• 2016,  honesty,  mental health,  perceptions,  personal,  Self-Care,  sharing,  Things I am proud of,  twitter,  Uncategorized,  writing

    Safe Space

    A couple of weeks ago, a new collaborative blog – Safe Space – was launched. For the past year or so I’ve been unconvinced by the concept of “safe space” on the internet – a space where people can be free to share/be who and what they are completely without fear of abuse, hate, ridicule, triggers or trolling.  It seems like too big a goal both with how massive the internet and it’s trolling problems have become and the fact that for some people what is acceptable and OK can be what’s triggering, abusive or upsetting for others. Online (and in person) safe spaces are a worthwhile goal and one…

  • 2015,  blogging,  carnivals,  CP related,  depression,  disability,  disability blog carnival,  disability blogs,  disability voices,  I want to change the world,  internet,  personal,  perspective,  questions,  things people say,  thinking,  twitter,  Uncategorized

    Rotation Curation for #Disability #rocur

    I’ve been curating the @OxfordIsYours twitter account.  It’s a RoCur (Rotation Curation) account for Oxford and the person who runs it said living in Oxfordshire counts. Basically RoCur is where there’s an account (often on twitter) where people take a week at a time to run it and share their experiences and tweet on the subject.  Most of these relate to places – like with Oxford Is Yours I’ve been tweeting about where I’ve been and what I’ve done – but some relate to hobbies or jobs or organisations or anything else. I’ve been enjoying it and have learned about a place in Oxford I’m going to visit soon I…

  • 2015,  Self-Care,  twitter,  Uncategorized

    Self Care Sunday

    I’ve had a good week. I’m really tired today for some reason though. This became clear when I was talking to my sister on the phone. I asked how she was, she told me. Then she asked how I was and I told her before asking how she was again. I did immediately go “oh, I already asked you that” She offered to say something different in response this time but I turned her down. Yesterday I went shopping for the day and then came home and watched TV and listened to an audiobook (Northern Lights by Philip Pullman) and the like. I didn’t go online at all which is…

  • 2014,  advocacy,  blogging,  comedy,  language,  the r word,  theatre,  twitter,  Uncategorized

    Hate isn’t Funny, part two

    To recap: On Wednesday I went to see Omid Djalili do a warm up gig.  I really wish I hadn’t because not only did he used the R word in one of his jokes he also did another which was the most horrendously ableist joke I’ve ever heard.  On Friday I posted a blog about that – Hate Isn’t Funny. This is the last I’m going to say on the matter. That blog post got a lot of attention on twitter and facebook (and in comments here).  It’s also had the most hits of any of my posts on this blog in a very long time (I’ve not seen the…

  • 2014,  attitudes,  awareness,  campaigns,  CP related,  disability,  disability normal,  disablism,  internet,  interwebs,  medical model,  perspective,  ranting,  social model,  twitter,  Uncategorized

    In which I get Ranty

    (subtitle: and lose my shit all over the Internet.) This is ridiculous. In fact It’s the most stupid thing ever and frankly I probably shouldn’t dignify it with a response but I can’t let it go. There’s an American company called 3eLove. They sell a range of products with their logo on – the logo is a wheelchair symbol like you see on many different things but with the wheel replaced with a heart. It’s called the wheelchair heart.  I can’t remember if I’ve blogged about it before or not. Their products have a variety of slogans on as well as the wheelchair heart.  In 2012 my parents gave me…

  • 2013,  blogging,  Family,  forwards,  internet,  interwebs,  letter unsent,  me me me,  perceptions,  personal,  perspective,  sharing,  thinking,  twitter,  Uncategorized

    Legacy

    I can’t remember where but a few weeks ago I read something that I’ve been thinking about on and off ever since. It said that in the future our descendants won’t need to employ traditional genalogy techniques to learn about us. Because what they know about us will be from our facebook posts, tweets, and blogs. I like that idea because it means that potentially (should it turn out to be true) it means those in the future will know a lot more about my past then I will tell them. And they’ll know more about me than I do my own ancestors. I knew all of my grandparents and…

  • blogging,  comments,  disability,  identity,  language,  medical model,  social model,  twitter,  Uncategorized

    >Spoonie comments

    >My previous post got what I think is the biggest response I’ve had to my blog ever.  Or at least in a long time.  15 comments here on the blog and at least as many others commenting on twitter.  I knew posting something titled “Why I’m Going Off The Term Spoonie” would stir people up but I didn’t expect that. I’ve been really loving reading the responses and seeing all the different points of view.  Especially the ones that made me think.  I think I probably need to write something else now I’ve had the chance to talk to so many others and also to discover that my views on…

  • awareness,  disability,  identity,  language,  twitter,  Uncategorized

    >Why I’m Going Off The Term Spoonie

    >For the past several weeks, in fact probably the last two months or so, I’ve been really going off the term Spoonie. I mentioned something about that on twitter earlier this week and it didn’t go down well. I sort of had the impression that, perhaps, people were reacting to what I’d said without looking at all of what I’d said.  This is my attempt at explaining myself properly.  Please don’t take offense, these are my views and only that.  I in no way mean to imply that I think the term shouldn’t be used.  It just doesn’t work for me. The Spoon Theory is a way of describe what…

  • disability,  disability normal,  normal,  twitter,  Uncategorized

    >Disability Normal – The Twitter Version (Part 2)

    >Last night I wrote a blog entry – Disability Normal – about a new friend’s comments about getting an insight into my life and what her insight made me think.  It sparked quite a conversation on twitter this morning and I spent some time gathered the tweets together.  Those can be found in Disability Normal – The Twitter Version.  I then went up to my parents house for a Mothers Day barbecue (in the rain) and returned to discover in the several hours I was out it had continued.  So this is part two.  I rather suspect I might end up doing part three as well/.people think because you are…

  • disability,  normal,  twitter,  Uncategorized

    >Disability Normal – The Twitter Version

    >My previous blog post has inspired quite a lot of chat on twitter with various people sharing their own disability normal things.  Here’s the list: (I’ve not linked the accounts because it would take FOREVER but you can search for them on twitter using the names listed or by searching #DisabilityNormal Falling up stairs – SpazGirl11 Spilling food – SpazGirl11 Not being able to find a coffee shop without a step – Batsgirl On the bright side, orders brought over to my table in Starbucks rather than standing around waiting – Batsgirl filling in a form within an hour of it dropping through the door – but having to wait…