• 2017,  Action 4,  action3,  hospital,  jay2,  jay3,  lymphoedema,  spasticity,  wheelchair

    A new chair

    I’m getting a new manual wheelchair provided by the NHS. I had an assessment with a rehab engineer and an OT today.  There was some discussion and after a few minutes I said “So I am getting a new chair then?” And the engineer who is someone I’ve seen in clinic before said “Emma, the only reason we’re letting you go home in that chair is because we don’t have anything here to lend you and we can’t send you home without a chair. If we had something else you’d be in it.” They also got a new type of cushion out for me to try and the OT declared she…

  • 2016,  acceptance,  argh,  attitudes,  awareness,  CP related,  frustrations,  things people say,  Uncategorized,  wheelchair

    “She’ll run you over”

    There are a lot of allegedly jokey comments that people make about or to me as a wheelchair user.  Usually well meaning and perhaps an attempt at being funny. They aren’t funny.  Most of them never were but one or two may have been if not for the fact that I hear them all the time.  I’m talking about the “women drivers” comments. The people who say “do you have a license for that thing?” Those who randomly see me and go “no speeding!” And many others. I often roll my eyes at that sort of thing and let it go because it’s usually strangers and theres no point getting…

  • 2016,  disability,  lyrics,  Uncategorized,  video,  wheelchair

    Parody

    I love music.  And I love parody songs. Sometimes I hear the parody songs first and then discover the ones they’re based on – because I rarely listen to the radio a lot of new songs seem to pass me by for a while lately. At the moment I’m particularly enjoying this parody of All About That Bass by Meghan Trainor – All About That Change.  It’s especially cool because it’s a parody that Meghan Trainor sings herself (along with James Corden who I’ve never really seen much of).  Apt for this time of year and it made me laugh. But if I’m honest the number one parody song is…

  • 2015,  A to Z blogging challenge,  powerchair,  Quickie Salsa,  Uncategorized,  wheelchair

    Q is for…

    Q is for Quickie Salsa M My powerchair is a Quickie Salsa M so what else to write about for Q? I use it daily and pretty much if I leave the house I do so in my powerchair. It’s my independence and so much more than that it’s my freedom. These pictures were taken on the day I got it and it’s no where near as clean looking and is a little battered, three years later. It is however very well loved and a brilliant tool. Despite having had to have many parts replaced and it needing more maintenance than I believe it should do I wouldn’t be without…

  • 2014,  Monday Music,  songs of my life,  Uncategorized,  wheelchair

    Monday Music: All About That Chair

    It’s ages since I did a Monday Music post. I quite like Megan Trainor’s All About That Bass.  But if I am going to share a version of that song it’s not going to be that one.  Because you know I’m all about that disability bout that disability bout that disability (sorry I couldn’t resist). A you tuber called Heather Schouten who uses a wheelchair has done a version called All About That Chair. And it’s incredible. I can’t find a copy of the lyrics but this article in The Independent includes some of them. The article in my opinion borders on inspiration porn and probably sees things in the…

  • 2014,  trains,  Uncategorized,  wheelchair

    Obviously.

    I was on the platform at the station in Oxford this evening.  We’d been to see a show (Shrek the Musical) and it had been a bit of a break neck race to get there after the show finished about 20 minutes late meaning we had approx 18 minutes to get out of the theatre, over to the station and on the train. And there wasn’t going to be a train for an hour after the one I’d booked on.  Also I’d forgotten to check how late Didcot station is staffed tonight so I thought if I had to get the next one it’d be ok but I wasn’t sure.…

  • 2014,  disability,  Uncategorized,  wheelchair

    On knowing other wheelchair users

    Recently I was in a coffee shop waiting for a friend.  I’d gone a bit early to do some writing (which didn’t happen in the end) and as I was queuing for a drink a very vague acquaintance was in the queue in front of me.  They turned and said Hi. I said hello and asked how they were and we chatted a bit.  Briefly but friendly, but not really involved.  I don’t know this person and I don’t think we have much in common so I guess that’s how that’s going to stay. They then mentioned having seen someone we both know recently who for the purposes of this…

  • 2014,  powerchair,  Uncategorized,  wheelchair

    Love – Hate

    I have a bit of a love-hate relationship with my powerchair.  I think I’ve eluded to that fact before but I’m not sure I’ve ever really blogged about it. Before I went to uni I only used my manual chair when out of the house.  I could walk a very short distance and I wobbled around the house and fell over a lot.  I also lived with my parents and younger brother and sister.  When I went to uni I started using my chair “at home” more but still walked a bit with my walker.  That didn’t last too long.  In part because I was doing more and I can…

  • 2013,  attitudes,  awareness,  complaints,  hospital,  jay2,  Uncategorized,  wheelchair

    Making a Difference

    I was rereading some old blog entries earlier. I was planning to write something (not this post) and I thought maybe I’d written about it last year. I didn’t find anything but what I did come across was this post. I thought it was kind of apt given a piece of news I received today. After three and a half months I finally received my new wheelchair cushion. It’s strange. It’s good and it’s comfy. But it almost feels off. This is set up differently to my old one and I’m not sure if that’s why (I have the stuff to change the set up to my old one if…

  • 2013,  jay2,  Uncategorized,  wheelchair

    Conditions of Loan

    I’m going to start this entry with a Facebook status I posted on Friday. It’s the easiest way of cutting a very long story short. Requested a new wheelchair cushion. Waited six weeks and got sent part of a wheelchair cushion. Took the old disintegrating one apart and tried to fit new part to still working bit of old cushion. They’re different sizes. Couldn’t put old cushion back together as taking the cover off caused the gel to completely disintegrate. Covered in gel as is my floor. Called wheelchair services. They promise to get me a full new cushion with inserts. Manage not to shout at the OT about maybe…