disability (sorry I couldn’t resist). A you tuber called Heather Schouten who uses a wheelchair has done a version called All About That Chair. And it’s incredible. I can’t find a copy of the lyrics but this article in The Independent includes some of them. The article in my opinion borders on inspiration porn and probably sees things in the…

  • 2013,  action3,  baclofen,  dream diary,  identity,  laterals,  personal,  perspective,  powerchair,  Quickie Salsa,  songs of my life,  thinking,  Uncategorized,  walking,  wheelchair

    A Dream Is A Wish Your Heart Makes…

    I’ve been doing a fair amount of writing (fiction) and the character I was writing about was thinking about the disney version of Cinderella. Specifically the song lyric “A dream is a wish your heart makes when you’re fast asleep.” And then I started thinking about it. I frequently remember my dreams. They are very detailed and often borderline surreal. I can remember dreams I had months or years ago although not usually when I had them. I also have a recurring dream. I’ve not had it for absolutely ages but it was the one that came to mind. I think taking baclofen might have something to do with the…

  • 2012,  acceptance,  access,  advocacy,  Attempts at World Domination,  Cheerful Stuff,  depression,  disability,  discrimination,  so you had a bad day,  songs of my life,  Uncategorized

    Loser Like Me

    This entry may come across as cagy. It is deliberately so. I’ve been dealing with a completely ridiculous access fail for the past 12 weeks. Basically it’s done a complete number on my self confidence and depression, serving as a weekly reminder every Thursday that I’m different and that I’m not worthy of what everyone else has. Twelve weeks of being told they’d made a decision to do X about including me and then suddenly two weeks later we’ll do Y or oh no Z instead. It is dealt with. I’m not exactly enamoured with the reasonable adjustment type solution they’ve come with. Full the same as everyone else access…

  • 2012,  Cheerful Stuff,  Family,  friends,  fun stuff,  good things,  songs of my life,  surprises,  things that make me smile,  Uncategorized,  unexpected things,  yayness

    Party Memories (part one)

    Small bullet point memories of my 30th birthday party.  I’ve been putting off writing this until I feel less depressed.  I do feel like things are moving forward from that point of view but they’re still bad.  It occurred to me however that I might feel better for thinking and writing about something very cheerful so here goes… It was really, really good fun. I danced so much that my back hurt most of the next day.  That was totally worth it. I’d really agonised over the venue because the party room and bar are on one floor and the two disabled loos are on another (right next to each…

  • CP related,  songs of my life,  things people say,  Uncategorized

    >Monday Music – Born This Way

    >I first started thinking about using this song for a Monday Music last week after the comments made by Philip Davies in the House of Commons (he said that disabled people should work for less than minimum wage as they are less productive.)  People were tweeting how they were not worthless and it came to mind.  But in the end I tweeted a link to a video of Bruno Mars, Just The Way You Are. Then it turned into a bit of a week when people make stupid comments about my disability. First, earlier in the week someone was saying where the disabled loo was at the event and another…

  • Life,  lyrics,  Point of Grace,  songs of my life,  Uncategorized

    >NaBloPoMo Day Three: How You Live (Turn Up The Music)

    >A few weeks ago I heard this song again and wanted to share it here.  But I was sure I’d already done so a while back.  I went hunting for the entry it was in and I can’t find it so either I was wrong about that or it is here but not filed under the obvious category. It’s about the way in which we live – and good ways to do so.  It does make reference to God at one point.  I don’t particularly agree with that part of it but it’s still a good song.  Overall I love the message it brings and it’s one I agree with.…

  • songs of my life,  Uncategorized

    >Now I lay me down not to sleep…

    >… I just get tangled in the sheets! I wrote on the NaNo Oxfordshire forum yesterday that Who Needs Sleep by Barenaked Ladies is my NaNo song.  And I just started the video for it playing.  I never realised exactly what that first line is but now I do I think it’s not my NaNo song, it’s my everyday of my bloody life song. Coz I ask my carers to put the sheets properly back on my bed practically every time they come… and I do it roughly myself in between times. ** “I think never is enough, yeah never is enough…” Barenaked Ladies also have a song that sums…

  • friends,  fun stuff,  hopes and dreams,  songs of my life,  Uncategorized

    >Anything Can Happen

    >I travelled up to Birmingham yesterday and met up with my friend Rachel who I met at university and lived with for a year. It was really fun. Long, long day though. I ended up being out of the house for practically 12 hours (literally five minutes more and it would have been 12 hours). But so worth it. I had a wander round the shops while I was waiting for her, we went to Pizza Hut, had another wander round the shops together and then went to the theatre to see the Mary Poppins musical. Went to Starbucks for a drink after (couldn’t track down an accessible pub on…

  • sailing,  songs of my life,  Uncategorized

    >Coming Out!

    >Sailing starts again on 14th April (just under two weeks!) and we’re having the beginning of the season get together this evening. More commonly referred to as The Coming Out Supper. You can probably guess what I’ve been running around the house singing ever since I found out it was tonight… I’m coming out (I’m comin’)I’m coming outI’m coming outI’m coming outI’m coming outi’m coming out I’m coming outI want the world to knowGot to let it showI’m coming outI want the world to knowI got to let it show There’s a new me coming outAnd I just had to liveAnd I wanna giveI’m completely positiveI think this time aroundI…

  • songs of my life,  Uncategorized

    >Dancing at Discos….

    >….Eating Cheese on Toast Kate Nash rocks my (non existant, odd) socks. Best song. lyric. ever.  Or at least at the moment. Can’t say I have ever danced at a disco and eaten cheese on toast at the same time (now, chips those I have) but it makes me laugh. I’m gonna sing those songsthat offend the censorsGonna pop my pillsfrom a pez dispenser Nickelback also rock my sock (just the one this time) and win the title of my second. best. lyric. of. the. moment. Do you think if I found a pez dispenser on eBay I actually could use it to store my pills?  Is it terribly sad…