• baclofen,  fluoxetine,  meds,  spasticity,  terbinafine,  trains,  Uncategorized

    >In which CP makes things complicated

    >Sometimes being disabled is soooo complicated. Yesterday, I saw my GP. When I was waiting to go in something made me jump – and then spasm (my CP means I jump really easily and jumping usually triggers spasms of some form).  This woman sitting opposite me went “oooh that made you jump” which was apparently the funniest thing ever because she burst out laughing as she said it.  Pretty upsetting. My GP asked how I was when I went in and I said “OK” but I was feeling down because of that. Luckily she knows me and went “what does that mean?” So I told her, generally I’m good but…

  • CP related,  terbinafine,  Uncategorized,  you know you've got CP

    >You know you’ve got CP when…

    >Looking at a packet of medication and realising that you are potentially two tablets away from finishing a long term course of medication is very exciting. Otherwise known as Emma’s CP: It’s not all about the wheelchair. I’ve been taking Terbinafine since September and I have an appt with my GP tomorrow morning to discuss whether it’s too soon to take me off it or not.  All week I’ve been counting down and suddenly today I’m like “hmmm maybe she won’t take me off it yet.”  Basically due to a combination of Onychomycosis (fungal infection) and CP I pretty much had no toenails in September.  I hadn’t had proper ones for years. I…

  • baclofen,  Family,  fluoxetine,  meds,  terbinafine,  Uncategorized,  walking,  weight loss

    >A (Mostly Medical) Few Things

    >I started a new medication last week, Terbinafine.  It’s only one tablet a day but it tastes disgusting and no matter what I do it seems to dissolve in my mouth.  I’m gonna be on it for three months, maybe a little longer (possibly up to six) which is a bit better than a new permanent medication.  That’s apparently harsh on the liver which made me worry a bit about whether I should take it.  So we agreed that I would have a blood test part way through the course which they don’t normally do.  I’m hoping the fact I’ve lost more weight will mean that it’s a lot easier…