• 2014,  Self-Care,  standing frame,  Uncategorized

    Self care is

    Self care is… writing this post just before midnight Saturday night and scheduling it to post on Sunday so I don’t need to worry about it. Self care is… playing too many games of Pyramid Solitaire because I’m rediscovering it after a break of a few years and want to beat my high score. Self care is… a long period reading a book Self care is… not posting something on facebook because it would make it harder to deal with. Self care is… saying yes to something and then changing that to “probably no” because days later the details aren’t forthcoming and are stressing me out. Self care is… getting…

  • 2012,  me me me,  standing frame,  Uncategorized

    State of The Emma

    Title blatently stolen from one of my friends who frequently posts blogs titled “State of The [her username]” Couldn’t resist! I’m doing better, I think. I had a UTI or a virus or something the other week but that’s resolved.  Locum GP thought virus but was happy to treat as though it was a UTI based on my history and my symptoms.  I’m not sure what it was but I took a five hour nap one of the days when I was “off” so I definitely had something going on. I’m mostly medicated. And I’m a lot more motivated.  I’ve still been thinking a lot that I don’t fancy doing…

  • 2012,  achievements,  Attempts at World Domination,  CP related,  disability,  dose of happy,  standing frame,  Uncategorized

    Gold!

    “And on this banner day during the Oxfordshire Crip-Olympics 2012 the Gold medal in the standing frame event is awarded to Emma Crees. In a breathtaking performance she wows the crowds and sets a personal best of 40 minutes standing in the frame. A well deserved gold for the talented CPer who just a year ago was a novice in the standing frame with no expectation of ever achieving greatness. The grin on her face when she realised just what she’d managed has to be seen to be believed. A gold medal day to never be forgotten.” And the crowd goes wild…. ♥ Emma

  • 101 in 1001,  2012,  botox,  physio,  standing frame,  Uncategorized

    >101 in 1001 version 3 Item 28… #disability #standingframe #botox #mission101

    >Use the standing frame everyday for a week …has been completed! I wanted to do this one now because having had more botox a few days before I wanted to make the most of it. In someways using the frame everyday was easier than expected – i had wondered if it would get too painful after a few days running. And it didn’t although on one or two days it was sore when it wouldn’t usually be. At least one of those sore days was when my mum was helping me and she can’t get the straps as tight as my dad does so that’s possibly why. Time was a…

  • achievements,  botox,  physio,  serial casting,  standing frame,  Uncategorized,  you know you've got CP

    >You Know You Have CP When…

    >…You aren’t sure that getting discharged from physio is the good thing everyone else is making it out to be. I went back to the hospital on Wednesday and saw two physios and an orthotist. They were very pleased with the progress I’ve made with the standing frame (and so am I). I’ve been able to maintain the improved range of motion in my ankles and my feet are still looking what I consider to be wrong – they used to turn in a lot and I can’t remember a time when they didn’t. Now they are straighter (I believe my talus – one of the bones in the foot…