• 2016,  Uncategorized

    Opening Lines

    2016 has been an interesting year. Not hugely positive in many ways but there were still fun things and moments to remember when I look back.  One thing I’ve done in the last few years and enjoyed is go back through my blog entries and find the first one for each month. This is known online as the Opening Lines meme. I find it interesting to see how much I’d forgotten and refresh my memory.  Compiling this always takes longer than it should because I tend to get lost reading lots of entries as I look to find the first one of each month. Here are my 2016 Opening Lines:…

  • 2016,  Uncategorized

    Merry Christmas!

    I’ve been very quiet on my blog lately and haven’t posted anything Christmassy at all.  I’ve not felt very Christmassy in fact. I’m not as excited and bouncy about Christmas as I have been before.  Which is fine.  It just pretty much just sums up this year.  It’s been a difficult and long one in many ways that I won’t get into now.  There have been good things and I have good memories.  But as I wrote in an email to an acquaintance last week if I had to sum this year up it would be that it’s been one of broken wheelchairs and deaths.  In previous years my blogging…

  • 2016,  courage,  Uncategorized

    Milo

    I used to be scared of dogs.  Full blown petrified.  I couldn’t even be in the same park as one without being frightened.  And a lot of people who had dogs would say their dog was harmless and wouldn’t scare me but it would. Or they’d tell me parents to give me a day with them and their dog and I’d come back cured. I think the problem is that there was never any thing that my parents or I could put our fingers on as the reason why I was scared (I later developed something of a fear of/hatred for cats and I can tell you exactly why that…

  • 2016,  acceptance,  argh,  attitudes,  awareness,  CP related,  frustrations,  things people say,  Uncategorized,  wheelchair

    “She’ll run you over”

    There are a lot of allegedly jokey comments that people make about or to me as a wheelchair user.  Usually well meaning and perhaps an attempt at being funny. They aren’t funny.  Most of them never were but one or two may have been if not for the fact that I hear them all the time.  I’m talking about the “women drivers” comments. The people who say “do you have a license for that thing?” Those who randomly see me and go “no speeding!” And many others. I often roll my eyes at that sort of thing and let it go because it’s usually strangers and theres no point getting…

  • 2016,  Uncategorized

    Random Bullet Points of Life

    A blog for the small things worth recording but maybe not worth an entry of their own. And this edition has the bonus of being written in the time it takes for the oven to heat up for me (oh so late) dinner. It took a visit from an NHS wheelchair tech (not my regular one), an adjustment by my Dad and a visit from my regular NHS wheelchair tech to get the manual working again. It was fixed after the first visit but the fill in tech didn’t reattach it in the correct place so it wasn’t useable. Dad would have left it but I needed to go somewhere…

  • 2016,  action3,  Attempts at World Domination,  CP related,  falls,  Uncategorized,  you know you've got CP,  you know...

    You Know You’ve Got CP When…

    …you don’t know whether to post an “argh terrible disaster it’s all going wrong crisis.” status update or a “oh wow this just happened I rock” status update – and the two things relate to different parts of the same incident. So it was something like 11:30pm last night. I’m on the computer and beginning to think about bed but I’m waiting for something on here to finish. I decided to leave it on and go to the loo, start getting sorted.  I’m in the hall, almost to the bathroom when something happened to my manual chair and not only wasn’t I moving but it had dropped in one corner…

  • 2016,  disability,  freedom,  good things,  powerchair,  Quickie Jive,  Uncategorized

    Miles on my tyres

    I’ve officially had the Jive for three months now.   And I’m pleased ro report that I didn’t come anywhere near falling out of my chair in month three so that’s an improvement on the previous two months.  I did freak people out on two occasions but I think that’s always going to be the case with this chair because of how the spider-trac suspension works – when i go up a steep ramp it shoves me really down onto my back castors and the front castors come slightly off the ground. I did 93 miles in my chair this month and set a new record for the most miles…

  • 2016,  comedy,  friends,  musicals,  Uncategorized

    Matilda!

    Earlier this week I went to London, had a wander round by myself (getting slightly lost) and then met up with friends (including a very excited almost 7 year old) and we went to a matinee of Matilda the Musical. It was fab.  I did expect it to be funnier than it was – I had high expectations for that because Tim Minchin who is a musical comedian (and one of my favourites) wrote the lyrics. But when I thought about it afterwards he’s known for clever humour. And this was certainly fully of clever lyrics with humour woven in.  I would much rather have that than it be full…

  • 2016,  books and reading,  Uncategorized

    Readathon October 2016

    Morning, morning Feels like forever since I’ve updated my blog. I keep starting posts but then changing my mind or not having time to finish it. I have two versions of the same post in drafts, neither likely to ever see the light of day.  Mostly it’s been a stressful few weeks and I’ve been trying not to whinge too much on my blog as at least one of the people who have caused that stress sometimes reads my blog.  I have been whinging a lot on the phone to certain friends and also on twitter though. I’ve also started a new 101 in 1001 list (I think I may…

  • 2016,  attitudes,  complaints,  courage,  CP related,  customer service,  disability,  Uncategorized

    So Take Me As I Am

    (title is a lyric from the Meredith Brooks song Bitch) A couple of weeks ago I was asked how I’d enjoyed a show I went to by a member of staff there who I know. I had enjoyed it but there had been one thing that had happened – which was tangentally access related – that had really irritated me.  It was totally inconsequential and unlikely to be repeated but it had had an impact on my enjoyment and they asked so… I said “If I could just make one slightly bitchy point….” More recently than that I discovered that the actions of someone else have left me with a…