• 2016,  powerchair,  trains,  travel,  Uncategorized

    Have Powerchair, Will Travel

    I travel a lot by train.  It mostly works well.  There are systems in place to support disabled travellers and as someone who uses them often I know how they work and at my local station and the two I’m at most often I know a lot of the staff who do disability assistance.  Trains are easy. Except when they’re not. There’s a writing course in a couple of weeks. It’s an all day thing in a country hotel somewhere and someone I know is going. I’d sort of like to go too. I say sort of because I don’t get my hopes up about these things before I suss…

  • 2015,  trains,  travel,  Uncategorized

    Have Powerchair, Will Travel (Part 3)

    Part One and Part Two A couple of weeks ago I went to London for the day and went to Buckingham Palace.  I went last year with my mum and you can go back within a year for free if you get your ticket validated.  They wouldn’t validate my mum’s ticket because it was a free carer one but they validated mine and promised another free carer ticket if I went back.  Mum didn’t want to go back but my friend Eleanor came instead.  I wouldn’t have gone back if it wasn’t free but was keen to because as well as getting to look around the Palace they have an…

  • 2015,  anaemia,  Family,  furosemide,  lymphoedema,  sailing,  trains,  Uncategorized

    Random Bullet Points of Life

    For the small things worth mentioning but probably not worth a blog entry of their own + The furosemide for my lymphoedema is working and my feet are improved. Still obviously swollen but less so and my trainers fit better (but are still out of shape). I’m pleased. Blood test tomorrow to check the meds haven’t messed up my kidneys (and at my request check my iron) + I got sailing for the first time in several weeks last night. I really didn’t think I would based on what they were saying in advance about the weather but I was bored so we went to see. Even when we got…

  • 2015,  sarcasm,  trains,  Uncategorized,  you know you've got CP

    You Know You’ve Got CP When…

    …you get the sort of “reasonable adjustmemt”  or “making it easier for our disabled customers” type treatment you’d never have dreamed was possible or thought to ask for. So much so you’re almost scared to say yes to it.   I got to Reading yesterday and one of the assisted travel guys got me off the train from Didcot, walked with me across the station and got me on to the train to Waterloo.  The guard came over and asked where I was travelling to saying “don’t worry if they aren’t right there with the ramp at Waterloo, I’ll come and check on you.” Then there was an automated announcement…

  • 2015,  blogging,  disability normal,  trains,  Uncategorized

    Normal, Mundane and Boring

    This is something I’ve been thinking I should blog for a few months but haven’t got round to. I was talking to someone about the internet and disability earlier and this was something I mentioned. So now I’m blogging it. I think sometimes it’s very easy to blog about the things that make me angry or that annoy me or that happen out of the ordinary. Generally things I blog about are things that I’m passionate about and often times that passion comes across in blogging about negative things.  It’s easy to forget to blog about the other side of the story – the times when things go well or…

  • 2014,  trains,  Uncategorized,  wheelchair

    Obviously.

    I was on the platform at the station in Oxford this evening.  We’d been to see a show (Shrek the Musical) and it had been a bit of a break neck race to get there after the show finished about 20 minutes late meaning we had approx 18 minutes to get out of the theatre, over to the station and on the train. And there wasn’t going to be a train for an hour after the one I’d booked on.  Also I’d forgotten to check how late Didcot station is staffed tonight so I thought if I had to get the next one it’d be ok but I wasn’t sure.…

  • 2013,  freedom,  frustrations,  NaNoWriMo,  powerchair,  Quickie Salsa,  so you had a bad day,  trains,  Uncategorized,  writing

    A Properly Poorly Powerchair

    I’ve got a poorly powerchair. I’ve known for a fe weeks that it didn’t feel right but I couldn’t put together what was wrong with it. Then mum and I went to Oxford to see The Mousetrap and on our way to the station afterwards (I had gone in early for drinks with a friend) she said the back of my chair struck her as wrong. When we got back to the station she had a properly look as we had time before the train and said she wasn’t sure. But I mentioned that I’d thought it felt off and had had a feeling it was something on the front…

  • 2013,  books and reading,  theatre,  trains,  Uncategorized,  you know...

    You Know You’re a Book Blogger When…

    …You choose books over alcohol So. I’ve been invited to the theatre on Friday night by my lovely friend Angela. She’s organising the tickets and I’m in charge of figuring out the train. And really, the train times kinda suck. The best way I can figure it out gets us there an hour and a half before. There is another train that gets in an hour before but I’m thinking it’ll take probably twenty minutes to get to the theatre walking/powerchairing and if we do end up doing that it’ll be after having an argument with some idiotic taxi driver which’ll you know take a while. Plus I’ll want a…

  • 100 days of writing,  access,  falls,  Sertraline,  trains,  Uncategorized

    >Declaration

    >My mood is somewhat better today; I actually feel like I’ve achieved some stuff which helps. I have a positive looking outcome to an access issue I flagged on the horizon and as that was one of the things that made things tough the other week it’s a help to move things forward. My bruises from my fall are completely gone and a plan is in place to hopefully lessen the impact of future falls (so long as I can avoid falling in the next month or so) I REALLY must blog about that. The third crap thing I think will never be resolved but I’ve almost finished doing everything…

  • baclofen,  fluoxetine,  meds,  spasticity,  terbinafine,  trains,  Uncategorized

    >In which CP makes things complicated

    >Sometimes being disabled is soooo complicated. Yesterday, I saw my GP. When I was waiting to go in something made me jump – and then spasm (my CP means I jump really easily and jumping usually triggers spasms of some form).  This woman sitting opposite me went “oooh that made you jump” which was apparently the funniest thing ever because she burst out laughing as she said it.  Pretty upsetting. My GP asked how I was when I went in and I said “OK” but I was feeling down because of that. Luckily she knows me and went “what does that mean?” So I told her, generally I’m good but…