• 2014,  disability,  things people say,  Uncategorized

    Polite Small Talk

    I meet usually at least two new people each week through CAB.  If I see them as clients I can often find out a lot about them.  They rarely learn much about me.  I do tell them my  name but often that and the fact I’m sat there in a powerchair is all they learn about me. I also do resident involvement stuff with the housing association I rent from.  I’ve made one really good friend through that and I’m friendly with several others.  But I’ve met loads of people there.  And also because I’ve done disability awareness talks there for staff and tenants there have been a few occasions…

  • 2014,  antidepressants,  depression,  fluoxetine,  honesty,  meds,  mental health,  personal,  Sertraline,  things people say,  treatment,  Uncategorized

    Apparently people with mental health problems just need to “tell someone”

    So Robin Williams has died.  Suicide.  And that’s sad as any death is. Facebook is full of posts with his picture sharing phone numbers and websites of helplines.  Ones telling people that “suicide is a permanent solution to a temporary problem.”  And declarations that if you’re feeling down, if you have depression to make sure you tell someone.  Friend’s saying that they hope their friends feel capable of telling them.  And similar on twitter and other places. Here’s the thing: I have a depression diagnosis and I have a lot of anxiety at times which has been recognised by medics although it’s never been given a label like GAD (generalised…

  • 2014,  disablism,  things people say,  Uncategorized

    Can you actually hear yourself?

    Sometimes I think I should start carrying a dictaphone or similar around with me everywhere and recording my conversations.  Because just lately so many people have said things to me – people who I know – and have come across so ableist that I’ve been shocked.  And in a couple of the cases I’ve known what they’ve actually meant and suspected that if I made them listen back to what they said they may well realise how inappropriate their wording was. In two of the three most recent cases I feel confident that the other person in the conversation didn’t mean to hurt me and was just wording things wrong…

  • 2013,  achievements,  C-A-B,  personal,  success stories,  Things I am proud of,  things people say,  Uncategorized

    Thank You

    I’m quite well known for not noticing people waving to me when I’m out and about. Or not knowing who people are when they know me. Part of that has to do with the fact I meet so many people through things like CAB. I’m usually the only person they deal with but depending on if I’m doing appointments of gateway (10 minute triage like interviews) I might see up to 4 people in one session. The big thing in training for CAB is confidentiality. One of the points made about it is that due to that you shouldn’t acknowledge clients outside the bureau. That’s easier than it sounds because…

  • 2013,  acceptance,  access,  argh,  attitudes,  CP related,  difficulties,  disability,  drama,  frustrations,  powerchair,  Quickie Salsa,  ranting,  sarcasm,  so you had a bad day,  things people say,  Uncategorized,  wheelchair

    A word of advice

    For those who don’t know me. Don’t try offering me unsolicited advice or helpful suggestions about my wheelchair and then go off on me when I tell you’re wrong and calmly explain the reasons why I do what I do and/or can’t do anything else. Telling me where you saw me cross the road is dangerous is one thing. Repeatedly screeching at me that I’m going to get myself killed when I tell you its the only place I can is upsetting. And talking to me like I’m stupid and telling me that I do have a choice and could cross the road elsewhere is another that shouldn’t happen. Suggesting…

  • 2012,  disability,  things people say,  Uncategorized

    Success and a mind boggling moment

    I think the problem I’ve been struggling with is mostly resolved.  But strangely having been told that I’d made a difference for the disabled people who come after me it’s actually possible that this solution will just benefit me. I know they plan to implement this with any other disabled people who can’t use the standard way of doing things. But the cost involved means they’ve had to come up with a solution other than the one they hoped to. Which due to the set up means it could be difficult to implement for others. I’m waiting for one more answer and to see if things go as planned but…

  • disability,  serial casting,  things people say,  Uncategorized

    >Ask a stupid question…

    >Get a stupid answer! For various reasons I went out yesterday without the fugly clown shoe like cast shoes on top of my casts Fugly cast shoes. The ones I have now are too big for my feet (the ones I had that fit went missing when left at the hospital for the few days I was out of plaster earlier this week) hence the clown shoe description. I went to the supermarket. I was wearing my red skirt which perfectly matches my red casts. Because clearly, matching your clothes and casts is important (unless I want to wear my favourite skirt which clashes but I love, that is…) And…

  • CP related,  songs of my life,  things people say,  Uncategorized

    >Monday Music – Born This Way

    >I first started thinking about using this song for a Monday Music last week after the comments made by Philip Davies in the House of Commons (he said that disabled people should work for less than minimum wage as they are less productive.)  People were tweeting how they were not worthless and it came to mind.  But in the end I tweeted a link to a video of Bruno Mars, Just The Way You Are. Then it turned into a bit of a week when people make stupid comments about my disability. First, earlier in the week someone was saying where the disabled loo was at the event and another…

  • disability,  things people say,  Uncategorized,  wheelchair

    >No means No. #disability #awareness

    >This afternoon Dad and I went racing.  We were looking at the horses who were about to race when the sun went in and it got cold.  So I told Dad that I’d go inside the building next to where we were. That involved wheeling over to the building and then up a relatively long ramp (luckily it had switchbacks in it so it wasn’t too steep).  It wasn’t the easiest thing I’ve wheeled up recently but I’m slowly trying to build up my strength in my chair so I stuck at it. Partway up the ramp goes past an outside area where people can have drinks.  A man called…

  • achievements,  sailing,  things people say,  Uncategorized

    >Oxford Regatta 2010

    >Behind yet again and I have a few other entries which need to stand alone planned.  So just a few thoughts this evening to catch up a bit. The Oxford regatta was last weekend.  It was my last regatta of the year most likely and I’m not sure how many I will do next year, if at all.  I find them quite hard because although it’s a disability sailing event my disability and the set up clash rather a lot. I made it out once on Saturday and was that cold and sore afterwards that I had a load of clonus and it was hard to get me out of…